Patient Comments: Polycystic Ovarian Syndrome (PCOS) - Treatments

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What was the treatment for your polycystic ovarian syndrome? Submit Your Comment

Comment from: 25-34 Female (Caregiver) Published: March 04

I would like to thank everyone for their helpful life sharing! I'm a mother of a 15 year old who has been diagnosed with polycystic ovarian syndrome a few months back. The give-away clue was the missing menstruation for months. She has had an approximately 30 lb. weight gain in the past year, facial hair, hand hair and very horrible acne! I'm fortunate that she is such a positive girl and is not letting the disease define her. I have learned that healthy eating will help manage a safer future for her. We thought that we ate very healthy, for the most part we do, (no fast food, not a lot of junk brought into our home) but changing everything white to whole wheat is going to be the difficult part. The sugars are addictive and I'm expecting some resistance to the removal but as a parent it is ultimately my job to help her, at least till eighteen. As of now it took approximately 3 months of blood test, hormone checks, ultrasounds and urine samples before the diagnosis. She has been put on acne/birth control pills called Diane-35 but as of yet no period, so it seems it may be one of those diseases that take some figuring out yet. The doctors say it is one of the younger cases they have seen, so it's very important we are open with our children, able to help early to manage all symptoms easier and I think most importantly the weight before it is out of control! Thanks again and stay positive.

Comment from: Angela, 25-34 Female (Patient) Published: July 08

I was diagnosed with polycystic ovarian syndrome (PCOS) when I was about 25 or 26 and also found out that my ovaries were enlarged. I had an ovarian wedge resection where they cut part of my ovaries out to get them back down to size. I currently see an endocrinologist and with the medications of metformin, spironolactone, and weight loss of 70 lb. my hormones are under control finally. I am still not pregnant, but working on it.

Comment from: ash2.25.13, 19-24 Female (Patient) Published: March 18

I was diagnosed in August of 2013 with polycystic ovarian syndrome (PCOS). After doing research and talking to my doctor, I"ve found the simple things I do daily are the most beneficial. I had to be put on birth control to help regulate and lower the number of cysts, but I also take natural remedies. Most say weight loss and a healthy diet are key. I take cayenne pepper, acai, ginger root (helps prevent ovarian cancer also), ginseng, green tea extract, maca root, cinnamon with chromium, milk thistle, and St. John's wort (helps with the mood swings). All of these are easily obtainable at Walmart or vitamin cottage, basically any grocer or health food store. These have helped me lose weight, have energy, reduce cramping, and all around live healthier. I don"t exercise much other than in my living room with weights or going for walks. I"m a mother, student and full time employee. I can say, just a few minutes of your day, can make a big difference with this. Also if a smoker, I suggest quitting cigarettes, I"ve smoked for 5 years and after I quit, I noticed a significant amount of less cramping and mood swings. I"m not a doctor but I strongly believe in taking care of yourself when the resources are available.

Comment from: Bblove, 35-44 Female (Patient) Published: February 07

I was diagnosed with polycystic ovarian syndrome 12 years ago, I had to be on birth control to get pregnant. I have been on metformin and a water pill that keeps potassium in my body, I have lost a goal of 60lbs and have kept it off for over a year and a half. Go see an endocrinologist!

Published: June 18

I was diagnosed with PCOS about three years ago, and at the time, I did not have insurance and had to go to the free health clinic. The doctor that I saw didn't do much to help, and I got so frustrated that I quit even trying to get her help. I no longer had a period and just put this diagnosis out of my mind until April 2008 when I started cramping and bleeding so heavily that I almost went to the hospital. My new doctor started me on birth control, and as of yet, it has not worked. I am so frustrated because almost all of the research I have done says that with diet and exercise and weight loss, I can drastically help my PCOS. However, I have been doing intense workouts three to five times a week, completely changed my eating habits, and I've lost about 37 pounds, but my PCOS is worse! I have been menstruating since the beginning of April, and this is taking a physical and emotional toll on my life. I can't work out as much because of the severe cramping, and I have had to miss a lot of work because of exhaustion.

