Patient Comments: Total Knee Replacement - Experience

Question:

Please describe your total knee replacement experience. Submit Your Comment

Comment from: Geepee, 65-74 Male (Patient) Published: November 09

I too was bone on bone with several knee surgeries in the past. I had my first knee replacement on 02/05/2017, then the other knee exactly 4 months later. I followed the protocol and was in good shape before the surgeries and have kept a busy 6 day per week workout schedule since finishing therapy. When I compare now to before the surgeries there is no comparison. I was crippled to almost needing a wheelchair before and now I'm doing much better. There is pain, no doubt. The worst is lack of sleep for me. But it was all worth it. I have very little pain and keep getting better movement from my knees.

Comment from: Frank, 65-74 Male (Patient) Published: November 07

I am 74 years old and had a complete knee replacement 10 month ago and to this day I feel pain and discomfort mainly in the evening and during the night. I also still find it difficult going down stairs compared to going up. I do exercise, I walk and swim without pain but still don't feel any better. My lack of movement with my right knee is painful and quite limited. Reading various comments I did not read any negative ones. Am I the only one with this discomfort not accepting my condition!

Comment from: debbie, 55-64 Female (Patient) Published: November 02

I had total knee replacement on 8/15/17. I tell you this, I was not expecting this kind of pain. It still hurts, swells, and a sharp pain sometimes occurs. I hope this pain will go away. I was told to be active which I was before surgery. I did crossfit and I don't think I will ever do that again; I am sad about that. I walked 3 miles yesterday and paid dearly last night, swelling and hurting all night. For those of us who has had total knee replacement I hurt for you too.

Comment from: Carole, 65-74 Female (Patient) Published: October 31

Last September after reading negative comments about the total knee replacement surgery I considered cancelling it. I decided to go through with it and it was the right thing to do and I'm so glad I went through with it. It was not as bad as I expected and I think one of the reasons was my commitment to physical therapy and at home exercises. Be patient; sleeping through the night was the hardest, but every week was better than the prior one, until it was no longer an issue. I have my life back and can do everything now without pain.

Comment from: Robin, 55-64 Female (Patient) Published: October 26

I am a 62 year old female who has bone on bone with both knees. I had my left knee replacement done on 08/01/17. The first few weeks were tough with a lot of pain and moving slowly. Physiotherapy (PT) was strenuous and painful at first. I am done with PT now so am doing my stretches at home. I just went back to full time work and it has been challenging with swelling and pain in that leg. I have pain pretty much constantly. It is like having a tooth ache, constantly aching, burning and occasional sharp pains. I can walk much better and do steps. I am tired of the pain. Nothing seems to help anymore. I was told it could last up to 4 months or longer. I am fearful that this is going to be my life for a while. Not sure about doing the second knee right now. It is still tough sleeping and I ice a lot yet and pretty much at night. It is a tough recovery for me.

Comment from: JudyJ, 55-64 Female (Patient) Published: October 26

My total knee replacement surgery scheduled for December 6 and after reading this I am scared to death. I am trying to prepare by using incumbent bike and swimming. I am also reading up like crazy. I went from walking with a little pain (ignored for years) to being unable to walk for 3 weeks. Total replacement must now be done. They are doing a special pain procedure 2 days before and then a block and epidural during surgery. I know afterwards I must be diligent but you all have me petrified.

Comment from: raven, 55-64 Female (Patient) Published: October 24

I'm writing this hoping it will help someone that has to make the decision to have a total knee replacement. I was a firefighter/paramedic for 26 years, working out, and staying in shape. The 2 years prior to my retirement, my knees failed me. I had to retire at 54 years old. Not good. I loved my job. I had 5 surgeries on my right knee and 3 on the left including a failed ACL (anterior cruciate ligament) reconstruction. I worked our every day to keep myself in shape but my health went downhill. I used Motrin for 30 years to alleviate the pain. I was always too young for a knee replacement. I finally found a surgeon this year to help me. Both knees are bone on bone from multiple work related injuries, but it was worth it, saving many people. But now it is about me since I retired. I had my left knee replaced July 5th, 2017 and the 2nd one on September 13th. During this time I found out I was in chronic kidney failure level 4. Not good. Confirmed it was from Motrin/Aleve use for so long. Please get a replacement hip or knee as soon as possible. Stay off Motrin. Now, instead of enjoying my well-deserved retirement, I have to have dialysis or beg for a kidney, I'm so sad. The knee replacements should have been done years ago. Be proactive. Don't listen to the Motrin doctors or shots in the knee. Find a proactive surgeon. After saving so many lives, I can't save my own life and I'm really sad. The knee replacements will help but too late.

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Comment from: LJ, 65-74 Male (Patient) Published: October 05

First time on this website. I'm a 65 year old man who had total knee replacement on July 25th, 2017. Yesterday at physical therapy (PT) I got 135 degrees bend and have had 180 degree straight for several weeks. Knee gets pretty sore if I overdo it. PT says if it takes more than two days to recover I'm overdoing it. I've regularly had to take a day to recover after a tough PT session and occasionally I've needed two days. I like to take a tramadol 1 hour before a weekly PT session which helps me push a little more. No pain drugs for home PT and except for weekly PT at the clinic no pain medications at all. Lots of ice! I'm told at 10 weeks I'm ahead of the game.

Comment from: Mike B, 65-74 Male (Patient) Published: October 04

I had both knees replaced in 2015, two months apart. My doctor would not do both at once. My knees went from being the worst parts of my body to the best parts. I was able to play full-on golf in 6 weeks after each surgery. I feel the smartest thing I did to shorten the recovery process was engage a personal trainer for the month preceding surgery to strengthen the muscles and ligaments around the knee as they can take a beating during surgery. Also, remaining disciplined in the post-surgery rehabilitation is crucial. There was work involved but the results are great!

Comment from: MaryMary, 45-54 Female (Patient) Published: September 26

I had my left knee replacement surgery on May 23, 2017. In the first few weeks everything was going well; not sleeping at night though was the hardest for me. It was hard to get comfortable, I would try switching sides, moving pillows around to make me more comfortable and was using ice packs around the clock. I went to my post operation visit, first one or two weeks after surgery. The physician's assistant told me the pain on the left side of my knee would go away eventually, almost 4 months later I still have the pain and numbness in the left side of knee. Every night since the knee surgery I have been in constant pain. Knee pain is radiating around the front of the knee to the back and side. Doctor said this is normal. Now, I have my total right knee replacement surgery coming up on October 2, and I'm still dealing with pain in the left one. I do all my exercises from physical therapy, ice quite often, and am currently taking Tylenol two 500 mg three times a day (does not work). I am unable to take anything else right now because of the surgery I have coming up in two weeks. I lie in bed every night, wondering if I will be able to sleep the whole night, most nights no. As I said in the beginning of this replacement, everything was going fine but this constant pain I feel every night is not going away. I wonder if it will get better at some point.

Comment from: RJ, 45-54 Male (Patient) Published: September 22

I am a 53 year old male, had dual knee replacement on 7/27/17. First 4 to 6 weeks were rough; do the physiotherapy (PT) at home, don't skimp. I strongly encourage getting into shape 4 to 6 months pre surgery, you need a lot more upper body strength getting around than you'd think. Week 6 to 10 seemed like I wasn't getting any better, small weekly improvements. I would compensate by doing extra PT, which only made things worse. I was also getting off the oxycodone during that time (be careful here, manage pain but don't get hooked). Now, I'm at almost 3 months and I get around pretty well, can ride bike, have 120 degrees in both knees after some stretching (right knee is worse for some reason). I am still taking a lot of Advil though. I can't wait to jog again.

