Patient Comments: Sjögren's Syndrome - Symptoms and Signs

What symptoms and signs did you experience with Sjögren's syndrome?

Comment from: Anxious, 45-54 Female (Patient) Published: October 13

I was diagnosed with Sjogren's syndrome about a month ago, but have been experiencing symptoms for about 2 years. I was relieved to at least have a diagnosis; everything makes sense now. I have been unable to work for the last 8 months with uncontrollable asthma, and sinus issues. My parotid glands are giving me a hard time. I have been swollen and in pain for about two weeks now. I also feel very fatigued and achy. My initial appointment with the rheumatologist is in February 2016, so I feel anxious. I also feel like many other glands are tender; it's just weird. I try not to worry too much, but it's almost inevitable.

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Comment from: Bubbles, 45-54 Female (Patient) Published: March 10

I was diagnosed with Sjogren's syndrome when I was 41, and I lost all feeling in my face. I had suffered from many eye infections and have done so over 20 years (cold sore attacking the Iris). I found all of my joints very stiff swollen and very painful. I see a specialist every 3 months. I am on Plaquenil 400 mg daily. Some days I just can't get out of bed. I am sorry to say but I took up smoking pot to relieve the pain. I have just recently lost my Left knee so I have had total knee replacement (TKR) with the next one due in 3 months' time. My doctor injects my joint on a regular basis. I am unable to work due to many reasons including long standing, long sitting and stairs. I am now walking with a walking frame. I really hope someone can find a cure for this dreadful condition. People don't understand or don't wish to understand the issues behind this disease.

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Comment from: Katdog, 55-64 Female (Patient) Published: March 03

I have burning lips, sore tongue and hot gums because of Sjogren's syndrome. My eyes are constantly blurred. I have tear duct plugs and use Restasis 3 plus times a day. It never goes away and I never have a day without it. Body aches do respond to daily SSRI (selective serotonin re-uptake inhibitors) and Celebrex along with many supplements. Hope this helps someone.

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Comment from: Gina, 35-44 Female (Patient) Published: February 23

I have had dry eyes for decades. So much so I was unable to wear contacts. I remember reading a list of symptoms for Sjogren's syndrome back when I was in nursing school and said to myself, 'I bet I have that.' I have dry eyes, fatigue, dry skin and nails, and hair loss at times. Those are the main symptoms. Somewhat dry mouth, but not terrible. I just need to sip fluid but I still have good saliva production as per doctors.

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Comment from: goiter girl, 35-44 Female (Patient) Published: August 15

I have Graves' disease and Sjogren's syndrome. It took me 6 years to get a diagnosis. I have joint pain, ear pain, dry mouth, increased cavities, dry eyes, extreme fatigue, dry skin, hair loss, and depression. A friend of mine suggest trying the autoimmune protocol/Paleo diet. It is quite restrictive. I followed it for 3 weeks without fail and felt great and even woke up in a puddle of drool, sounds gross I know. It is not a cure but it did lessen my symptoms. Many books out there I like practical Paleo and the autoimmune cookbook. It takes an effort which is hard with our fatigue, but it is worth it.

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Sjögren's Syndrome - Describe Your Experience Question: Please describe your experience with Sjögren's syndrome.
Sjögren's Syndrome - Prognosis Question: What is the prognosis for your Sjögren's syndrome?
Sjögren's Syndrome - Treatment and Diet Question: What treatment has been effective for your Sjögren's syndrome? Have you made any dietary changes, and have they been effective in managing your Sjögren's syndrome?
Sjogren's Syndrome - Complications Question: Please share complications you have experienced with Sjogren's syndrome.

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