Patient Comments: Psoriatic Arthritis - Describe Your Experience

Please describe your experience with psoriatic arthritis.

Comment from: GuineaPigPotter, 25-34 Female (Patient) Published: May 21

I've had scalp psoriasis since I was about nine years old, but it wasn't diagnosed until recently, at my age of 34. My mother has psoriasis all over and is suffering with psoriatic arthritis in her hands, feet, and terribly in her spine, but she got the symptoms of arthritis over a decade later than I have, and my pain is everywhere. I was a Thai boxer and a ceramic artist, and now, I hobble like a 100 year old granny. My arthritis is symmetrical and merciless. My toes, ankles, hands, wrists, shoulders, elbows, spine, and my hips all sing grand opera. I have disc degeneration in my whole spine, as well as a ton of disc herniation and sciatica. But, my hips, they feel like abscessed teeth chewing on rusty nails. The pain is so bad that hydrocodone 10 mg and Percocet won't touch it, and I cry myself to sleep almost every night. I don't understand why my arthritis is so much more aggressive than my mom's when her skin symptoms are so much worse! I am going to the rheumatologist next month, and hoping that I can get some relief. I'm too young for this nonsense and I want my life back!

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Comment from: Danielle, 45-54 Female (Patient) Published: May 06

I have had psoriasis on elbows and knees and scalp since I was 16. Then 2 years ago when I was 48 I got swellings on my ankles and wrists. I was finally told I had psoriatic arthritis for which I have been taking naproxen which seemed to calm it down, but I felt extremely tired. When only working 3 days a week I was having to go to bed on the fourth day. I know I have arthritis in my neck but have been given exercises to do and if that does not work I will be referred to a specialist for physiotherapy. Apparently my great grandmother was crippled with arthritis from the age of 26 so my condition may be inherited.

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Comment from: Hopeful, 35-44 Male (Patient) Published: May 05

I am a 35 year male. I had psoriasis from the age of 12 or 13 with it reappearing at the age of 20. It still is here today after 15 years. At about the age of 30, I started having terrible back pain (sciatica like symptoms). Just last summer, I started having pain in my left knee and some of my other joints, along with the back pain. I finally found a family doctor who linked the psoriasis with the pain and set me up with a rheumatologist. I just started Humira a month ago. I haven't noticed any relief from the pain but I have noticed my psoriasis getting better. To all of you out there with this terrible disease, please keep your head up. Stay hopeful. Try to keep yourself going by exercising because it does help, just remember not to overdo it like me. I try to exercise too much then end up making my pain worse and then I can't exercise.

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Comment from: Dieselgem, 45-54 Female (Patient) Published: January 14

Thinking back over the last 7 to 9 years, I was gradually getting symptoms of psoriatic arthritis, but had no idea what it was. In 2010 my beautiful Mum passed away and my stress level went through the roof. I fell in December of that year and dislocated and shattered my shoulder. I've never recovered from then on. I spent many days talking to general physicians about how much I hurt and have been given tramadol for pain. It wasn't till last October when I got to see a pain specialist who sent me off for a barrage of tests and gave me prednisone that I started to get relief. He sent me to my rheumatologist who diagnosed me. So here I am 3 months on, had to stop the prednisone as it made me sick, and tried MTX (methotrexate). It gave me massive headaches and stomach ache. I have gone on to Arava, but it doesn't seem to have done anything after 4 weeks. In fact I think I've got more pain; ankles are swollen, knees too and ache so bad. Fingers and hands ache and are swollen (not bad like I have seen, but bad enough for me) and my rings don't fit any more. And the people in my family think I'm just being lazy, or trying to get out of things; they don't care or be bothered to understand. I don't know where I go from here.

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Psoriatic Arthritis - Diagnosis Question: How was your psoriatic arthritis diagnosed?
Psoriatic Arthritis - Treatment Question: What was the treatment for your psoriatic arthritis?
Psoriatic Arthritis - Symptoms and Signs Question: What are your psoriatic arthritis symptoms and signs?
Psoriatic Arthritis - Diet Question: Have particular dietary changes helped your psoriatic arthritis symptoms and signs?

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