Comment from: Arogyam Pcos kit, 25-34 Male (Caregiver) Published: August 09

I am a staff nurse, working with doctors all the time, so I knew about my problem of polycystic ovarian disease (PCOD). I used to get periods once in 3 or 4 months. Hormones was the only option. I became bulky, hairy with rough skin. One day, one of our hospital's old patient, also had PCOD, came with glow on skin, slim, and trim. I was amazed to see her. I asked her about the change and she said her PCOD was cured by Ayurvedic medicines. I took it for 6 months and it worked for me.

Comment from: Forever21, 19-24 Female (Patient) Published: November 14

I was diagnosed with polycystic ovarian syndrome (PCOS) about 4 months ago after having long periods for almost a year now. My current doctor put me on Lo Loestrin Fe tablets and my periods have been worse and I have been having cramps. Sometimes I just want to cry all day from the pain. I have to spend so much money on pads it is just too much. I need some relief.

Ovarian Cysts Pictures Slideshow
Comment from: Jenny, 19-24 Female (Patient) Published: April 22

I am 24 years old and I was diagnosed with polycystic ovarian syndrome (PCOS) a year after I started my periods. I always had irregular periods in my life. Sometimes I have prolonged periods, sometimes missing for 2 or 3 months, sometimes very heavy. I started gaining so much weight. I eat so less to look the way I do. Doctors prescribed birth control pills. Last year I had a very bad acne. Doctor changed the pill and it is a little better now. Also, I managed to lose 15 pounds a year back. But, without even me noticing, I gained it back. It is so annoying that everything always goes back to PCOS. I got married 2 months back. Although I am not trying now, my worst nightmare is the difficulty in trying to get pregnant. Hoping that it wouldn't be so hard.

Comment from: tin, 25-34 Female (Patient) Published: August 05

I was also diagnosed of having polycystic ovarian syndrome (PCOS) since January of this year. My last menstruation was last month and it was the 3rd time for this year. I'm on birth control pills and metformin. I hope I'll get better in time, my husband and I have decided to have a baby. Have faith ladies!

Comment from: I.G, 45-54 Female (Patient) Published: February 11

I am 53. I was diagnosed with PCOS (polycystic ovarian syndrome) when I was 27. I am on metformin, antidepressants, and Vaniqa. Birth control made my depression severe so I couldn"t do it. I also had migraines and hot flashes since age 16, which probably has nothing to do with PCOS, but 3 years ago a doctor put me on Topamax just to help control my migraines. I lost 80 pounds and my hot flashes went away! It should not be taken if you want children. It is really for migraines, but if any of you have the same symptoms I thought it could be a discussion with you and your doctor.

Comment from: karen, 35-44 Female (Patient) Published: February 07

I have been diagnosed with PCOS (polycystic ovarian syndrome) as well. When we wanted to have kids, I was not diagnosed yet. We had a hard time getting pregnant, we timed it, charted it, and used ovulation testing too. I was stressed thinking I could not have kids. We did Clomid for several months. We tried to get pregnant for 2 years. Then we decided to stop trying to have kids. And happily we got pregnant! Now we have 2 wonderful kids. I did get the gestational diabetes with my 2nd pregnancy. I was diagnosed with the PCOS after I had kids.

Comment from: ANNE, 25-34 Female (Patient) Published: February 04

It is not unusual to me having irregularity in my cycle since the first time I had my menstruation, until late last year I went through ultrasound and was found out to be PCOS (polycystic ovarian syndrome). My obstetrician simply told me to lose weight and exercise. When I consulted another specialist she gave me the contraceptive and metformin. And she told me that my PCOS was the reason for my acne problem. I have been having this for a couple of years. It just frustrates me and makes me feel depressed. I had many medications but it just gets worse.