Comment from: Helen P, 45-54 Female (Patient) Published: September 19

I am 51 and after 15 years and multiple scopes, treatments, etc., I had a bilateral knee replacement on February 21, 2017. I am now just over 6 months post-surgery. I did inpatient rehabilitation for 10 days due to having 2 knees done at the same time and then when I was discharged home, I went immediately to outpatient physiotherapy (PT) 3 times a week as I feel home health PT isn't as aggressive. My surgeon said I was doing stellar. I had no complications and got to 120 and 0 by 4 months. I was mowing my lawn at 3 months and can climb up and down the ladder and stairs. I am not pain free yet. I take tramadol and ibuprofen 800 mg for pain and am finally sleeping better at night. I live where summers are brutal and walking outside became too much in the heat. This caused a set back and I realized that not being as active has caused more pain. I am now going to the gym, using the elliptical trainers and hoping with increased activity, I will be pain free by 12 months. I am optimistic and hope I am right. Tired of hurting every day.

Comment from: vwgirl1948, 65-74 Female (Patient) Published: September 07

I have had arthritis in my right knee now for about five years. It just became more painful. I was diagnosed with bone on bone and therefore I had total knee replacement. I have been having severe tightness and warmth in my knee after total replacement. It has been 9 weeks since the surgery. I can walk up and down steps. I do house cleaning, cooking and walking at least 2 to 3 blocks. I am wondering why I feel like I have a tight band that won't give. It is a strange feeling and it does hurt, especially a few hours after physiotherapy (PT). I do my exercises at home in between the PT so I can be limber. I go back to the surgeon in a month from now and that will be my 16 week checkup. Using ice helps and also pain patches after icing. I hope that I don't have to get another operation on this knee.

Comment from: Marg, 55-64 Female (Patient) Published: August 29

I have had a total knee replacement four weeks ago. This was post traumatic from a tibial plateau fracture 29 years ago. I was able to start walking within a week of surgery but was on oxycodone for pain. I am now four weeks in and have cut out those medicines. I have a good pain tolerance during the day, and after doing all of my prescribed exercises. I ice three to four times a day with an ice machine. It is at night, that I cannot get comfortable or lie on either side, and cannot sleep. The pain is deep in the joint and calf muscle. I am concerned about taking pain medicines. I wonder if I should consider sleep medicines instead.

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Comment from: Cheryl, 65-74 Female (Patient) Published: August 14

I had my right knee replaced on August 29, 2016. It is now early August 2017 and I still have much swelling and severe pain in the knee and left back. I have had 5 rounds of knee therapy and 2 rounds of back therapy. While the most recent set of therapies was happening, things improved significantly, even though I still needed to use my cane. I could walk some distance (like through a museum) with minimal or no pain. I also have been going for water aerobics 3 times a week, working out on the bike and other machines 3 to 5 times per week and continuing to do the exercises recommended by the last therapist. Since the therapy ended, I have gotten worse. The knee is stiff and very painful and swollen, red and warm to the touch. Of course, I cannot get an appointment with the surgeon until October.

Comment from: bonitakale, 65-74 Female (Patient) Published: August 08

Six months after total knee replacement, my knee felt great! No pain, no limp. A year after, it started to hurt again. Now, at 1.5 years, I'm in a fair amount of pain on standing up and walking. It's made worse by my stomach. The doctor's wish for me is not to use naproxen sodium any more. The knee is apparently a bit loose, but I don't want to go through more surgery without some clear statistics on how likely it is to work. I'm trying to figure out how much exercise does any good, within the limits of what I can make myself do. I should lose weight, but I've done it before, and each time, end up in a couple of years fatter than I was before; not good for the knee either.

Comment from: drew, 65-74 Male (Patient) Published: August 01

I had a total knee replacement in May. The pain on waking after the surgery was horrendous. The pain relief was very inadequate. Nine weeks post-operation my knee is still very stiff. I do my exercises and am hoping I get full mobility back. Would I do it again? I don't think so.

Comment from: B.ellis, 55-64 Female (Patient) Published: July 26

I'm four weeks post operation after total knee replacement on my left knee. The pain is so intense, and knee is so tight and very swollen, I'm walking well coping with exercise. Physiotherapy is due to start next week but the pain seems to be getting worse than better. The general physician says oral morphine is the only place to go medicines wise. I'm not happy but I'm so tired, as I have had no sleep for four weeks now. Regretting surgery at the moment.

Comment from: mtnlady621, 55-64 Female (Patient) Published: July 26

I had my 2nd total knee replacement on my left knee 4 weeks ago. Although this time (had right knee done 3 years ago; took forever to heal and still too tight), the surgery was much easier. I, like someone else said here, hate doing nothing, I get depressed and very anxious if I am not useful or feeling up to par. I am still taking hydrocodone for pain, mainly in the morning or evening before bed. Anytime I rest my legs, it gets so tight and stiff that I feel like I am getting nowhere with my recovery. Other times I am good. My back has started to pain me again severely, due to the limping and using a cane. Back to my chiropractor next week. I just want to feel good! Is that too much to ask!

Comment from: Lefty, 55-64 Male (Patient) Published: July 26

I had total knee replacement of my right knee on 6/12, and was discharged the evening after surgery. I can't say enough good things about my doctor! I have been off the pain medications since day 6 (they were giving me more gut problems than pain relief), off the walker the following week, hiking, exercise bike, up and most everything is going well except going down steps is still a little stiff. I've found that walking up/downhill helps get your quads in shape for steps. More sessions of physiotherapy (PT) and less duration have worked best for me; ice and a percussion massager have been my best friends. I have had some formal PT, but mostly deep tissue massage, and just very motivated to get to enjoy a normal knee; I've lived with a progressively worsening one for over 30 years. One other thing: Make sure the staff gives you a snack with pain/anti-inflammatory drugs. I had constant hiccups along with major heartburn until my wife, not the staff, figured out the problem. A pudding cup was the answer!

Comment from: Jim9999, 65-74 Male (Patient) Published: July 18

I had a left total knee replacement done on May 31, 2017. The first ten days were an absolute nightmare between the swelling, pain and heat peaking around day 8. I wasn't prepared for my leg being essentially paralyzed after the surgery and the hard work needed to rebuild muscle tone. Now some 7 weeks later, I'm walking somewhat ok but with a very tight band and feeling of constriction around the knee. Hopefully this will fade with time, but for now progress day to day isn't noticeable. If I walk too much during the day my knee swells up at night and gets incredibly stiff. The feeling of exhaustion also persists. This was a major assault to the body and I suspect it will take months to regain my strength.

Comment from: Kahuna, 65-74 Male (Patient) Published: July 11

I had total knee replacement back in October of this year. It has gone pretty good. I still have pain at times though. One thing that is really bugging me is that I can't kneel down on that knee at all without shooting pain. Lately, last couple of months I have a water ball of inflammation on the side of my knee. The doctors just play it off as it being normal. I wonder when I will be able to kneel down and do things normally again.

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Comment from: WelpeWL, 55-64 Male (Patient) Published: July 06

I am a 64 year old man. In November of 2015 I had a total replacement of my right knee. I was prescribed 10 mg Oxycontin at 6 hour intervals at first and was able to walk 50 yards the second day. When I left the hospital, to inpatient physiotherapy, I was on Tylenol and tramadol at 4 hour intervals. I completed the 2 weeks of physiotherapy and was released to home and outpatient physiotherapy. In March 2016 I had my left knee total replacement. This time I was released from inpatient physiotherapy after 3 days to home and outpatient physiotherapy. I was able to walk without aids almost immediately, but I have continuing pain and fluid buildup to this day. After 6 weeks I was in significant pain and my doctor took 40 ml of fluid off my left knee. A week and a half ago my doctor took 60 ml of fluid off my right knee and sent it for culturing. I have yet to hear about the results (predicted for 2 to 3 weeks out). The only time I have been pain free was during a period of prescribed prednisone 10 mg 4 times a day decreasing dose. I am trying to find out what is causing the fluid buildup, in both knees.

Comment from: Lucky, 75 or over Male (Patient) Published: July 05

I had total knee replacement of left knee on 5/15/17. I had 9 physiotherapy sessions at home starting on the second week, very little pain. I danced at 4.5 weeks, and played golf at 5.5 weeks. I'm going to have total replacement on my right knee in August, hope it goes as well.

