Patient Comments: Tremor - Share Your Experience

Question:

Please share your experience with tremors. Submit Your Comment

Comment from: APB, 45-54 Male (Patient) Published: March 10

I had the anguish of tremors for probably around 20 years. Not sure what brought it on, but the anxiety it caused was enormous and only made matters worse. After the doctors tried beta blocker, etc., I had the scans, and saw the specialist. It was called essential tremor. (Why so essential!) So I gave up and tried to live with it, eating/drinking/handling things away from people so they couldn't see (them seeing me shake made me shake even worse). I searched online about shakes/tremors and came about treatments for alcoholics just using vitamins and seeing as none of the doctor's pills worked, I bought a load and have been taking them every day for about 5 years. After about 3 years I noticed my tremors were gone! I don't know when it happened during those 3 years, but it happened. It was such a gradual thing, I didn't notice it happening! They do occur if I do a lot of manual work, but that is getting better too. They are the only pills I take, vitamin B strong and thiamine hydrochloride. Perhaps coincidence, I don't know, but the fact they give these to alcoholics for the same/similar symptoms is surely worth a try.

Comment from: kev, 55-64 Male (Patient) Published: December 09

I started to get a slight tremor in my right arm 12 or 13 years ago. About 5 years ago it got so bad I couldn't use my hand to do anything, and being right handed I had to give up my job as bricklayer. Shortly after that my head started to shake. I was referred to a neurosurgeon who gave me injections in my arm and neck. My head stopped shaking afterwards for 3 or 4 months which is fantastic, but after 3 treatments to my arm there hasn't been any improvement to my arm. He told me it would take time to find the best place to administer the injections to my arm; here's hoping.

Comment from: Gail, 55-64 Female (Patient) Published: November 03

My tremors started getting worse after back surgery. It's embarrassing, and at times l have difficulty walking. I also have jerking in my arms and back, and in my knees. I've been taking primidone. My tremors are worse when I'm tired.

Comment from: robin, 35-44 Female (Patient) Published: September 11

I have been suffering from tremors since 2003. At first I didn't know what they were. My whole body would shake and the only thing I did considering it might be my muscles, is take a bath. But not 1 bath, but 2 or 3 in the same night. I would run very hot water and sit in it about 20m minutes. I would hope that it would stop, but no sooner than I would get out of the bath and lie down, it would start again. I have had many long nights because of these things; especially in public and everyone looks at you like you have Tourette syndrome.

Comment from: Ra, 55-64 Female (Patient) Published: October 07

I started noticing my hands shaking 35 years ago. As time has passed I started to shake more. I have good days, but more bad then good. Recently my legs started to shake. When I bend at the waist I shake more. I can't enjoy a bowl of soup or cereal because of my tremors. I stopped having my nails done because I'm asked why I shake. I lost my job 2 months ago because I could not meet the emergency room patient registration monthly quota. My manager asked me why are you shaking, I told him that I wasn't sure why. He laughed at me and walked away. I worked for a clinic and at the time I was dismissed I asked if my termination was due to my shaking, she said that I should have been offered a position that wasn't as demanding. Of all places I thought a hospital would be understanding. I'm embarrassed and scared. I've been called names. I wish I knew what is causing this. I wish people were more understanding.

Comment from: oluwasola, 35-44 Male (Patient) Published: September 09

My hands are shaking anytime I am making use of them to write or do anything. Even lf l try to use them with force it will be as if l carry heavy metal.

Comment from: Just fix me, 55-64 Female (Patient) Published: September 30

I'm in the fifty age group and my tremors go on all night long, I can't sleep. My tremors involve my shoulders, both legs, and arms. Then it feels tingly numb for a second or so. I do have severe back problems, I am wondering if these episodes could be connected.

Comment from: Sajed, 35-44 Male (Patient) Published: February 26

I am unable to write because of my tremors. When I am walking I feel uneasy. Sometimes I cannot talk normally, sometimes when I'm talking I feel something block my throat. Sometimes my whole body is unnecessarily moving.

Comment from: Thea, 35-44 Female (Patient) Published: January 13

I am 36 years old and battling with shakes and tremors. Some days are worse than others, it gets so bad that I can't drink or eat because my head is shaking so badly. I have not seen a doctor about this yet. I have asthma and because I use my inhaler more than 3 times a day I thought it might be the cause of my shaking so much. I have been diagnosed with depression and I suffer with anxiety.

