Patient Comments: Parkinson's Disease - Diagnosis

At what stage was your Parkinson's disease diagnosed?

Comment from: DJGB, 65-74 Female (Patient) Published: September 21

I was diagnosed with Parkinson's disease a year ago at the age of 68. For several months I had noticed tremors in my right hand and the shaking of my right foot when I was sitting. My normally beautiful cursive writing was now small cramped printing. And I tended to lose my balance. Neurologist had me walk down the hall and said I didn't swing my right arm. I had never noticed! I was in denial for a while as there is no history in my family of parents and five older siblings, but now accept I have classic symptoms. I am taking amantadine and carbidopa/levodopa and am about to start physical therapy to strengthen muscles. My foot still jiggles and toes tend to curl and cramp but I do see improvement. I am fortunate to have the loving support of my husband and family. I make it a point to appreciate every day!

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Comment from: Mary, 75 or over Female (Patient) Published: August 15

I was diagnosed with restless leg syndrome (RLS) at 69. I had begun to have twitchy legs but if I exercised the legs, the feeling went away. When the exercise stopped working, my neurologist prescribed one Sinemet 50/200 at night. For a year or so, I was taking it twice a day. After that the neurologist began testing other drugs but none helped like Sinemet. I was sleepy in the beginning but after 10 years, I no longer experience sleepiness. However, I am up to 3 50/200 and 4 25/100 in a 24 hour period, sometimes it takes more than that. I realize now that the RLS was a precursor to Parkinson's disease but it seems to be progressing very slowly so I am adapting. I keep active and can still pick up and carry a case of 24 1/2 liter bottles of water. And I can still drive my pickup truck at 79.

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Comment from: 75 or over Female (Caregiver) Published: March 11

My grandma has Parkinson's disease, she is about 75 years old it was detected 7 years ago. Right now it's getting more difficult to live for her, because of stiff muscles she can't even move. L-dopa and carbidopa medicines are given, but won"t give much relief. She can"t eat food and the skin is damaging forming ganglia. This is may be the last stage of disease.

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Comment from: Jane, 55-64 Female (Patient) Published: August 17

I have been diagnosed with Parkinson's disease even though I don't have the DaTscan until 22 August. I was being tested for multiple sclerosis and have been displaying symptoms for around 3 years, shaking, twitching, rigidity, neck pain and anxiety. I am a 61 year old female.

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Comment from: bud244825, 35-44 Male (Caregiver) Published: February 07

The love of my life for the last 17 years was diagnosed with Parkinson's last week. In the last year I have noticed the tremors on the left side of his body, and he has a significant loss of strength and mobility in his left arm and left leg. It took me almost a year to get him to go to the doctor. I had long suspected it was Parkinson's but when the doctor confirmed it last week, I really hoped I was wrong. The doctor started him on Sinemet immediately and after a week we are noticing that the tremors are decreasing. We remain hopeful for the future.

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Comment from: Bill, 75 or over Male (Patient) Published: August 08

I'll be 75 in 3 weeks. My Parkinson's was diagnosed about 3 weeks ago. For years I have had symptoms of arthritis and neuropathy, but they were only diagnosed a few months ago after I fired my previous doctor and hired another. It was the onset of tremors starting in my right hand that caused my other symptoms to be recognized as Parkinson's. CARBIDOPA-LEVODOPAER 25-100, 100mg 3 x Daily, has been been very helpful. I can still walk smoothly but the ground under me feels like it is loose or moving. Swallowing and speaking difficultly has been periodically problematic for about 15 years. But I still get around without being noticed. My diet and exercise are normal for me and my weight remains at 155lbs. My main concern is that all my family members have passed on and I live alone. I'll have to make future care arrangements with strangers.

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Patient Comments

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Parkinson's Disease - Symptoms Question: At what age did Parkinson's symptoms first appear, and what are they?
Parkinson's Disease - Treatments Question: What do you do to treat and manage your Parkinson's disease?
Parkinson's Disease - Prognosis Question: Parkinson's is not a fatal disease. What is the prognosis for you, a friend, or relative?

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