Comment from: Marianne, 65-74 Female (Patient) Published: July 05

I had total knee replacement in 2014. After 5 days in the hospital, I still was not able to bend my knee. It could not touch the floor. I went to outpatient physiotherapy (PT) and they hurt me so bad I screamed while they were manipulating me knee. They also scared me into thinking I had to go back into the hospital and have manipulation under anesthesia. I stopped going completely. I went back to my doctor who told me to just ride the elliptical bike at my gym. That proved to be the best for me. Now on 6/26/17 I had my other knee done at a different hospital by a different younger doctor with a different technique. I was walking 3 hours after surgery. There is stiffness and tightness of course but a wonderful completely successful operation this time. In home physiotherapist said my knee is so good, I most likely won't have to go for outpatient PT.

Comment from: Bella, 55-64 Female (Patient) Published: July 05

I am 6 weeks from total knee replacement and just starting to get lower back pain while walking. My knee is still a little stiff and I am wondering if my back is adjusting to the new knee or if it is from the spinal from surgery. I thought I was doing well till I went grocery shopping and the pain in my back was awful!

Comment from: Mary-Ellen , 65-74 Female (Patient) Published: July 05

I had bilateral knee replacement March, 2017. I was in the surgical hospital for 3 days and transferred to a rehabilitation hospital for 14 days. Physiotherapy (PT) at rehab was twice a day, 6 days a week. Then I was sent home (using a walker) had 2 weeks PT at home. This was followed by one month (3 times a week) at PT Center. It's now 13 weeks post surgery and I am back at work. The pain in the beginning was bad. Not being able to do things for my self was even worse. I was given pain medications and they would wear off in 3 hours and had to be supplemented with Tylenol, which didn't work. Pain patches didn't either. Remember to take your stool softeners as opioids constipate big time. I no longer go to PT, but have joined the gym to continue to build up the quadriceps. I have no pain now, but my knees are still sensitive to blankets and are stiff. I am walking with no assistance (cane or walker). Would I do it again? But of course not!

Comment from: dianeb, 55-64 Female (Patient) Published: July 03

I am going on the 10th week after total knee replacement of the right leg. It still has swelling and I am in extreme pain. I see the doctor next Wednesday. When I saw him a week ago he said my tissue may be rejecting the appliances that he put in. I don't know what can be done next. I had do much pain last night, never went to sleep.

Comment from: Becky, 65-74 Female (Patient) Published: July 03

I had a total knee replacement on 4/5/17. I guess I am not the normal patient, for after 2 weeks in therapy I was walking without a cane or assistance. I have had some issues with swelling and getting the kneecap to stabilize. I am working on that. I am having some weird pain but the nerves are healing. I am having some problems with sleeping at night. The area around the scar is still very tender. I can walk now where I couldn't before so I am happy with that. I am working on my balance as I have walked with a bent leg for so long. My range of flex is at 135 and it will go completely straight if I keep doing the exercises. With the knee being fixed now the hip is giving me problems but my doctor already told me that would need to be replaced in time.

Comment from: Grams6charms , 55-64 Female (Patient) Published: June 13

I had total knee replacement (TKR) back in March 2016. I had the worst pain ever for 5 or 6 months after. Physiotherapy was done, my knee continued to fail and I insisted on MRI to figure out reason for the swelling, horrible pain, and inability to sleep due to pain. I finally got test done only to hear I needed to see a revision specialist to fix my knee. I had to undergo yet another knee surgery to replace a part, add more cushion due to knee instability and had my knee drained of fluid. I ended up with blood clots behind my calf and was put on Coumadin for 3 months. I'm 4 months out from my 2nd surgery and still experiencing brutal pain, swelling and muscle spasms. Given a choice now, I can honestly say I'd never go through this ordeal ever again. I'm so frustrated and angry with these 2 knee surgeries which has left me in worse shape. I also know many people who've had the TKR and have done amazing. I just cannot believe mine went so wrong.

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Comment from: kentuckyguy, 45-54 Male (Patient) Published: June 09

I am a 47 year old male who had the original knee replacement in 2010. Last spring I noticed extreme loosening of my joint. I went to my doctor and he said that I need a revision. I got a 2nd opinion and the other doctor said the same thing. My doctor and I discussed several different options. We came to the conclusion that a thicker poly surface would be all that I need (I can't mention and manufacturer's names or what type of knee that I had). Anyway, the company was supposed to make a special poly surface for me and they ended up making it wrong, and it was never used. Instead the doctor put in a standard poly surface on December 20th, 2016. Eight days later I started to have swelling and fluid buildup in the knee. I went in and the doctor pulled fluid off the knee and had it tested (no infection). The fluid kept coming back and I had one little spot on my incision about the size of a blackberry that would not heal. After about 6 times drawing fluid off the knee (and scratching his head every time saying he didn't know what was going on), the doctor swabbed the area that didn't heal and the results came back as MRSE. He did another surgery the next day to clean it out and put me on Bactrim antibiotics. Ten days later I had to go to the emergency room (ER) where my doctor works. They sent a physician's assistant (PA) in and started drawing fluid off my knee. He started under the knee cap area. After he got done with the knee cap area he backed the needle out a bit and redirected into the center of my joint (syringe still hooked up with fluid from the knee cap area) and went into the center. I kept having all kinds of problems with the fluid buildup and finally asked to be sent to another doctor. The knee doctor I saw within 2 day of my last fluid draw, told me that my entire knee joint was going to have to come out and an antibiotic spacer put in. The knee was taken out and the spacer was put in March 16th. I am now infection free and planning my new knee June 29th. With this explanation of what has taken place, I wonder if the doctor didn't do enough to find out what my problem was. I also think that the PA in the ER transferred the infection to the center of my knee joint by using the same needle and syringe when drawing the fluid out. Thanks for any opinion.

Comment from: Daiseybel, 65-74 Female (Patient) Published: June 02

I had total knee replacement 2 weeks ago. I used a cane for the first week, now nothing. I never took any drugs because I needed to drive although I wish I had. When I had the 2 week checkup yesterday I did ask for something for which the doctor said since I went so far with none I don't need any. I started physiotherapy (PT) 2 days after as I was home the next day. After 1 week I started walking 1/2 mile a day. It takes what seems like forever. Today I upped it to 3/4 mile. I ride a stationary bike 10 minutes in PT and at home 3 minutes 3 times a day. I am in pain and when I sit more than 20 minutes my knee is stiff. I believe that we have to be part of our recovery so yes, I push myself more than needed. It is either that or lie in bed all day. Very unhappy but looking forward.

Comment from: Tinker, 55-64 Male (Patient) Published: May 30

I had a total knee replacement approximately two months ago. I had the normal pain and swelling to be expected post surgery. I progressed fairly rapidly and was walking without aids in a few weeks. I seem to have plateaued over the past few weeks though. I do the recommended exercises most days and have been seeing a physiotherapist once a week although I am finished now. I still have some pain and swelling, still limp and still have some difficulty sleeping. The doctor said to concentrate my exercises on range of motion as I am at 7 degrees extension and a normal expected bending.

Comment from: james, 55-64 Male (Patient) Published: May 12

I had total knee replacement and after six months the knee was extremely swollen. It was checked for infection and there was none. Finally second surgery on knee consisted of cleaning it up and replacing liner and cap. Again after 4 week the knee started swelling again. The doctor has no idea what to do as everything looks fine other than swelling. I cannot put any pressure on leg. It has been a year now, two surgeries and I still cannot walk.

