Patient Comments: Ulcerative Colitis - Symptoms

For ulcerative colitis, what were the symptoms and signs you experienced?

Comment from: Jessica, 19-24 Female (Patient) Published: October 24

I have been living with ulcerative colitis for the past 7 years and I was diagnosed in 2007. At first I did not take it seriously because I did not know much about it, but then it started getting worse. I could not attend school because of the urgency of having to use the bathroom which embarrassed me; I started having bloody stool and even passing stool more than 5 times a day. I eventually lost weight. At times after a bloody diarrhea I would have cramps and also fever. As a result I fell into a depression because I could not leave the house or attend any events. I had to stay in for a while and changed my diet which was very difficult.

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Comment from: njguy, 35-44 Male (Patient) Published: March 03

I had ulcerative colitis since May 2013. It wasn"t until December 2013 that the doctor finally ordered a colonoscopy. Initially it was attributed to me getting married. That wasn"t the case. It didn"t stop. Never saw too much blood, but I did have fatigue, moodiness brought on by being tired and from having to alter my life around the bathroom. I can travel less and it has affected my sex life. As far as medications, the only one that works is Xanax. And that is to take the frustration away from all the other medications that I"ve taken that don"t work. It"s now February and I"ve basically given up on doctors. I think this is something that will just always be a problem and it"s easier to accept having it than thinking things can ever go back to normal again.

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Comment from: Darla, 45-54 Female (Patient) Published: October 24

As a little girl with stress in the family I frequently had stomachaches. My mom just thought it was a "nervous tummy." In my very early twenties, out of nowhere, I became very ill with stomach pain, bloody diarrhea, and fever. I was hospitalized for three days and sent home with the diagnosis of ulcerative colitis after many blood tests, endoscopy and sigmoidoscopy. The best thing that helps me and my symptoms is rest and trying to keep any stress down as much as possible. Although it is said that stress doesn't cause this medical problem... I can certainly say that stress causes flare-ups.

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Comment from: tucker, 13-18 Male (Patient) Published: August 14

The symptoms I experienced for ulcerative colitis were bloody diarrhea, severe abdominal pain and weight loss. My doc said the UC is not that bad in me but it could get worse if I don't follow a healthy diet and take dairy products. He said that is the only key in UC to follow the diet given by the doctor and medicine plays a little role, it just makes your symptoms a little better for some time but after that it depends just on your diet.

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Comment from: 45-54 Female (Patient) Published: August 13

I am a 49-year-old female, and I was diagnosed with ulcerative colitis (UC) only three weeks ago. My symptoms started with uncontrollable diarrhea, which then turned to all blood, and stomach cramps. I couldn't eat and was having dry heaves, hot and cold flashes. I went to the ER, where their first guess was a hemorrhoid aggravated by the diarrhea. Then they gave me a CT scan. I was admitted, and after three days, they gave me a colonoscopy, which showed that I had UC. They then started me on sulfasalazine, and my symptoms ceased. My stools are now formed again. I was lactose intolerant before my diagnosis, but I have now given up all forms of dairy. I am now eating a low-fat, low-carbohydrate diet in hopes of staying in remission. I have read of remissions lasting from 10 to 30 years, and I'm keeping my fingers crossed that I'll be one of the lucky few.

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Published: July 31

I was diagnosed with ulcerative colitis this summer after a three-day stay in the hospital, combined with a high fever, multiple bowel movements and a follow-up colonoscopy. This flare-up has been going on for six weeks. I have managed to work, but I have had to leave early or miss a few days. I am on Canasa suppositories and Prednisone. It seems to be lessening in voracity, but I am still going eight or nine times a day, sometimes with nothing more than spasms and mucus. It has affected most things in my life, including travel and sex.

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Patient Comments

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Ulcerative Colitis - Treatments Question: What treatment has been effective for your ulcerative colitis?
Ulcerative Colitis - Diet Question: What dietary or lifestyle changes have you made after your diagnosis of ulcerative colitis?
Ulcerative Colitis - Complications Question: What complications of ulcerative colitis have you, a friend, or relative experienced?
Ulcerative Colitis - Surgery Question: What type of surgery did you have for ulcerative colitis? What was the outcome?

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