Comment from: Nonajosh, 25-34 Female (Patient) Published: January 13

I'm 29 years old, I have polycystic ovarian syndrome and I have had it for years. I'm also type 2 diabetic. When I was 24 I became pregnant with my son, but before that I was trying for four years with my husband. I went to the doctor and he told me I have this and to watch my diabetes, lose some weight and take metformin. I went to the doctor in July 2008 and I became pregnant in Oct 2008 after I did what he said and it worked.

Published: July 25

I have just been diagnosed with PCOS and only because I ended up in hospital with a ruptured cyst. I was in agony. My gynecologist has been very good but I wont see him again for another month, but now I'm left wondering if I have to stop trying to conceive with my husband or in what condition my body is in. Am I infertile and what are my next steps? A month feels so long away for my questions to be answered. I am only married a year and have been trying for the last 8 months. For years we prevented pregnancy and now we are trying and have been dealt this blow.

Published: July 22

I went five months without having a period. Then I was put on metformin. It's been three months now since I was diagnosed with PCOS, and I still get painful periods, especially when I ovulate. I have excessive facial hair and patches of dark skin on my back. However, since I started metformin I have lost 18 pounds, from 218 to 200. I have completely changed my diet, and I drink a lot of purified water. Although I feel physically better, emotional I'm torn because I've been trying to conceive for two years.

Comment from: mommyJ, 19-24 Female (Patient) Published: December 20

I'm 20 years old, young mom and my daughter is 4 years old. I was diagnosed with PCOS (polycystic ovarian syndrome) 1 year ago. I take birth control pills and it helps my monthly period cycle.

Ovarian Cysts Pictures Slideshow
Comment from: hritu, 25-34 Female (Patient) Published: August 13

I am 32 years lady. As i went to check my irregular period then i was told that there is pcos. I became sad. Please I also want to it's true diagnosis. Actually I would want to have a baby. Now cycle has stopped for six months.

Comment from: windchime1138@aol.co, 19-24 Female (Caregiver) Published: April 15

I'm not a caregiver. I am dating a man who has a daughter with this. She's a wonderful girl and was diagnosed two years ago. She has multiple ovarian cysts and also a growth on her pituitary gland. She is obese and has facial hair. She was placed on Yaz and metformin, but couldn't take the metformin because of stomach problems. She recently had a scan on the growth on her pituitary gland and it's growing. I told her not to take the Yaz because of all of the bad hype. I didn't realize the significance of this diagnosis until this afternoon when I looked it up. There is lots of heart disease in her family. Her endocrinologist told her to get mammograms earlier because she could get breast cancer. She only sees this doctor once every six months and is currently not being treated. She is not so concerned about having children. She can't take the metformin. She's 22 and doesn't really realize the situation. I'm wondering what her options might be.

Published: January 16

I am 23 years old. I have always had irregular periods and acne. When my acne became so bad and I began to bleed non-stop with heavy, prolonged periods, I started birth control pills. The pills helped my periods stay regular and my acne was very minimal. Three years later, I developed cysts on my ovaries and constant PMS symptoms. I tried every diet under the sun and exercised five days a week. No matter what I did, I kept gaining weight uncontrollably. My sex drive plummeted, and I haven't had an orgasm in years. Miserable, I went back to my doctor who tried several different birth control pills and none of them helped.

Published: July 14

I have been diagnosed with PCOS. I was diagnosed less than a year ago. My insulin was extremely high and so was my testosterone level. I went to several doctors until I found one that could help. I was on my third month straight of having a period. When the birth control I was prescribed didn't work, I knew something else had to be done. That is when I found a doctor who started me on metformin. My period stopped, and I am now 53 pounds lighter. I no longer need the metformin because my insulin is back to normal and so are my periods. I also must add that I cut back on the sugar in my diet and started eating mostly organic food. I hope this gives someone hope and encouragement. I am no longer on meds and doing fine. The only thing I have to do now is stick to my diet. I feel I need to mention that metformin helped bring down my food cravings. I know what you are going through. It is a hard battle not many understand. My advice is to keep shopping for a doctor until you find one that can help.