Comment from: Pandabear, 75 or over Female (Patient) Published: May 12

I'm 79 years old and have had total knee replacement (TKR) of both knees. My x-rays indicated I was walking bone on bone, both knees. My left knee on September 8, 2016 was done first. I had a stroke in 2001 which resulted in paralysis on my left side (head to toe) and although I had extensive rehabilitation I am still slightly impaired on the left side. I worked very diligently with pre-operation physiotherapy to prepare myself for the first surgery. It went well, although I was unable to take pain medications due to stage 3 kidney disease. The strongest pain medication I take is Tylenol extra strength, and that only every 6 or 7 hours. I had extensive physiotherapy after the surgery to prepare me for my right knee TKR on March 9, 2017. I'm 9 weeks today, and I'm finally walking outside without the walker, only my cane. No pain medications since week 3. I'm unable to walk without the cane other than in the house. I've used the cane since my stroke. I've been driving since week 5 1/2 and have just been able to walk 1/2 mile in the past 2 days. Both knees still click and make noises, but left not as much anymore. I suspect my healing is slower than normal, probably due to my age and stage 3 kidney disease. However, if you are in pain and your doctor suggests TKR, go for it. You won't be sorry. Good Luck!

Comment from: Rose, 65-74 Female (Patient) Published: May 03

I had total left knee replacement on April 6, 2017. Pain was managed with prescription drug for a week, after that I alternated aspirin and Tylenol. I waited for severe pain; never had any. Incision hurt, was very tender and still is. I had some minor breakthrough bleeding after staples were removed. I used walker for three weeks, then cane. In home physical therapy was great. I do have a red area on the outside of left knee, thought it was a bruise. It hasn't changed much in two weeks. Now it is four weeks post operation in two days; I will do more physical therapy at their office. I have used Venapro for four weeks; not my favorite but works to keep clots from forming. I like the DonJoy ice pack, helped with swelling. All in all I have no negative comments.

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Comment from: ReneeB, 55-64 Female (Patient) Published: May 03

I had total knee replacement on 2/8/17. Surgery was over late evening so didn't walk till next morning, and I was home the following morning after that. First couple of weeks were pretty painful, I was wishing I hadn't had it done. I couldn't get comfortable, couldn't sleep, etc. At end of week 2 I already had 105 degree bend. Week 9 I had 135 degree. Hoping to get back to 140. It still aches some off and on, but not really in the knee, more in thigh and hip. I just need to keep up with my exercises and build strength and muscle back. I never went to physical therapy, just did the exercises I was sent home with and at 5 weeks was allowed to use my exercise bike. At 9 week checkup I was allowed to start my elliptical. I take a tramadol if I'm going to be out and about for several hours, otherwise haven't taken pain pills for several weeks other than Tylenol or Advil. There are days I don't need anything. Glad now I had it done. Already I am able to do more than I could before surgery. I never get out of bed until I've done the stretching and tightening exercises they showed me. I think that sets the tone for the whole day.

Comment from: Linda, 65-74 Female (Patient) Published: May 01

I had a knee replacement in November 2016 and I felt great on Thanksgiving. But then I picked up something heavy and hurt my knee, but the doctor said it was fine. Then I opened a huge canister of flour and was dropping it and without thinking caught with my knee causing more pain. Now almost 6 months later, I have some pain and I still have swelling after sitting. The other thing is that the doctor said that he fixed my bowed leg when he did the replacement and I feel that is the cause of my foot problems because I am not walking the same on my foot. I have a bone spur now under my big toe. Thanks for reading. I would not do it again but the pain is better than before.

Comment from: Kelly, 65-74 Female (Patient) Published: April 26

I had total right knee replacement in July 2016 and was in excruciating pain. I screamed and cried for three days after surgery until the doctors were able to find pain medications that worked. I was in the hospital for four days and went through four months of physical therapy 3 times a week. I swore I would never do it again; I hated my new knee, etc. Well, it has now been 9 months and I have a completely different outlook. I love my knee. I can do anything; it doesn't hurt at all. I have 128 degree range of motion and am thrilled with the outcome. You must diligently do the physical therapy; it is imperative to recovery. I now may have to have the left knee done. I'm emotionally gearing myself up for the pain I know I will have to endure before the end result that I want can be achieved. At least now I know what to expect.

Comment from: Linda, 55-64 Female (Patient) Published: April 26

I had a total right knee replacement on July 15, 2016 which went well. I was in the hospital three days and then went to a rehabilitation facility for 21 days. Then I had home health and did outpatient physical therapy (PT) after that. My right knee has very little pain or stiffness. I had a total left knee replacement on Oct 28, 2016. I had a complication with a blood clot in the calf area. That set me back by about a month. The left knee still gets stiff. I was in the hospital for three days and then rehabilitation for 21 days and home health and then outpatient PT. Keep doing the exercises to help the knees get stronger. I have good range of motion in both knees for bending and good range of motion for having the knees straight. I would recommend a stationary bike as it really helps with the knees feeling good.

Comment from: Joan, 55-64 Female (Patient) Published: April 25

I am a 56 year old female who has had bilateral knee replacements approximately 8 months ago. I have to say I am so happy to have them done at the same time. I finished my physiotherapy after 4 months with a 113 knee bend (which is lower than most people who post). I swim laps for 30 minutes each morning and walk for one hour at a medium rate. I do take one Advil in the morning and one at dinner. I am an overweight person but thrilled with my progress. It was the best decision because I just retired last year and I am enjoying my walks and vacations without the pain I used to face.

Comment from: Thea Oakes, 55-64 Female (Patient) Published: April 20

I had total knee replacement in March 2017. Pain levels have been off the scale at times, despite medication, and the medications do not agree with me. I feel like a zombie and cannot sleep more than an hour at a time, or get comfortable. The physiotherapy is so painful I almost passed out and my knee is swollen and bending difficult. I don't feel good about this at this stage and would have my old knee back; although it was in a very bad way, it let me have some quality of life. People tell me it will get better, I am hopeful, but I read here of many who still have problems as well as successes.

Comment from: Silver lining, 65-74 Male (Patient) Published: April 19

I had both knees replaced early February 2017. I was in hospital rehabilitation for two weeks on crutches. After nearly two weeks at home I was walking without them. I did physiotherapy twice a week for a month plus exercises 3 times a day. I went back to work after 2 months. It is imperative you do these exercises religiously. I still get pain in the knees, aching back, painful hamstrings and general leg muscle pains. I can bend my knees 100 degrees and this is increasing. While this has been the worst ordeal of my life so far, I know it will all be worth it.

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Comment from: Suziestefano, 45-54 Female (Patient) Published: April 10

I had my left total knee replacement on November 3, 2015. It was the worst thing I have been through and I wish never to go through it again. I couldn't bend my knee after it. I had 2 months of therapy and only an 80 bend. I had a manipulation on January 6, 2016. That was awful as well. I woke up in such pain I was screaming for an hour until the anesthesiologist came back and gave me a nerve block. To this day I limp, it hurts to walk and I have a hard knot on my outer knee. The physician's assistant said it was just a fat pocket they moved. I just faxed my information to a new group of doctors hoping they accept me as a patient. I cry every night. I hate the decision I made. Please be sure you have no other options. I was told I would be so happy with my new knee. Research your surgeon.

Comment from: Chic Vegan, 65-74 Female (Patient) Published: April 04

I had total knee replacement surgery just over 5 weeks ago. I had had osteoarthritis for years but had torn the medial meniscus twice in the last year. I must admit I didn't expect the excruciating pain I had for 2 days after surgery but, by the time I went home, the pain wasn't at all bad, just the stiffness of the muscles. I had daily home physiotherapy and by 2 weeks post-surgery I was walking without crutches indoors. I've had hardly any pain since then, just a bit of stiffness at times if I overdo it. I still don't know whether I would have had the surgery had I known what it was like. I expect I'll have to wait a few months to see if any of the old pains return! At least I'm getting a good night's sleep now.

Comment from: Cook1947, 65-74 Female (Patient) Published: March 29

I had total knee replacement on February 13, 2017. First few days I don't remember because of an overdose of Dilaudid knocked me out. Obviously I had pain, but once the staples were removed, I felt much better. I used a walker for about 3 days and then did not need it. I went up and down the stairs, (baby type steps) right away and the physical therapy was easy and helped quite a bit. I am almost at full flexibility and still have pain where the incision is, but I expect that. I had such terrible pain before the surgery, I could not walk anymore, so anything was better. Stepped on my knee next day and now walk with no limp or hesitation. It will take time for the tissue to heal, but it was a great decision. There is still some snapping when I straighten out my knee, mostly from sitting, but it is also getting better. I am so sorry for those who are still in pain. Check it out because it shouldn't be that way.

