Patient Comments: Raynaud's Phenomenon - Treatments

Question:

What was your treatment for Raynaud's phenomenon? Submit Your Comment

Comment from: frustrated, 45-54 Male (Patient) Published: June 14

Recently I had gall bladder surgery. Immediately after surgery my Raynaud's phenomenon was gone for a couple days. It got me to thinking why, but every article I have read as treatment for this would involve circulation or dietary changes that would increase oxygen in the body. I have been eating leafy greens, using a warm air ventilator, taking low dose Cialis, and had a vitamin infusion water soluble IV. Last few days symptoms are almost gone. I wish everybody luck with this awful disease.

Comment from: conscastle, 55-64 Female (Patient) Published: November 17

I have had Raynaud's phenomenon for about 8 years now and just a few months ago I needed deep tissue medical massage on my shoulders and back for other reasons. And since then I have not had any sign of the Raynaud's show its ugly self. I can only hope that it will never return.

Comment from: sweeties mom, 55-64 Female (Patient) Published: March 17

I've had Raynaud's phenomenon for approximately 15 years, diagnosed by my doctor purely by accident. I upped my daily intake of coffee when I happened to read an article about coffee lessening the symptoms, and sure enough, my symptoms dramatically decreased! Now, only the tip of my middle finger turns white, and it has to be extremely cold. I only had one bad incident this year when I had to go to jury duty. The stress of it turned all my digits numb. It took about 2 minutes of hot water running over them to bring them back. My feet used to go numb on the bottom also, but not anymore.

Comment from: Hopeful123, 45-54 Female (Patient) Published: March 12

I have had Raynaud's disease since I was 14. I have been suffering mainly due to freezing and pain in my hands and foot until now. Last two years I have developed painful red bleeding spots on the balls of the toes which turn blue to blackish. They burn without any warning or pattern. The skin peels around them and now I am being treated with nifedipine everyday along with aspirin. My blood tests have not changed but my symptoms have worsened. I wonder if peeling of the skin in sole of the foot around the bleeding spots mean healing, or if the condition is worsening. The burning remains for about 10 to 12 minutes and is unbearable.

Comment from: PA, 35-44 Female (Patient) Published: November 04

Try acupuncture, very helpful. It made a big difference for me, not only in Raynaud's phenomenon, but also in the chilblains I get with it.

Comment from: mroowa, 25-34 Female (Patient) Published: February 24

I have Raynaud's phenomenon and I am 27 years old. It affects my 2 fingers in left hand and can last for 1 hour. It does hurt, problem is that I also suffer from heat strokes. I cannot stand to be for too long in hot room or overdressed. So I try to keep myself just right to stay away from Raynaud's but to do not overheat myself. It is early stage of my Raynaud's and I hope it won't get worse. I'd rather be cold than hot as than I cannot control my temper.

Comment from: ZQ, 55-64 Female (Patient) Published: July 16

I have had Raynaud's phenomenon for over 10 years and I live in Florida. I have been ulcer free for 3 months - the first time in over 2 years. I am on a calcium channel blocker and Viagra (very expensive). I keep a small heating pad at my desk at work (no heaters allowed) and by my easy chair in the house. I have over 25 sweaters and jackets and never go into a restaurant or grocery store without one. My husband shops the cold aisles and in restaurants I order hot water so I can hold the mug. Once a guy was wearing shorts on one of our 'winter' days and said, 'it's not that cold'. I politely replied, 'it probably wouldn't be if I was healthy!' He was embarrassed, hopefully he will think twice before insulting another bundled person. Rainy days are the worst, just looking at rain can cause me to have an episode.

