Patient Comments: Trigeminal Neuralgia - Causes


What was the cause of the trigeminal neuralgia you suffered? Submit Your Comment

Comment from: angus, 45-54 Female (Patient) Published: April 21

Toxic mold exposure caused my trigeminal neuralgia, which was chronic for a long while after that, but with antifungal nasal sprays got better; except when exposed to any toxic mold mycotoxins (especially stachybotrys), even briefly, even on a person's clothes. Then I have an attack and it doesn't go away until I do nasal antifungal spray and shower actually.

Comment from: t, 25-34 Female (Patient) Published: May 21

I have been treated for trigeminal neuralgia for three weeks now. I thought I had a tooth ache until my physician and my neurologist said different. I am thinking it is due to my cranial facial reconstruction and removal of a large hemangioma over my right eye 4 years ago. I am being treated with Tegretol XR 2 times a day but to relieve some of the pain I take Tylenol extra strength. I just want the pain to go away.

Comment from: kyman71, 35-44 Male (Patient) Published: March 14

I have been dealing with trigeminal neuralgia for a little over ten years. The pain is excruciating and almost sometimes unbearable. I have been put on many medications such as Frova, Tegretol, and many other pain medications. This last November is when I had a flare up after a couple of years being somewhat pain free. I"ve had many MIRs and tests done. I went to a neurologist and after the numerous tests and MRIs, the doctors seem to think they"ve found the cause of my trigeminal neuralgia. I have an artery pressing up against my trigeminal nerve and that"s what is causing my trigeminal neuralgia. Within the next few weeks, I"ll be having brain surgery to fix this problem. After all this time of dealing with this pain, I"ll be free (hopefully).

Comment from: Kym, 55-64 Female (Patient) Published: November 21

I am not positive, but my symptoms started after I hit the side of my face when I fell into a corner of a door, and hit the side of my head really hard. I had 2 root canals and a tooth pulled, not knowing it was trigeminal neuralgia.

Comment from: LindaD, 45-54 Female (Patient) Published: October 22

I get trigeminal neuralgia several times a year. Sometimes it's worse than others and lasts from 2-5 days, and generally with debilitating pain in the side of my head, forehead, sinuses, and down the neck and inner ear. I don't know the cause of mine but I find I get it when the seasons change or when it's damp and cold outside. Since I cannot figure out the cause of mine (I was tested for every know cause and all were negative), I need to manage the pain with medication just so I can function daily.

Comment from: mission pain free, 55-64 Male (Patient) Published: August 11

I have had trigeminal neuralgia since the age of 59, now at 64 started as an electric shock to the left side of my face. This pain came and went at irregular intervals and pointed to teeth problems. This became more severe with time and I put it down to old root canal filled teeth and had several removed. The pain subsided briefly but kept returning, and I had more teeth removed before a correct diagnosis only to have the pain spasmodically return. All the drugs prescribed seemed not to be effective, and had horrible side effects, after many doctor, dentist, oral surgeon, neurologist, brain scan, twice MRI, and a bucket full of drugs (to date the result). Many thousands of dollars poorer, missing most of my upper teeth, now I own a very bad denture, and guess what, I still have the excruciating mind numbing pain now on a daily basis! Who knows what is next, I'm open to ideas.

Comment from: Elayne S., 75 or over Female (Patient) Published: June 04

I suffered with trigeminal neuralgia (TN) for 15 years more or less. I had 2 root canals before being correctly diagnosed. Surgery was in 2001. I've been pain free since the surgery.

Comment from: Mickey, 65-74 Female (Patient) Published: September 16

Just concluded that lighting pain in my right lower jaw must be trigeminal neuralgia. I was diagnosed with MS in 1976 and can still walk but this electrical pain hit me last nite. Just learning about it helps me cope with this new symptom.

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