Comment from: alyce, 65-74 Female (Patient) Published: March 22

I had a total left knee replacement on 01/17/17 and I am now 9 weeks post-surgery. This is my 3rd week at outpatient physiotherapy (had in-home PT) and although they say I am doing well. I know I am behind where most others are. I have a problem with my ankle and we knew it would slow my recovery. I used oxycodone religiously for the first 4 weeks and then slowly weaned off. I have not taken anything except an occasional Tylenol in these last two weeks. Sometimes at night I feel like I could use something to sleep. I am lucky in the fact that I don't work so had no deadline to meet. I am sure, if I were working, I would just now be thinking about going back. My problem now is range of motion and even though they can get me to 120 it is not like that on a regular basis. I am also having a hard time straightening my knee since I slept with a pillow under it for 4 years. I have been working hard doing my exercises and am beginning to see it payoff a bit although the exercises are painful. I would not have my other knee done. My advice to anyone considering knee replacement is to meet ahead of time with a physical therapist so you can understand what will lie ahead. I think I was unrealistic. Good luck.

Comment from: Mom, 75 or over Female (Patient) Published: March 22

I am 78 and had a total right knee replacement on May 17, 2016. I am not overweight and was in good physical condition. I did just wonderful for 6 weeks to 2 months then pain started. I did rehabilitation after surgery, then 2 rounds of physiotherapy, as well as home exercises. My hamstring is so tight I cannot straighten my leg. I slept in a brace, trying to stretch the hamstring, for several months. The pain and stiffness is worse than before I had the replacement and just seems to be getting worse. If I walk a block I am in excruciating pain. I wish I had never had this replacement. By the way, my doctor seems to think if he can't see a problem. On an x-ray then there's no problem.

Comment from: PETER H, 65-74 Male (Patient) Published: March 21

I had a total knee replacement on 14/12/2016. Usual severe pain first 2 weeks, then it greatly reduced as swelling decreased. I found tramadol best at night, especially 150 mg slow release. Now I am walking freely, cycling on exercise bike as I now have approximately 100 degrees range of motion from 90 pre-operation. I did specific physiotherapy for 4 months prior and hard work since has paid off. I iced 5 or 6 times per day first 4 weeks.

Comment from: Bob, 65-74 Male (Patient) Published: March 15

I am 8 weeks into my recovery of total knee replacement. It looks great. The doctor did a great job. I have 135 range of motion. It aches at night from about 3 am onward; hard to sleep. I blew off physiotherapy (PT) at 3 weeks because we were just re-injuring my knee every other day. My recovery accelerated after I stopped PT. I am back to my normal routine with caution. Getting to 95 percent recovery is going to take 6 months or so I think. I was icing every night for 1 hour before bed the first 6 weeks. Drink high protein drinks with vitamins until you are recovered. Moderate exercise is very good of course.

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Comment from: fpvdb64, 45-54 Female (Patient) Published: March 08

I am a 52 year old female. I had total knee replacement on my right knee 13 weeks ago. I am having hot flushes and then cold flushes. I am not sure what is causing this, maybe the Tramazac 50 mg. I am also experiencing lower back pain on the right side.

Comment from: Cindy A, 45-54 Female (Patient) Published: February 28

I had my left knee total replacement on October 21, 2016. I had had 3 other surgeries for torn ACL (anterior cruciate ligament) and meniscus over the years. I am 53 years old. Surgery went well, pain was high, and the only thing that finally worked was Dilaudid with Flexeril. I am now at my 4 months mark. I am back to work, where I sit too much. They released me from physical therapy (PT) to do exercises on my own. I hate to admit but I have been horrible about doing exercises. I do ride a stationary bike and bought a mini one that fits under my desk. But I am experiencing so much more pain now, standing up or sitting down and walking. There is some clicking that I feel when I move my leg. I was told some is normal. I wonder if I am getting more pain because of not exercising enough. My flexibility got to about 115 when last pushed at PT.

Comment from: mssox, 65-74 Female (Patient) Published: February 16

I had total knee replacement on my right knee on January 5th, so far so good. It is still painful but bearable; Norco did wonders but now I have to cut back so much it does not help. I need my left knee done and I'm curious as to why pain in left seems so much worse.

Comment from: Turtle, 55-64 Male (Caregiver) Published: February 15

My husband had total knee replacement (TKR) 24/10/17. His flexion is at 121 degrees now. He was having good days but nights were restless. I told his physiotherapist (PT) when I had an appointment and my hubby had never told him that his knee is like an alarm clock that wakes him at 3:30 am every night. The PT 'flossed' his leg at his next visit and gave him an exercise to do on his own. This has helped tremendously and he is able to rest well and is back sharing our bed after months of sleeping in the spare room so he wouldn't disturb me. Google nerve flossing, it just might be the answer to some of you having sleeping issues.

Comment from: Joei, 55-64 Female (Patient) Published: February 14

I had left total knee replacement (TKR) in August 2017. After 21 days of rehabilitation my range of motion (ROM) was 65. I had manipulation done in October, ROM after have physiotherapy 3 times a week, barely got to 75. Severe scar tissue, and I opted not to have another manipulation after the first did not appear to work. Needless to say I have stiffness and am unable to totally bend the knee. I am in need of having my right knee done at this point. Now I can limp and drive but if the same thing happens with the right knee, I am totally incapacitated.

Comment from: katy, 65-74 Female (Patient) Published: February 07

I had total knee replacement surgery on October 6th on my left knee. My physiotherapist (PT) said I did well at therapy. I had excellent range of movement and could easily walk. I did a month of pool exercise and do my exercises still. After 4 months I cannot walk without pain and stiffness. I wish I had never had this done, it has changed my life. I used to be active and fun loving. I hope this passes and I can get my life back.

Comment from: ginmansan, 65-74 Female (Patient) Published: February 07

I had my total knee replacement (TKR) on 1/10/2017, I'm 67 years old and it was the best decision I have ever made! I suffered with arthritis in my right knee for years before making this decision. The surgery went off with no problems and I was up and walking 3 hours after surgery! There is some pain with physical therapy but nothing that I can't tolerate. I am only taking pain medication on the days that I go to physical therapy; but, I do my exercises every day. My surgeon and the hospital staff were amazing and I feel sure that has had a lot to do with my success. The physiotherapist says that I am a poster child for TKR! Good luck to all of you make this decision. It is not one to be entered into lightly.

Comment from: karen, 55-64 Female (Patient) Published: February 07

I had total knee replacement on 11/14/16. Post-operative pain and spasm were horrible. Physical therapy (PT) had me up 1st night and I had extensive PT before being sent home next day. I started our patient PT on day 4 post operation. Pain was not much of a problem; stiffness and the feeling of bands around my knees on the inside were an issue. I went back to work January 5th, I'm a nurse. I am still walking stiff, have leg spasms at night and left foot drop. Am I ever going to walk normal again! Very discouraged and will never have my right knee done.

Comment from: lees1953, 55-64 Female (Patient) Published: January 31

I had a total left knee replacement 12/12/16; and was told by the doctor the knee was one of the worst he had ever seen and he had to do a lot of filing away of the arthritis on the bone to bone side and I had a bone spur on the outer side of the knee. This has been the worst thing I have ever been through and would never do the right knee. I was extremely allergic to the pain medications given at the hospital; Percocet and can't remember what all they tried. I cried at physiotherapy (PT) so much they have sent me to a pain clinic. I am on methadone and know the challenges with that but it is the only thing that has touched the pain and it is not gone; just subdued. I go back to pain clinic this week to see if they will accept me as a patient; there are a lot of physical barriers that must be confirmed by your general physician before they will accept you as a client. I am hoping I am healthy enough to go through this regime; I don't know what I will do if not. The pain medication the surgeon gave was worthless. I am doing well at PT with 110 degree bend and can lift 45 lb with the bad leg. But the pain; I have not slept the night through in so long I cannot remember. The surgeon seems to care less but I find the pain doctor to be very empathetic. I have been in pure agony and feel sorry for my husband having to listen to it all. They said the possibility was I didn't have enough bone left for the prosthesis to bind to; kind of late to be finding this out! I am surprised they could not know this beforehand. Hate to scare people but this has been the worst part of my life and I have been through cancer; death of a spouse, lots of issues but this story will top them all. Thank you.