Comment from: Jamestown, NY, 65-74 Female (Patient) Published: April 14

I have had Raynaud's phenomenon for more than 25 years and know the pain, especially since I live in a cold Snow Belt area. I have tried medications (nifedipine and others), but don"t like the side effects of headaches, and some just don"t work. I have tried some supplements, but they have not helped either. However, what has helped this winter has been cinnamon. Believe it or not, this has helped so much that I have to tell others. I take 500 mg of a cinnamon tablet called Cinnulin PF once a day. It began to work within a few days. I"ve had no side effects from taking it. My hands are now usually pink and the Raynaud's pain is far less than before, and most of the time the pain is gone. I still have to be careful to protect my hands from the cold and sometimes use hand warmers in extreme cold temperatures. You have nothing to lose by trying the cinnamon and possibly a lot of relief to gain. I wish I had found this long ago!

Comment from: Lisa, 45-54 Female (Patient) Published: March 04

I am 45 and have suffered with this in my hands for years. My body can be sweating hot but my hands are ice cold. Temperatures below 68 degrees will trigger it if I am not moving so sitting indoors in AC is a no no. I have to do my jobs outdoors and I have those little hand warmer packets stashed everywhere. I also have a low body temperature so I don"t know how that fits in. During the winter, I constantly have to go run my hands under warm water to get them back functional; gloves are no help at all. They will not warm up on their own, I always have to apply outside heat. My feet will also go cold but not to the same extreme as my hands and not as painful upon warming. Before going to bed, I have to jump in a tub of hot water to bring my entire body temperature up before getting under the blankets or my hands and feet will go cold. You are all right, normal people do not understand why we are so cold.

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Comment from: RON, 55-64 (Patient) Published: December 17

I found out this year I have Raynaud's and my feet and fingers turn white so I just carry hand warmers in my pockets all day. You can get them in most stores were sporting goods are sold. When fingers start to turn white I just get the warmers out of my pocket and hold them and I feel better in a minute or two. They also have toe warmers you put in your shoes they work good also. If it starts at home or work I just run warm water on my fingers and hands and this helps it go away fast.

Comment from: paul, 45-54 Male (Patient) Published: December 06

I was diagnosed with secondary Raynaud's twenty years ago. I almost lost my fingers and toes, I was in hospital for six weeks. I was given iloprost and heparin which helped massively. When I was discharged I was given nifedipine tablets, they were great. I also bought battery heated gloves, they are amazing; I wear them every day and thermal socks too.

Comment from: altoona, 55-64 Female (Patient) Published: October 15

My first experience with Raynaud's phenomenon was about 10 years ago. My fingers would turn white and get really cold. I read up on the symptoms and started seeing a chiropractor. I started taking vitamin B and saw him 3 times a week for a month and then stayed with weekly visit for next few years. I have not had any symptoms until recently and will be going back to my chiropractor and taking the niacin again. He helped me tremendously.

Comment from: linda123, 35-44 Female (Patient) Published: April 01

I was diagnosed with Raynaud"s phenomenon last year and I don"t take the medications but I do wear hot packs on my feet and hands. I love to be outdoors and it is very difficult to have Raynaud"s when you love the outdoors and live in Ohio! We are considering moving to a warmer state.

Comment from: Cec101, 35-44 Male (Patient) Published: March 18

It has been a very severe winter in Wisconsin and I have had to take my prescribed nifedipine for Raynaud's phenomenon 3-5 times a week instead of 2-3 a week other winters. I have now gotten severe pounding headaches along with a slight nausea on days I take my medications and have had to stop until I can see my doctor. On a weird note, on days I take the medications, when I go to sleep listening to headphones, the music sounds slower and I seem to hear it better.

Comment from: Nettra, 45-54 Female (Patient) Published: February 25

I have only been diagnosed by a doctor that works in the office where I work. He stated that I have Raynaud's phenomenon. No one knows how painful this is until you experience it yourself. It hurts like hell. My fingers on my right hand, when they get cold they turn white and it only happens to the three fingers between the thumb and little finger. It takes anywhere form 30 to 40 minutes for my fingers to warm up. There is a burning, tingling, shooting pain and it hurts really bad. He asked me if I smoked and when I said yes, he urged me to stop.