Published: July 14

I have been recently diagnosed with PCOS. I am 38 years old and have always had irregular periods. Sometimes I would go five or six months without a period, and when I had one, it would last two to three weeks! I went to many doctors, and not a one of them could help me. I finally found a genius of a doctor. He ran some lab work and found out that I am insulin-resistant. I'm supposed to be at 4 and I'm at 37. My doctor prescribed glucophage, and the past two months my period started and ended on the same day each month! This has never happened before, and I am thrilled because I am on my way to getting pregnant!

Published: July 10

I am 26 years old. I was diagnosed with PCOS when I was 24. I have never had irregular periods. I do however have PMS symptoms all month. I have been put on metformin, Lexapro (for PMS mood swings) and Xanax for breakthrough anxiety (again for PMS symptoms). I have been heavy all of my life, however about 2 years ago I lost 60 lbs. In the past year I have gained back 46 of those lbs. it was quite rapid and now no matter what I do I cannot lose any weight. I see a personal trainer 2-3x weekly and also work out on my own. I cheat in my diet once in a while, and I do mean once in a while but the way I look, it seems like I eat cheeseburgers all day. It is so frustrating. I have tried every OTC diet pill on the market and even tried phentermine prescription which only rose by blood pressure. I have the staining of the skin, excessive facial hair, mild acne and the "stereotypical" PCOS body type - my weight is all around my hips. If anyone knows of any herbal or OTC medications that aid in weight loss please put it on the site. I am so frustrated, and so down on myself because of my weight. I was even considering surgery at one point.

Published: July 08

I was diagnosed with PCOS about six years ago when my husband and I were struggling to get pregnant. I took Clomid and Actos, but nothing helped me to become pregnant. After about three years (not taking any medicine) I lost about 10 kg and after two months I was pregnant. So losing the weight definitely helped me. But my daughter is now 3, and we are struggling again to become pregnant.

Published: July 08

I just found out I have PCOS today. My doctor wasn't too willing to share any info about this syndrome. My husband and I are trying to have a baby, and I had irregular periods before I went on birth control pills when I was 18. I'm 28 now and probably have always had PCOS. I have been off birth control for about eight months. My doctor put me on Clomid, Provera, and Metformin along with prenatal visits.

Ovarian Cysts Pictures Slideshow
Published: July 02

I was reading the comment on this page that states all women who have Polycystic Ovarian Syndrome will have irregular or abnormal periods. That is not necessarily true. I have been diagnosed with this and have all symptoms listed above with the exception of abnormal periods. My diagnosis took several months and all other possibilities were looked at and excluded including thyroid.

Published: July 01

I was diagnosed with PCOS about 4 years ago and if you look it up in a medical dictionary you will see a picture of me. I have all the textbook symptoms, except hair loss. That would be nice to have if it applied to all the hair on my face. I have struggled with my weight all my life and had horrible periods. Either periods lasting a month or a total absence of periods for months. I am a nurse and basically researched and diagnosed myself, took the info to my Gyno and he made it official with a ultrasound and some lab tests. I was on birth control for 12 years and that helped with the regularity of my periods, but not with the cramps and heavy flow. I recently stopped the birth control and am attempting to become pregnant with no results as of yet. I have discussed Clomid therapy with a number of physicians, but have not found anyone to prescribe it yet. My husband and I are praying and hoping for the best. If you are living this condition, keep a positive attitude and hope for the best.