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Comment from: Pat, 55-64 Female (Patient) Published: January 31

I am a 60 year old female who has suffered with arthritis for many years. I have had arthroscopy in both knees but still had bone on bone pain. Eventually I had full knee replacement surgery on right knee on 31st December 2016. If I am really honest, I am not quite sure what to make of it. I am 4 weeks in now, doing exercises, going to physiotherapist, getting around the house on one crutch but use two if go out. The exercises are painful and I get very, very tired when doing any household chores, even having a shower leaves me feeling shattered. Not sleeping very well either, very restless. On reading the booklet the hospital gave me this is all normal but I feel that I should be doing more. Hopefully all will get much better with time, fingers crossed!

Comment from: Gail, 55-64 Female (Patient) Published: January 31

I had my second total knee replacement on my right knee on 1/10/17. This has been life changing. Before having the right knee done, it was badly contracted (bent) and the pain in my knee, leg and foot was unbearable. Immediately after the surgery, as soon as I was able to stand up, I noticed the difference right away. I had my left knee replaced on 10/27/15. That surgery was very extensive; the tissues were damaged and the bone was soft. So I had to keep my leg extended with minimal weight bearing for almost 3 weeks. Then I began outpatient therapy. It took quite a while for the therapist to get the knee to bend. I can only get the left one to 90 or 95 degrees. However, with my right one, the in-home therapist has already gotten my knee to 95 degrees flexion. The key to a successful surgery is to find a surgeon who does a number of replacement surgeries per day. A teaching hospital is a good choice as they do lots of replacement surgeries and have the experience and the protocols in place to handle any problems or 'non-text book' surgeries that occur.

Comment from: moe, 55-64 Male (Patient) Published: January 27

Wow, what a change! I had my total knee replacement done 1/24/17. I was walking on it that night. There was some pain but not bad. The next day I was discharged home. I am doing the exercises I was told to do. I got to my therapy on day 3 and was told it would be my worst day. My pain level was a 3. I am very happy.

Comment from: Docule, 55-64 Female (Patient) Published: January 26

My total knee replacement surgery was in the end of November 2016. I was very fortunate in that my surgery and recovery has gone great. My best advice is to stay ahead of the pain, and push yourself to do the physical therapy; and ice your knee regularly. I was able to go back to work at 5 weeks. Although I have a stool to prop my leg on under my desk, I have to get up every 1 to 1 1/2 hours to walk around and I often ice my knee during the work day. At 8 weeks I am getting a better handle on pain; although when I ramp up my activity level I can definitely tell! I have started doing the stairs at work to try to improve my muscle strength and flexibility in my knee. I'm not setting any speed records, but it is helping. Good Luck everyone!

Comment from: jeff59, 55-64 Male (Patient) Published: January 26

I am 57 years old. I had left knee total knee replacement done on 1/18/2017. I had multiple surgeries prior including a high tibial osteotomy. I am 6 ft 1 inch and 220 lb. I was active before surgery, but had bone on bone with pain. Following surgery, I was up on it same day walking with a walker. Pain immediately after surgery was limited. After nerve blocks wore off at approximately 30 hours post-surgery I experienced about 12 hours of 8/10 pain. I took only Toradol IV at hospital. I was released 24 hours after surgery. I took 2 oxycodone every four hours at home for about 24 hours, then none. I went to physical therapy day 5 post operation. I had almost full extension; 98 degrees of flexion. I am walking with walker still on day 7, but am able to get around the house without it. I went back for a day of work on day 6, back to work again on day 7. Pain is still present and ranges in severity, but never overwhelming. Sometimes pain will seem to spike around the joint, and then dissipate fairly rapidly. I haven't had any missteps yet, couple of times it feels as if I am hyper-extending but no problems as of now. Will update later.

Comment from: Ruth, 65-74 Female (Patient) Published: January 23

I had bilateral knee replacements on January 26th, 2016. My surgery went well, and my physiotherapy went well. My knees are functional, however I have not spent one day without pain since surgery. I've had a burning pain up and down both legs, many sleepless nights, and I just got off Percocet in October. Both knees feel like blocks of ice most of the time. I've tried gabapentin, Lyrica, nerve blocks twice, Cymbalta, and acupuncture. I am almost at my wits end!

Comment from: DonC, 45-54 Male (Patient) Published: January 19

I had total right knee replacement on August 9th, 2016. After waking up I had severe pain in the back right side of my knee radiating up to my lower back and buttocks. The pain was so severe pain medication was not cutting it very much. I used narcotic drugs at maximum dose and gabapentin nerve drugs to no avail. After two weeks the pain did subside some. I am still in severe pain in the same location, right back of my leg and it is very painful to straighten my leg. I thought it was back related so saw a back surgeon and had an MRI done. I was told my back is not severe enough and surgery would likely not help my knee pain. I am hoping it will subside and get better, right now I am worse off than I was prior to my knee replacement surgery. Physical therapy did not help this issue. Not sure what to do now.

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Comment from: Barb2037, 55-64 Female (Patient) Published: January 19

Never again. I am 5 weeks out from total knee replacement and still have a lot of pain for which I take OxyContin. Doctor wants me to start weaning off but it is the only pain medication that touches the pain. Thankfully I have an excellent physiotherapist. I see the doctor next week and am hopeful he will refill my pain medications. I haven't slept in bed since surgery as the pain and stiffness wakes me. I haven't slept for more than 3 hours a night. Hope this gets better soon!

Comment from: Paincarema, 45-54 Female (Patient) Published: January 11

My total knee replacement was done on 7/15/16. I went for 6 weeks physiotherapy and returned to my job as a medical assistant after 3 weeks. Knee has been swollen since day one. I get pain in inner thigh still. I will not be doing the other knee any time soon.

Comment from: The Rev, 75 or over Male (Patient) Published: January 03

I had total knee replacement early August and there was a lot of swelling, some of which I still have. I still get some pain but not bad enough to take anything for it. I have full motion range but some stiffness, especially first thing in the morning. Before surgery, I had a lot of severe pain and some swelling. My physical therapists have been great and that is the key.

Comment from: MRB, 65-74 Male (Patient) Published: December 21

I had my first total knee replacement on 10/19/15 and the second 11/11/16. I am very satisfied with the results. A year later I have some stiffness and soreness in knee 1 but no joint pain, which is great. I'm 4 weeks out from knee 2 and feel way ahead of last year's progress. I am in outpatient therapy for the next month or so. Again, I have stiffness and muscle soreness but no joint pain. I will be glad when I can put my sock on.

Comment from: shelly58, 55-64 Female (Patient) Published: December 20

I had total knee replacement on 7/26/2016. I have regretted it every day since. The pain is unbearable most of the time. I have fallen twice since surgery. Now I am back in physical therapy. I am not able to work, and I am worried as to what I will do next. Unless I can perform all the duties of my job I cannot work. It has led me to file for disability. I am a 58 year old female. Depression is starting to get the best of me.

Comment from: madisonws, 55-64 Female (Patient) Published: December 20

I had total knee replacement on my right knee on October 31, 2016. So far all is going well, I am almost done with physiotherapy and am progressing like they want me to at the doctor's. The knee pain is gone, but the muscles are still sore. But, much better than before surgery.