Comment from: whirllynn, 55-64 Female (Patient) Published: May 08

I have Raynaud's phenomenon and have had it most of my life. It runs in my family. My father had it, my sisters have it and so do some of my aunts on my father's side. I have found several things that do work for me. # 1 I try to keep my hands warm as much as possible. Taking vitamins such as cod liver oil, fish oil, yucca and aloe which are all ant-inflammatory help quite a lot. Limiting caffeine especially sodas have helped as well as trying to eat healthy. Also exercise helps as it increases blood flow to the extremities. Hopefully, this helps someone out there.

Comment from: Lou, 55-64 Female (Patient) Published: January 10

I have Crest Syndrome, in which Raynaud's is a part. I have worn mittens since October and hand warmers in the mittens or keep them in my pockets. I was diagnosed in March of 2011. My right index finger seems to be the worst. I am using nitro-bid on it and getting Marcaine injections. My doctor has talked about Botox injections, but insurance won't pay. Has anyone tried this? Did it help? I can't take most meds, because of gastric bleeding. If it (Botox )helps, I might be willing to pay for it.

Comment from: Mary, 55-64 Female (Patient) Published: November 02

I am a 55 year old female with worsening Raynaud's. My toes and feet have had it since I was an adolescent. When I was about 48 my pinky began being involved in the winter. Last year my ring finger became involved. Now that fall has hit, all of my fingers are being affected. Wearing socks and gloves, taking warm showers, staying out of the cold and keeping my fingers dry are the only tips I can share.

Comment from: softball06, 13-18 Female (Patient) Published: October 25

I am 16 years old and I was diagnosed with Raynaud's phenomenon last year. My Doctor said I can't really do anything to help it except stay warm and take my blood pressure pills. Well, nothing is working and I play travel softball all throughout winter, fall, and summer. No one in my family understands how it feels and I don't know what else to do.

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Comment from: Rebecca Easton, 45-54 Female (Patient) Published: January 05

I have had Reynaud's syndrome for several years, but it now seems to be worsening (although not as bad as other patients, apparently). I live in a cold climate, but continue to enjoy skiing and other winter sports. I make sure my hands/feet don't get cold by wearing high quality gloves/mittens and also using hand-warmers which are made for skiers. When an attack occurs, I get home as soon as possible and run them under warm water until they return to normal.

Comment from: Sunflower, 45-54 Female (Patient) Published: November 25

I was diagnosed this year in March. I have had lupus since 18 years of age. In September I had a major flare up. I've been out of work for over 4 weeks now. I have an ulcer on my middle left finger that is extremely painful. In fact my entire left hand hurts. Only narcotics help with the pain. I take medications for high blood pressure and a special cream was prepared that is helping a lot with circulation. I also stopped smoking.

Published: April 10

I was finally diagnosed with Raynaud's in my right foot. I had many sessions in a hyperbaric chamber and finally got the Botox shots. They helped a lot. I think I will get them every winter. In my case, insurance did cover most of the cost.

Comment from: will-flo, 65-74 Female (Patient) Published: March 29

All of my life I've been bothered by this malady. I had a stroke in 2010. Odd as it may seem – I'm healed of it. I have side effects of the stroke on my right side, especially in my arm, hand, foot and leg. I feel better now than I can ever remember. Why wasn't I properly diagnosed? It was not all in my head, as some implied.

Comment from: 45-54 Female (Patient) Published: March 13

I have had Raynauds for 10 yrs but these past 2 yrs. have gotten severe. I also have RA (rheumatoid arthritis)and the pain in my hands is so severe I have gotten a small heater and I stay in the study all day with the heater on. I live in Texas so thank goodness we have mild and short winters. But even exposure to air conditioner in the house or car doesn't matter and instantly the pain sets in. I have yet to find anything that works except staying active and being out in the nice hot 90 degree sunshine. I can't wait for summer.

