Patient Comments: Ulcerative Colitis - Treatments

What treatment has been effective for your ulcerative colitis?

Comment from: jackie beard, 35-44 Female (Patient) Published: June 10

I have not had the surgery for ulcerative colitis yet, but they are wanting to remove my large intestine and put me on a colostomy bag. I have almost bled to death 3 times and I'm really sick of being in the hospital.

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Comment from: Jan, 55-64 Female (Patient) Published: August 20

I was diagnosed when I was 26 years old. I took sulfasalazine for 25 years ,along with retention steroid enemas. That worked as long as I was on the meds. Now I am 63 and I am not on any meds because I have developed sensitivity to everything except, prednisone. So when I have flare-ups that is all that will help. Now I have to have a colonoscopy every year.

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Comment from: phylray, 75 or over Male (Patient) Published: July 17

I have been taking (3) VSL#3 capsules each morning it seams to help. When I get a flareup I increase the amount I take to 4.

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Comment from: dooscoop, 55-64 Male (Patient) Published: November 02

I am a male 60 y/o and was diagnosed with UC in May 2012. I was put on Lialda and within a month, my symptoms improved tremendously to the point of felt as good as I did before my diagnosis. I went in for another colonoscopy in October 2012 and was told by the doctor that she was surprised that I still had so much inflammation in my colon. She doubled my dosage of Lialda from 2.4 grams to 4.8 grams per day. Shortly after that, my symptoms of UC returned, mostly being frequent loose bowel movements. I had gone from 2 normal stools per day in August to 8-10 loose stools in October.

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Comment from: 13-18 Male (Patient) Published: October 18

I was diagnosed with ulcerative colitis at the age of 17, took a while to figure out what it was, once they put me on medications, it led to liver failure. Make sure you get blood tests taken when you switch medicines. Now I can't take the majority of the medications they offer. I am now 20 and still frequently in pain. So be careful and get blood tests often when switching!

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Comment from: Crown5, 35-44 Male (Patient) Published: September 26

I was diagnosed with ulcerative colitis at about age 32. I was taking Asacol 400mg, 3 tablets, 2 times a day for about 7 years and it helped somewhat with my symptoms. I was then switched to Asacol HD 800mg, 3 tabs, 2 times a day for the next two years, but still had symptoms of UC. A year ago I tried "The Gerson Therepy" as an alternative to medication. I followed the regimen for about two months. It has been a year and I have had absolutely no symptoms of UC whatsoever. No flare ups, hyper bowels, bloating or cramps. I have even went back to solid stools.

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Comment from: kevin, 25-34 Male (Patient) Published: August 27

Hello, I was diagnosed with ulcerative colitis when I was 30. I've had it for 2 years now and been through so many waves of different drugs. Prednisone, which is not a fun drug to be on. You never feel full, always hungry. Break out real bad with acne. Weight gain. I had the enema approach and I was doing that nightly for a while but my UC grew and no longer stopped the bleeding. I'm now on Remicade and it stopped the bleeding. Now I have horrible urgency to run to the bathroom. Waiting now for something else but thinking that I'm probably just have to deal with what I got. Stay away from seafood, anything spicy, dairy. Like a lot of other people on here say try to find a good doctor. Someone who listens to you. Keep your head up and try to eat smart and good luck.

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Comment from: jill, 45-54 Female (Patient) Published: August 07

I was diagnosed at the age of 19 and have taken Asacol and the Rowasa enema which has worked well. It was the worst during my pregnancy at age 23. I had flare ups 5-6 times a year until I had my gallbladder taken out at age 35. I'm now 45 and have occasional loose stools but have not had severe symptoms in like 25 years.

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Patient Comments

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Ulcerative Colitis - Symptoms Question: For ulcerative colitis, what were the symptoms and signs you experienced?
Ulcerative Colitis - Diet Question: What dietary or lifestyle changes have you made after your diagnosis of ulcerative colitis?
Ulcerative Colitis - Complications Question: What complications of ulcerative colitis have you, a friend, or relative experienced?
Ulcerative Colitis - Surgery Question: What type of surgery did you have for ulcerative colitis? What was the outcome?

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