Comment from: I've had it, 55-64 Female (Patient) Published: December 13

I had my total knee replacement (TKR) on April 19, 2016. For the past two months I have been paying for a brace at USD 300 a pop that it supposed to straighten out my leg. As soon as my leg got straighter, I started having pain in the bend of my knee in the back and in the muscle around the knee towards the inside of the knee. Sometimes it hurts so badly, that I can't weight bear on my TKR leg. My leg goes out from under me from time to time, usually if it's painful to step down on it. I've had it with this knee and wish I had kept the old knee with its pain. I had no idea that it would be this bad for this long. Eight months! I should be walking good and having few problems. Instead, I'm limping on occasion and have to be very picky about shoes or boots because if the sole or heel isn't rubber, I pay for it the next day in pain. Heavy sigh.

Comment from: Peg, 55-64 Female (Patient) Published: December 13

I'm 12 weeks post total knee replacement. I feel great. I still have annoying sharp pin-like pains now and then. I'm just so grateful that I don't have the bone on bone pain anymore. I can sleep on my side now. I still have trouble getting in and out of my truck. I have to use a stool to get in and out. Sometimes I still use my cane outside. I just feel safer. I use my cycle every day. I'm getting better every week.

Comment from: Mike, 55-64 Male (Patient) Published: December 08

It's been a year and a half since my total knee replacement surgery. The pain is sometimes more intense than it was before surgery. I am in pain all day long (except when asleep), sometimes the knee will stiffen and hurt so bad I don't want to bend it at all. I should have kept my old knee and waited for new breakthroughs in knee surgery. Too late for that now.

Comment from: KYwildcat2u, 45-54 Female (Patient) Published: December 08

I had a total knee replacement almost a month ago, instead of getting better it gets worse every day to the point that now I cannot put any weight on it or it gives out. The pain is probably the worst pain I have ever experienced which is saying a lot considering I've had 4 back surgeries and have spinal fusions on L1, L2, L3 and L4. My doctor keeps wanting to blame my back issues for all the trouble I am having. At this point I seriously don't know what to do. I am obviously still on my walker because without it I would fall flat on my face. I understand that my leg will swell after therapy but I've sent my doctor pics of how bad it is, it swells so bad that it looks like I'm trying to grow a basketball in my leg, he just says I am unlucky and hopefully it will improve in time. Seriously, I wish I had never had this surgery and I wish I could go back and never have it, but that's not possible so I guess what I'm trying to say is I am definitely done for!

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Comment from: Mark, 55-64 Male (Patient) Published: December 05

I had a total knee replacement on 2/29/16. I had a lot of pain and swelling after I got out of the hospital, but that was expected. It's been 10 months now and I still have a lot of pain and swelling. My doctor does not seem to think it is a big thing but it sometimes interferes with my ability to do my job. I ice daily, twice if I can, but it does no good. If I sit for more than 5 minutes my knee has trouble moving when I need to walk but quickly limbers up with about 30 steps. The long term pain and swelling has me concerned since it has been almost a year since my surgery.

Comment from: Dale, 55-64 Male (Patient) Published: November 15

I had a total knee replacement on 9/16/16, it wasn't what I expected as far as how intensive it was but was determined to power through it. I have full range of motion, but have pain below my joint, shin, and ankle, and swelling. My main problem is standing (like cooking or doing dishes) the swelling happens fast and hurts. I am pretty active so I try to walk it off, but once it swells there is not an effective way to reverse it. I also have pain (lots) going down stairs but not up. I am hoping this is normal because my surgeon says I am the poster child for knee replacement. I'm better off now but wow, didn't think it would take this long to get back to at least 50 percent of normal. Maybe my expectations were out of line. I am going to power through it!

Comment from: Jersey, 65-74 Female (Patient) Published: November 07

Two months post total knee replacement I am doing great. But past 2 weeks I have severe pain in knee, and walking is most painful. The doctor x-rayed and checked all out, and said I seemed fine. He thought it might be inflammation, so I am on prednisone. Now 1 full day, and feeling so much better. So thankful to have some relief.

Comment from: Randy, 65-74 Male (Patient) Published: October 27

I had a bilateral (both) total knee replacement on July 28th. I was out of the hospital on the 3rd day and sent to a rehabilitation hospital where I had physiotherapy (PT) twice a day. After about a week I was sent home. I had home PT for 1 1/2 weeks and now visiting local PT place three times a week. Most of the pain was gone in a few weeks. I came off opioids in the second week. No stiches, surgeon glued the incision, and it has healed very quickly. All in all the surgical process was great, but my recovery is now 3 months, and I still have little to no balance and need a cane, except in the house. The muscles in the legs are weak and minimal walking or standing produces pain. I'm glad I did it, but the process is much longer than I anticipated.

Comment from: Kirstykht, 55-64 (Patient) Published: October 27

I had my total knee replacement on 10/10/2016 so am just past two weeks. I had major pain in the hospital and difficulties sleeping as most of us do. I got out of hospital on day 4 which is the first day I did any physiotherapy. I was in constant pain, but was put on something like a stand trolley that you sit back on two cheek things that act like a gate. This was because I had major problems with pain and had tests like x-ray, ECG, blood, and ultrasound. These tests took a while to coordinate but. They came back all ok, so was able to see physiotherapy. I am not able to drive yet for a while. Just wondered if others were feeling same as me. I feel shattered, worn out, and lethargic. I am not sleeping soundly so that could be the reason why I am so tired. Just generally feel awful. I can walk without shoes but I don't think I would manage outside house without walking sticks as I don't feel safe. I wonder if anyone else feels like me, I feel that I'm in for a further period of problems.

Comment from: patrici, 65-74 Female (Patient) Published: October 25

My second total knee replacement which was 10 years after my first was so much less painful. I am so grateful the surgery has been improved from my 1st in 2006! I am 3 months out and except for some burning and pain on the left side of my knee I am feeling good. Last time it took exactly one year before the knee stopped hurting. I hope this time will be shorter time but will be grateful even if it is a year again. Thankful every day I was able to afford the surgery as I know some can't.

Comment from: Linda, 65-74 Female (Caregiver) Published: October 24

My sister who is 65 had a knee replacement 10 months ago. She had very little pain during her recovery. At 10 months her knee started swelling (to twice its size) and she had lots of pain. We visited the orthopedist who did the total knee replacement and he said there was nothing he could do. I have called many, many orthopedists and they will not see her because they did not do the surgery. As the time has passed, the pain and swelling has increased. She cannot walk when these episodes occur. A primary care physician sent us to have the knee drained and an ultrasound. The ultrasound showed lots of fluid but we will have to wait for the lab results. There was lots of blood and fluid (which was clear). I don't know what to do since no one will see us.

Comment from: Kayota, 65-74 Female (Patient) Published: October 18

I had a total left knee replacement on July 26, 2016. I fell that my pain is worse now than before the surgery. The knee pain is going but I have severe pain down the front of my leg. When I get up from sitting or riding in car I cannot move, it takes me a few minutes for me to be able to start walking, the pain down the front of my leg is so bad that it takes me a while before I can start to begin to walk. Standing is difficult too because of the pain after I stand for a little bit. I am just now starting to sleep at least 3 to 4 hours a night. When I move my foot in the up position there is pain up the front of my leg. If I am doing any physical work or I know that I am going shopping, I take 2 hydrocodone pills to be able to make it for a couple hours. It has been 11 weeks since my surgery. I wish I could turn back time and never had this surgery done.

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Comment from: Old Paramedic, 55-64 Male (Patient) Published: October 07

I had total right knee replacement on July 18th, 2016. I was off the pain medications at 3 weeks and back to work at 4 weeks. I did 6 weeks of physiotherapy. Now at 2 1/2 months, I have pain occasionally in the back of the knee but nothing like before the surgery. I'm scheduled for the left knee in December and am looking forward to it. While I was in the hospital, everyone told me to keep my pain level below 4/10. When I did physiotherapy, I told them that I would not accept pain above 4/10 and the physiotherapy ended up being productive and very tolerable. Don't let them put you through agony.