Comment from: janis, 65-74 Female (Patient) Published: March 08

I have Raynaud's syndrome which is worse in my right hand. I have a sore at the end of my middle finger. I use Nitro BID twice a day, keep it warm, wear a glove and use microwave hot pad around my shoulders which I can contact with my hand/fingers.

Comment from: saraempress, 35-44 Female (Patient) Published: February 22

I too have Raynaud's phenomenon but no one in my family as far as I know has this, I am the only one. It really makes me sad. My doctor said it might be caused by my birth control pills. I stopped talking the pills. I have been anemic for years. I think that has something to do with this. I am 39 now, this happened about 3 years ago.

Comment from: Sillyp, 19-24 Male (Caregiver) Published: February 19

I bought my son infrared socks online and they seem to help.

Comment from: Kelley, 45-54 Female (Patient) Published: February 15

After several visits to the podiatrist looking for relief from Raynaud's, with suggested treatment of high blood pressure medication, I started looking for another treatment. Heat based muscle rub helped, but true relief came with the use of DMSO (Dimethyl sulfoxide). Just a few days of use lead to relief. It will continue to be my treatment going forward.

Comment from: fran7992, 55-64 Female (Patient) Published: January 31

I've had this for years then someone, several years ago, suggested I take Ginkgo Biloba. So I did and within a few weeks, during a cold winter, I did not have any symptoms. Maybe it acted as a placenta or I "grew" out of it but the coincidence is quite intriguing. Neither have I had chilblains since taking it. Perhaps the medical authorities should look into some herbal medicines to find out what they can do or not. Anyway it worked for me and I'm sticking to it.

Comment from: johnnie, 35-44 Female (Patient) Published: January 15

I was just told today why my fingers turn white and hurt so bad when the blood starts flowing back into them. Raynaud's syndrome is what my doctor said with little concern. He told me I was going to have to keep my hands from getting cold by wearing gloves all the time when I go out or go into the freezer. I live in South Carolina, it was 73 degrees 3 days ago and my hands still turned white.

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Comment from: Sara, 55-64 Female (Patient) Published: November 29

I was diagnosed 32 years ago. I can deal with the pain in my fingers, but the open sores on my fingertips are so very painful. I only get relief from Neosporin + pain relief. The sores last for months.

Comment from: mommaj, Female (Patient) Published: September 26

I've had Raynauds for years and I have tried all things. The vitamins help some and exercise helps some too, but it's getting progressively worse regardless of what I do. If you are in a state where you can get medical marijuana you should try it. So far it's the only thing that has helped the pain.

Comment from: Que, 45-54 Male (Patient) Published: March 29

I'm a 54 year old man recently diagnosed with Lupus. I was prescribed the anti-malaria drug Plaquenil to help control the pain. So far I've been on the drug about a month. I have noticed slight improvement but not enough to get excited about yet. I was told it would take four to six weeks to really be effective. Anyway, a condition of Lupus is Raynaud's phenomenon. The drug I take does absolutely nothing for Raynaud's. I can barely use my hands most of the day because of the pain in my fingertips. It feels like torture; like someone is sticking needles between my fingernails. This is agonizing. I don't know if the drug I'm on takes care of this as well, but now I'm on the Plaquenil and 800 mg Motrin. Still no relief. I'm just hoping the doctor knows what she is talking about.

Comment from: aurffe, 13-18 Female (Patient) Published: November 08

I've just found out that I have Raynaud's syndrome. Ever since I was a little girl, I've had problems with going out in the snow because whenever I went out, I would break out in what seemed like full-body hives. Years passed and I would always have constant breakouts. My mom took me to a doctor who said I was allergic to temperature changes so I was put on this pill called cyproheptadine, which did nothing for my condition. I decided to stop taking it. Just weeks ago I was talking to my friend's step-mom about my condition and she instantly mentioned the disease/syndrome, and I went right to my mom and told her about what she had told me. She just looked at me and was like, "Oh, my mother has that" and ignored me the rest of the day. It annoyed me that she never mentioned anything to me about it, but I'm just glad I know what's wrong with me now. Hopefully, I can figure out how to better myself.