Published: June 27

I was diagnosed with pcos when I was 20. I went through two or three rounds of Provera and Clomid and did get pregnant. She was born June 98. They put me on Depo (you know just in case LOL) in Jan of 99 I was three days late for my shot and they would not give it to me until my next period. It never came and in May 99 I discovered I had become pregnant without the use for Clomid. I have two beautiful girls now. A few years ago some of the cysts ruptured, worst cramping and pain I can remember and I still have excess hair growth even after 6 laser treatments and use of vanica cream.

Published: June 20

I am 22 years old and just found out that I have PCOS. Before the past year or two, my periods were regular. I have always been overweight, but when I started to grow facial hair and put on even more weight that would just NOT come off, I decided to look into possible solutions. Sure enough, I have PCOS. I have been put on the pill, which has gotten my cycle back to normal after only two months and Glucophage. I only started the Glucophage three days ago, so hopefully it will help!

Published: June 19

I have known I had PCOS for years and I didn't have a period for years. I started losing weight by lowering carbohydrates to help the PCOS symptoms. Recently my husband and I were preparing to have children and in that process I begin to menstruate again. But, it is very painful and kept me off work and stopped me from working out. This disease affects your entire body and unless you have it you will never understand what women like us who have PCOS go through.

Published: June 17

I am a 34 year old woman. I was diagnosed with pcos last summer. I am afraid that I will not be abe to become pregnant or carry a child. My symptoms are controlled by Glucophage. I am going to start my first round of Clomid. What are my chances?

Published: June 17

I was diagnosed with PCOS over 2 years ago, but I do not have issues with being over weight (but I do exercise 2-4 times per week).I do have cysts that were detected, my periods are irregular, and I get hair growth. A year before that I had a laparoscopy surgery for endometriosis which removed stage II endometriosis. I had tried clomide to get pregnant but it made my vision blurry. So far no luck getting pregnant.

Published: June 12

I have gained 30 lbs over the last few months and the lbs came on so quickly, I didn't know what was happening. I went to the doctor and she ordered tests. The only thing that was found was that I had high blood pressure and Dr said if I lose weight, the blood pressure should come down as well. I try and try and try all to no avail as I continue to gain weight even though I am dieting and exercising. I came across an article about PCOS and all the pieces of the puzzle started fitting into place. I am in menopause, so the lack of periods is the only thing that differs.

Published: June 04

I was diagnosed with PCOS about 10 years ago when my husband and I were trying to have a child. I was blessed to have a family practitioner who is also an OB, and he recognized it immediately. I have had just about every classic PCOS symptom there is. I am one that when I hear that I might have something, I research it to death. I cannot tell you how relieved I was when I read all the symptoms of PCOS and suddenly knew there was a reason for my severe acne in my teenage years, and for my weight and why it was so HARD to lose it. I just sat and cried I was so relieved to finally know what was wrong with me. After my husband and I had been married about 5 years and trying just about everything from Clomid (and all the other things that went with it; amoxycillin and Robitussin) which didn't work, Glucophage (which made me nauseous ALL THE TIME), to HCG shots which did work but at the time they started working, my husband lost his job and we could no longer afford it. So, we went off it. After I tried a new diet and lost 25 pounds, I spontaneously began having a cycle and three months later found myself surprised as I looked at my first positive pregnancy test ever (out of what seemed like hundreds). Five months later I developed gestational diabetes, but didn't understand the effect that can have on pregnancy. Please, if you get pregnant with PCOS and develop GDM, PLEASE eat right. Do not cheat. I had a 9 pound 4 ounce macrosomic baby and tore really bad. Eight months later I developed Type 2 diabetes, but have now learned to eat right (NO refined sugar, no refined flour or simple starches! All whole grains and lots of vegetables and fruit). Diet and exercise is the greatest impact on PCOS (and Type 2; my diabetes is completely controlled by diet and exercise...no meds other than Chromium as a supplement). Take care of it as soon as you can. It is so much harder to treat once Type 2 diabetes starts. The weight is even harder to lose, and I have lost the weight I gained down to what I was when I got pregnant before, but this time, I haven't started having cycles again. Find a good doctor who knows a lot about PCOS, and get as educated about your body, how it works (or doesn't) and how to treat it with the proper diet.