Comment from: Dennis, 45-54 Male (Patient) Published: October 04

I had my total knee replacement on the 9th July, 2016. After the 1st 6 weeks, the pain started to settle down, then I went to see my surgeon 8 weeks post operation. Since then, my knee has so much fluid and the swelling has got worse. I continue to ice it and keep my leg elevated when I get back from my office job. I am taking anti-inflammatory medication but it's not helping. I wonder if I should go back to the surgeon to see about draining the knee to remove the fluid.

Comment from: Ashmore, 55-64 Male (Patient) Published: October 04

I had bilateral total knee replacement 08/29/2016. It is less than 5 weeks now. I mowed my yard yesterday for the first time. I am heading back to work on the 5 week anniversary. Other than sleeping and the unfamiliar sensation (no pain) around my knees, I feel fine. The first 4 weeks were by no means easy, but certainly, not nearly as difficult as I had imagined. I had a great team at the hospital. I would not hesitate to have this done, in hindsight.

Comment from: dml, 55-64 Female (Patient) Published: September 27

I had my total knee replacement end of July and I went through the same excruciating pain with in home and outpatient physiotherapy. I finally told them they need to go slower and/or easier because I couldn't take the pain. I was crying also and it only hurt me to get sleep even though I was only getting 1 1/2 hours at a time. They did slow it down and told me it would take longer. I am at my 8 week mark and am at my 2nd week full time at work. For the most part it's more pressure not pain. Good luck and I do/did have the same pain.

Comment from: dekohl, 55-64 Female (Patient) Published: September 15

I just had a total knee replacement on 9/6/16. The one thing that I just do not understand is that it is a fact my knee is swollen and I still have the stitches in, but the therapist continues to force my knee to bend to the point of excruciating pain. The pressure is immense. I understand that they need to get it moving but to the point of me screaming makes me want to just quit.

Comment from: dee, 55-64 Female (Patient) Published: September 07

I had total knee replacement on February 1st, 2016. I had in-home therapy for 3 weeks and outpatient therapy for 2 1/2 months. Flexion was 125. I still have a lot of pain and swelling. It just doesn't feel right. When I roll over at night in bed I can feel something move back and forth. Doctor took x-rays and said all is fine. My left knee is bad also. I am not sure if I will have the surgery on it. I just am not convinced that it was worth all I had to go through.

Comment from: old firefighter, 55-64 Male (Patient) Published: September 07

I had a total knee replacement almost 7 weeks ago. I still get pain in the joint and minor swelling above my knee and lower leg. Icing certainly helps as do pain killers. I take codeine, paracetamol and ibuprofen but less than the maximum daily dose. I sleep well now and I am gaining more flexibility in the knee daily. The pain was intense for the first 3/4 weeks and made sleeping difficult, however walking around to ease the stiffness helped as did a hot water bottle. I hope my experience promotes optimism for people newly operated on or waiting for surgery.

Comment from: Rusti, 65-74 Female (Patient) Published: September 07

I had a total right knee replacement on 7-26, 6 weeks tomorrow. The 'blow torch' feeling is gone and today was the first day I made it all the way through with no pain pills. After the arthritis, this is so much better. Progress is steady and positive and my 6-week post-operative checkup is Friday, at which time it appears I can even ditch the cane. My biggest challenge right now seems to be exhaustion. I am up at 8, busy until noon and then I feel like I just want to go to bed for at least 24 hours. No energy. I'm working on it, though. Learning that even though my mind wants to run a marathon the body isn't up to it. But every day is stronger and I have every reason to be positive and hopeful. I was in agony before this and have no regrets. At this point, I feel this was definitely the right thing for me, but the choice may not be for everyone.

Comment from: Shanti, 55-64 Female (Caregiver) Published: September 06

My grandma just underwent total knee replacement surgery. Now she can walk very easily without any support. Her age is 63 but she can walk like 33.

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Comment from: Exgolfer, 65-74 Female (Patient) Published: September 06

I had my right knee replacement on June 1st, 2016 after 7 years of pain due to an accident. Although I can walk without a stick the pain is still there. The swelling has not gone down much and I can't get my shoes on. Getting in and out of the car is quite difficult but I can now drive. The worse thing is the pain like red hot needles which occur nearly every day and the stiffness every morning. When doing the exercises my feet and ankles are as painful as my knee but I walk much more normally than I did before. I am hoping things will be better given time.

Comment from: Rose, 75 or over Female (Patient) Published: September 06

I had a total knee replacement 30th January, 7 months ago I still have lots of pain and soreness, in particular, not able to walk very far. I sometimes wonder if it has got displaced but was told I would know about it if I had!

Comment from: vmj, 55-64 Female (Patient) Published: September 06

I had total right knee replacement (TKR) on right knee September 29, 2015. I continue to have pain and swelling. I did get the non-nickel implant. The pain keeps me from climbing the stairs one foot at a time. I also have so much pain when I stand that I hate getting up and down. I went to a new surgeon a month ago and he injected the most painful area with Kenalog. It helped a lot at first. Now I think, 4 weeks later, that it has worn off. I cannot continue to get steroids every 4 weeks.

Comment from: RackyNH, 55-64 Male (Patient) Published: September 06

I had a total right knee replacement back in in 2001, when knee replacements were very new. I was told then it would last no more than 10 years. The pain was intense at first following operation, but by using that got so much better over time. I was able to climb stairs again, dance, mild hiking/letter boxing, fishing, rock climbing. It has served me well for 15 years, but sadly I need to have it replaced again. The lower tibial section shows lucency at the metal-bone interface measuring between 2 and 3 mm in thickness; meaning it is loose and needs to be fixed, but because it is so old, doctors think it best to just replace whole knee joint again.

Comment from: vinfan, 65-74 (Patient) Published: August 31

I had both knees replaced within 6 weeks of each other, in December 2010 and February 2011. This was a highly regarded joint replacement clinic, drawing patients from several states. My knees have retained a degree of stiffness ever since and for the past month I've had incredible edema and pain in my right knee, in particular. I am active, going to the gym 7 days a week, walking, swimming, using the elliptical, gentle yoga, etc. I am not overweight. The surgeon who did my knees has left the clinic, but one of the surgeons in residence x-rayed the knees, manipulated them to see if there was excessive lateral movement, etc., and said they looked just fine. A blood test for infection showed nothing. There appear to be no answers. If I could turn back the clock, I would never have had the surgeries.

Comment from: Frustrated, 65-74 Female (Patient) Published: August 23

I had a total knee replacement on 1/22/16. Things were going good at first, but I started having more pain as months went by. The doctor said everything looked good and he didn't understand why I had pain. He referred me to the pain clinic and said they will try to figure out what is causing the pain. I've been told it would take up to a year to heal, however I am in more pain each month. I had my other knee done 4 years ago by another doctor and had great results. I just don't want to live with chronic pain. I am losing hope. Just have to keep trying, and not give up.

Comment from: Michelle, 45-54 Female (Patient) Published: August 23

I had total knee replacement (TKR) on my right knee on 2/12/16. My recovery progressed quickly. After about 4 weeks I had very little pain and was rarely using a cane. Exactly 6 weeks after the TKR (5/25/16), I had a second surgery because of a severe infection. I had noticed the thread from two interior sutures poking through the incision. I spoke with my doctor and he said it was nothing to worry about. Well, the places the thread were poking through was where the infection was and one area actually burst when I bent my knee as I sat down. I had a third surgery 4 weeks later (5/3/16) because of an open wound on the incision line that would not stop draining. After this surgery, I was told that I had a torn quadriceps muscle. How can I tear a muscle and not know it! I had to wear an immobilizer for 4 weeks. I have had pain in my knee since the last surgery. I even went through a second course of physical therapy and got little relief. Some nights, I just want to cry because it hurts so much. The pain is worse when going from sitting to standing and in the evening. I've used ice, OTC and prescription pain medicines, even a TENS unit. All only provide very temporary relief. My doctor refuses to take any kind of responsibility for the infection or the 'torn' muscle.

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