Comment from: cally, 45-54 Female (Patient) Published: August 09

I was diagnosed five years ago with essential tremors, although I had lived with the tremors for 10 years before that. It started in my right arm, then my legs, and just recently, my head. I have stiffening of my joints and pain in my legs while resting. My doctor wants me to see a bone specialist; he thinks it's my spine. I work full time, and some people at work know, but I have asked them if they see my head or hands shaking to just ignore it. It was embarrassing for me when they made a fuss about it. I am scared of the unknown and not sure how long I will be able to keep working. But at the end of the day, I just pretend it's not there and get on with my life. But I am alone in this battle, and that scares me the most.

Comment from: wiz, 45-54 (Patient) Published: August 22

I just started having tremors, I would say 5 months ago. I thought they were seizure. Well that's what my neurologist said. I went to the emergency room (ER), each time they found nothing. I'm having tremors now more and more. It starts with my hands. If I sit I'm in control. When I start to move it makes it worse. I hate to sit. Ugh! I'm a runner, biker, cross fitter and, whatever else I can add to my work outs. This very strange for me. Well let's see how I can make this work for me.

Comment from: Wonder woman, 65-74 Female (Patient) Published: April 08

I was sick with flu in December. Made a slight recovery. Then one day out of nowhere, my eyes became light sensitive, my vocal cords seemed strained, and on weight bearing, my legs began to shake uncontrollably, even after sitting and/or laying down. I don"t know what to do. I"m in no pain, no fever, and no head pain. The leg tremors occur in both legs and can last for hours.

Comment from: Bad Nurses, 25-34 Male (Patient) Published: March 03

I was prescribed Celexa then I was sick of it. It did not help at all. So I stopped. That is when the tremors started with leg shaking. I thought I felt an earthquake rumble, then it got more alarming; standing, lying down, sitting. I can't do any of these and it is very annoying.

Comment from: Se7thHvn67, 19-24 Female (Caregiver) Published: January 23

My son is 19 years old. He has recently been diagnosed with schizophrenia. His hands, head and legs shake. He has a hard time using a fork sometimes. They put him on medication to help, in case one of the other medications is causing it. This is a young man who just graduated with 'A's last year and ran track. I question whether or not something else could be going on. As his mother I don't think it is nervousness.

Comment from: she, 75 or over Female (Patient) Published: September 05

I have been on propranolol 20 mg twice a day for 5 years. One of my doctors suggested I go on Topamax. I tried that 5 years ago, tremor is in my head and has kept me in hiding from many things, and I am on Xanax.

Comment from: Huey, 65-74 Male (Patient) Published: March 26

I have difficulty writing and using my eating utensils properly from time to time. My hands have a tendency to shake and I am a diabetic who uses insulin.

Comment from: Ned, 65-74 Male (Patient) Published: March 06

I have had Parkinsonism for 14 years. It is not getting better with amantadine tab 100 mg. I can"t see it helping my tremors in both hands. I also have a thing called dyskinesia, where my mouth makes all kinds of movements. Since I"ve been on Sinemet, 2 kinds for 14 years, makes me wonder about the drugs.

Comment from: sony, 19-24 Female (Patient) Published: March 03

My face and fingers shake in all situations while eating, studying and talking with others. Literally I am worried and depressed about my situation.

Comment from: bevalou, 75 or over Female Published: August 23

It was suggested that I was low on magnesium. I have been taking additional supplements. Hopefully it is helping.

Comment from: linda jo, 13-18 Female (Caregiver) Published: August 07

i have a granddaughter that has recently developed a tremor in her hands. according to her mother the doctor. Said she got some wires in her head crossed and that's what causing her hands shake, they prescribed a mild blood pressure pill, which none of this makes any sense to me, she is only 15 but she is under a lot of pressure, she mostly takes care of her 3 younger siblings and a lot of the house work, i think it's nerves.

Comment from: kerry, 45-54 Female Published: July 15

My head shakes without me knowing. People ask me what I am shaking my head for and I don't even know it is shaking.

Comment from: Okeymet, 25-34 Male (Patient) Published: May 10

I just noticed that my entire body trembles, especially when I'm at rest. It's making me distraught. I would like to know if there are solutions to this problem.

Comment from: angela, 45-54 Female (Patient) Published: May 01

I was diagnosed with orthostatic tremor last year. My tremor does not go away when I sit down. It has now spread to my right arm. I have asked to be referred to see a top neurosurgeon, as the doctors here don't seem to know what to do with me. I was basically told by the neuro at the hospital that it is a rare brain disorder with no cure and that he does not know much about it. Lovely! Right now, I take nine gabapentin, eight tramadol, and four paracetamol pills daily to help with the pain. I found that gabapentin takes the edge off the pain really well and helps to keep the burning pain away. Clonazapam just doped me.

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