Comment from: suds suzie, 45-54 Female (Patient) Published: April 04

I found out what was happening to my fingers and nose was called Raynaud's disease. So I started taking my Synthroid, and voila! I was symptom free in three days.

Comment from: dalmay, 45-54 Female (Patient) Published: January 11

I was diagnosed just last year, but have experienced the symptoms since 2008. When I walk my dog during the winter, I microwave a small potato for about 2 minutes. I wrap it in a paper towel and carry it in my jacket pocket. I grasp it while I walk (wearing gloves) and it keeps my hand warm. I alternate hands as needed.

Comment from: shorty2345, Female (Patient) Published: February 24

I am 17 years old I have Raynaud's Syndrome. I have had it for a few years now, but it wasn't till last year that it got to the point of not being able to handle it anymore and asked my mom to take me to the doctors. When I did they told me the first time that I could go on pills my mom didn't want me to. I was 13 when we really found out what it was and it is hard. My dad's side of the family has it and I didn't know this till last year that she also had it.

Comment from: Les1981, 25-34 Female (Patient) Published: February 14

I was diagnosed 7 years ago when I was 23. It's not as bad as it used to be. It seemed to get better after I had kids. The Doctor told me I needed to start exercising more as this phenomenon has a lot to do with circulation. Seems to work.

Comment from: Fortified Brad, 13-18 Male (Patient) Published: December 05

I am 17 years old, had this condition for a while and was only diagnosed a couple of weeks ago. I have yet to receive pills to treat this Reynaud's. I usually put my hands under hot water to rid myself of its symptoms. I usually do it over a sink, but would also be good in a bathtub if you have it in your feet as well.

Comment from: mira, 19-24 Female (Patient) Published: November 30

I'm from the Philippines which are ironically a tropical country, and I suffer from Raynaud's since I was 14. I'm already 20 and it's getting worse. I hate the cold weather especially when it's raining. Early mornings are a pain especially when you get to hold cold water.

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Comment from: Tammi, 35-44 Female (Patient) Published: November 22

I'm currently being treated with Nitroglycerine Patch 0.4 mg/hr on 12 hours, Plavix 75 mg once a day and Procardia XL 90 mg daily. Nitro patch was just increased to 0.4 mg. Still having frequent attacks. Hands constantly purple. Had this for 11 hours. Diagnosed with CREST syndrome. Raynaud's, I would say, is the biggest nuisance. Everything else pretty minor and stable with medication.

Comment from: Lisbeth, 55-64 Female (Patient) Published: June 15

Cortisone injections seem to alleviate my Reynaud's syndrome. As I am also suffering from severe rheumatoid arthritis, I was told by the rheumatologist that Reynaud's disease and RA go hand in hand. I wear surgical gloves and household gloves when working in the kitchen, cotton gloves elsewhere in my house, leather gloves when going outside.

Comment from: rabbit, 35-44 Female (Patient) Published: May 25

I'm 39 years old I found out I had Reynaud's phenomenon secondary. I found it out by my hands my fingers and toes were white frozen and swollen and very painful. I didn't know what was going on. I went to the doc and with one look he said u have raynauds. I was so shocked I had never heard of it before, and I have it how crazy. I had to stop my work as a cook as I could no longer deal with the cold and pain, this has made my life a living hell. I can't get up without being that frozen I can't move. I miss out on so many outdoor things I'm so sensitive the air affects me no air conditioner either just forget that. My ears nose eyelids all go cold and hurt too it's so horrible no one seems to understand it or me.

Comment from: froggy, 35-44 Female (Patient) Published: May 24

I have Raynaud's phenomenon it's hell for me I was a cook. I no longer can do this, even shopping and cold fridges give me an attack. I use heaps of clothes all day and it's painful when I'm that cold I can't even move, I try to shower and after a min or two I have the pain of myself heating back up. I wish I never had this it affect my life greatly.

