Patient Comments: Ulcerative Colitis - Symptoms

For ulcerative colitis, what were the symptoms and signs you experienced?

Comment from: Mamita, 65-74 Female (Patient) Published: July 05

I was diagnosed with ulcerative colitis, after about six months of having various tests and no diagnosis, in 1975. I was by then nearly at death's door, my stools were just blood, and I had vomiting and unbearable stomach pains, always at the same time at night, anemia, and weight loss. I also had arthritis in my left ankle which was swollen and painful. I was treated with prednisolone and Salazopyrine and it was under control in about 3 or 4 months. I have been very lucky that, in the 41 years I've had it, I have only had 3 or 4 flare ups and only one of them serious enough to be hospitalized for 5 days, which were treated with prednisone for a little while. I even stopped medication for long periods, of my own accord, until the doctor told me that Salazopyrine somehow prevents colon cancer. Having a good doctor is vital. My initial one was very good, later ones not so much. I have led a normal life, with lots of stress and work thrown in. I only missed work at the very beginning and the 5 days when I was hospitalized with a flare up. I was on a bland diet to start off with but soon started eating normally, only avoiding plums which I think I can have now. Don't despair! Find a good doctor before your colitis gets out of hand.

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Comment from: WorriedWifey, 25-34 Female (Caregiver) Published: March 03

My husband was diagnosed with ulcerative colitis 2 years ago. He has had 2 really bad flare ups that hospitalized him for weeks. His symptoms have included really bad abdominal pain, severe weight loss in short periods of time, blood and mucus in his stool, very watery diarrhea multiple times a day, fatigue and weakness to where he couldn't even stand when hospitalized, nausea and even hemorrhoids. Lately, he has gotten newer symptoms including a fever, breaking out in cold sweats and he has been throwing up everything he consumes and still has bad cramping and liquid diarrhea. It's almost as if his body is not properly digesting his food anymore.

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Comment from: pmunkin, 45-54 Female (Patient) Published: December 31

I had a mild case of ulcerative colitis in 2003 that was treated with medication. After a year I was off the medicines. Fast forward to 2014 July. With no prior symptoms (aside from joint pain I attributed to age) I woke up one morning and passed a lot of blood. I ended up in an aid car to the hospital. In my case I had a rare form of right sided ulcerative colitis. In the hospital they could not control the bleeding with prednisone. After several transfusions and a near death experience on day 4 I had a hemicolectomy and a temporary ileostomy. After 3 months I had the remaining 2/3 of my colon hooked up and so far so good. I am still only 8 weeks out from surgery 2 but I feel good and everything is working. My surgeon said this was an unusual presentation, all the passing out. Get your colonoscopies!

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Comment from: kirmart, 19-24 Female (Patient) Published: December 03

I have been coping with ulcerative colitis (UC) for 4 years now and around December every year it seems to be the worst. I am a student in graduate school so the pain maybe caused by poor diet/lack of sleep/stress. I am on Asacol, Imuran, and Simponi. I have yet to go 6 months in remission. It is nice to see people have gotten in remission and I am looking forward to trying some of your suggestions.

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Ulcerative Colitis - Treatments Question: What treatment has been effective for your ulcerative colitis?
Ulcerative Colitis - Diet Question: What dietary or lifestyle changes have you made after your diagnosis of ulcerative colitis?
Ulcerative Colitis - Complications Question: What complications of ulcerative colitis have you, a friend, or relative experienced?
Ulcerative Colitis - Surgery Question: What type of surgery did you have for ulcerative colitis? What was the outcome?

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