Ovarian Cysts Pictures Slideshow
Published: June 03

I was diagnosed after at 19 after I suddenly started gaining weight, growing a beard practically, and developing huge zits all over my jaw line. It was mis diagnosed several times because "all teens have irregular periods", "oh you get used to cramps they aren't that bad", "freshmen 15", " well you're Turkish and maybe you are more likely to grow hair...", "lot's of people have hypoglycemia". Things like that. It was my laser hair removal specialist who pointed to PCOS and sure enough that was me. DIET and EXERCISE are the best treatment. I went on Accutane twice and may be going on it again to help with the acne. I am now 27 and I am trying a holistic approach to help with the symptoms. I work out like a crazy person and keep a really good but not ultra strict diet but I am still 15 lbs overweight. The more overweight I get the worse my symptoms. I tried to go off the pill but that has made my symptoms worse so I am going back on. My periods are irregular no matter what pill I am on and they are terrible. I have to miss at least one day of work or school each cycle. But luckily I don't have too many. Diet is so important I have food cravings like you wouldn't believe but I know that if I am craving it that means I should probably never have it. I only eat organic meat and not too much. It absolutely helped. I eat lots of fruit and veg and NO REFINED SUGARS! NONE! It takes about 6 months but it is true if you can push through it cold turkey you no longer want sugars that much. I will definitely eat a tasty homemade cookie sometimes but that is about it. I hope this is informative for you I def. know how hard it is but make the gym your new friend and you'll be okay.

Published: May 30

I have known I have PCOS for close to 15 years. I just want other females out there to know that weight loss and a change of diet is your best bet. Your problem may not go away, but learning how your body responds to the change in diet and exercise can really change the symptoms of PCOS. I lost a substantial amount of weight, and I no longer have PCO, but I still have the symptoms of it. I'm also on a few different vitamins that have helped with the insulin resistance, and just knowing what's exactly wrong with your body is the key to changing it.

Published: May 30

I am 27 year old mother of a six month old baby. I was diagnosed with a hormonal imbalance at 19, I never missed a period, it would just come longer but over the years it just became normal, 5days every 4 wks. The doc said i would not be able to get pregnant because of this condition so needless to say getting pregnant was a shocker. While pregnant I found out I had a fibroid and after I had the baby I found out I had ten cysts as well on my ovaries. My symptoms are excessive weight gain skin discolorations, and hair loss. I have tried everything to loose the weight but it sure is a losing battle.

Published: July 17

I recently found out I was pregnant, and I was having some pain, so I was sent for a scan. I was told that I had a cyst that was the size of a golf ball. The doctors said they would not touch it, as I was pregnant. Unfortunately, I miscarried and was told to go back for a scan four weeks afterward to see what had happened with the cyst. It had gone away, but I was told that I probably had PCOS because of all the follicles in my left ovary. I had to have blood tests. When the results came back, the doctor said they were all normal aside from having high cholesterol. The doctor recommended that I change my diet.

Published: July 14

I just found out that I have PCOS and I am 29. I was pregnant and had a miscarriage. If that wouldn't have happened, I wouldn't know I had it. No other female in my family has it, and I'm a twin. My doctor is challenging me to lose weight but it is hard because I've gained 80 pounds in the last year.

Published: July 14

I am 26 and after 10 years of suffering, I was finally diagnosed with PCOS. I have been able to have children, but it wasn't until I had lost 50 pounds that I was able to conceive. My two children are 14 months apart, and I had my tubes tied after my second child because we were concerned about me having a third c-section. Because I am done having children, everyone around me keeps telling me that I should just have a hysterectomy and be done with it. I am interested in finding a way to resolve my problem without surgery. I have been on birth control for almost one month and that only seems to make me cry all the time and eat like a pig.

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