Comment from: Helena, 75 or over Female (Patient) Published: March 22

I went to an acupuncturist for treatment and it works superbly; I just go back to him each fall for another treatment to get me through the winter months especially, even though it keeps me free from any symptoms from just walking through the coldness of a grocery store.

Comment from: Sara, 35-44 Female (Patient) Published: March 22

I am 35 and have Raynauld's Phenomenon with Hyperhydrosis. I had it my whole life. When I was 18 I had 2 lumbar sympathectomys for my feet. The surgery was a success and I have had warm feet ever since. I am now going to have the surgery for my hands and am hoping for the same success. To cope with my Reynaud's I have had to move to a warmer climate and take baths after every attack. I use cotton gloves when I go outside. Summer is just as bad as the winter for me.

Comment from: (Patient) Published: March 15

I have Raynaud's and have not found any relief except the obvious: move alot. Don't have a sedentary lifestyle --- it aggravates the condition. I take the dog for a walk/run when I need to get the blood moving. My condition worsens if I sit behind a desk and then sit in the car. We aren't meant to sit all day (at least I am not). I move whenever able and this lessens the symptoms considerably.

Comment from: Freezing tootsies, 45-54 Female (Patient) Published: February 23

I was diagnosed w/ Raynaud's phenomenon in my feet 2 years ago, but I think I have had it since I was a little girl. I am a volunteer fire-fighter/EMT, but my PCP pulled me off all outside activities/rescues for the winter. I have tried the warming socks don't help. He tried me on Nifedipine and that gave me a horrible headache. I'm now wearing 2 pair of socks to bed at night with an electric mattress cover for warmth. I take Tylenol 3 for pain.

Comment from: Sosi, 65-74 Female (Patient) Published: January 25

I find topical steroids help the swelling and pain from Raynaud's.

Comment from: Marilyn, 35-44 Female (Patient) Published: January 07

I'm from Puerto Rico. I was diagnosed with Raynaud's phenomenon because of a post traumatic event! Eight months ago I had this trauma event, caused by a negligent nurse in a lab, who took my blood sample from my left arm causing my arm from this traumatic event to limit the arm to extend in a vertical position causing immediate hand swelling changing to red, dark blue, and cold temperature in hands and fingers. My Dr. discovered she damaged my middle nerve causing this condition so I'm still under treatment.

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Comment from: wayne e, 55-64 Male (Patient) Published: December 22

I am 62 and live in Colorado. I first discovered I had Raynaud's while roofing. I could not stand being outside and even the truck heater didn't stop my shivering. That was over 30 years ago and it's a most miserable disease that no one understands. The suffering is unbelievable. Recently I was watching my sister's house. I could not get her heat over 61 degrees. Froze for three days and then came home and spent two days in bed shivering. Not eating or drinking. The moisture in the air seems to be a trigger. Coats and gloves don't help much as it is internal and that doesn't help when no heat gets to me. It is a huge part of my depression. I don't care why you ache, it's bound to depress you.

Comment from: L. B., 65-74 Female (Patient) Published: June 15

I have Reynaud's disease and have had it for over 20 years. These past 3 years or so, my ears have started to be really sensitive to cool or cold temperatures. I must carry ear muffs with me all the time to keep them from hurting.

Comment from: stephanie, 35-44 Female (Patient) Published: May 02

I was fighting with this disease for a few years now and found an amazing cure for me. Melaleuca Vitamins /vitality 4 and a supplement called provex. I have had been symptom free for over 10 months!

Comment from: giglia, 45-54 Female (Patient) Published: January 25

You need to try CAYENNE PEPPER capsules. They are natural and have not known bad side effects. I have been drinking them for 4 days now; there is snow outside so you can imagine is very cold! And I have been normal, my hands are warm, their color is nice and pink! Absolutely amazing, I can't believe it. GET THE WORD AROUND.

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