Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously. Patient Comments FAQs

Tell us a bit about your background to make your comments more useful to other MedicineNet users.

Screen Name: *

Gender of Patient:Male Female

Age Range of Patient:

I am a: Patient Caregiver

Enter your Comment

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

How are Ehlers-Danlos syndromes treated?

Ehlers-Danlos syndromes are treated according to the particular manifestations present in a given individual.

Skin protection (from injury of trauma and sun, etc.) is critical. Wounds must be tended with great care and infections treated and prevented. Suturing can be difficult as the skin can be extremely fragile.

Joint injury must be avoided. Occasionally, bracing may be necessary to maintain joint stability. Exercises that strengthen the muscles that support the joints can help to minimize joint injury. Contact sports and activities involving joint impact should be avoided.

Return to Ehlers-Danlos Syndrome

See what others are saying

Comment from: erink, 35-44 Female (Patient) Published: February 15

I've had 3 successful procedures that have greatly improved my pain and mobility issues. After a decade of being misdiagnosed and treated for rheumatoid arthritis with chemotherapies and biologics I sought one last opinion and finally a new, young rheumatologist shed light on what was wrong. This Ehlers-Danlos syndrome had been the problem all along. My leg pain was most disabling (could not even stand long enough to shower) and my doctor decided to do ultrasound guided injections to both knee bursa with steroid and lidocaine. The same treatment was given all along the ligaments in both feet and ankles as well. After a few weeks of healing, I was very aware that my pain had decreased significantly. This was 5 years ago already. Last month I had a procedure on my veins in my leg since my vessels and veins got incompetent and too wide; endovenous thermal ablation. It took a month to recovery but now my pain has decreased by about 60 percent, which is major. For the 1st time in over 10 years I can at least hold a job now and depend for the most part, on my body. I'd suggest talking about these treatments if your problems are similar.

Was this comment helpful?Yes
Comment from: James Aquila, 35-44 Male (Patient) Published: March 22

I have Type III Ehlers-Danlos syndrome, which I inherited from my father. I have been using Solomon's seal and hyaluronic acid to support my joints, tendons, and ligaments. They are really helping with the inflammation, spasms, and pain. They do not provide total relief, but are worth the time and effort. I also take prescription medication because supplements can only do so much. I only use the supplements with the full knowledge of my physician to prevent any unwanted interactions.

Was this comment helpful?Yes
Comment from: christielucy, 35-44 Male (Patient) Published: December 02

I had a karmic reaction when I was pretending to kick some one. My hamstring tightened immediately and I hobbled off quite defeated. The pain is in my hamstring but travels through around my hip into my groin. I am not sure if I should bother my doctor with this but some movements cause light popping even now.

Was this comment helpful?Yes

Health Solutions From Our Sponsors