Patient Comments: Osteomyelitis - Symptoms

What were the symptoms of your osteomyelitis?

Comment from: betty, 55-64 Female (Caregiver) Published: February 20

I"m 61 years old and when I was 9 years old I had the most excruciating pain in my right leg. I had a hard time walking for 3 days, on the 4th day I couldn"t walk at all. I had a fever and was crying with so much pain. My parents took me to the hospital for sick children. The doctor did a spinal tap and full checkup. I was then diagnosed with osteomyelitis. I spent two weeks in isolation and was given a shot of penicillin every 4 hours. I was then moved to a regular floor for another 2 weeks and was given penicillin intravenously. I was sent home after one month, then spent an additional month at home. I was walking with no problem after the first two weeks at home. I was totally fine after that and have never had problems with osteomyelitis again.

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Comment from: Katman0, 45-54 Male (Patient) Published: January 02

I was a paramedic and I felt odd physically and months later I was mentally confused. This went on for over 18 months and was progressive with time. My friends, family and workmates were concerned and some of them thought I was drinking or doing drugs or both. I had periods of leg pain, sweats and chills, even night terrors. My family did an "intervention" and I was admitted to the hospital, where I was detoxed and diagnosed with a psychotic break by a shrink. At this point things got worse when I went home and I had to pay a nurse to take care of me for months. I was admitted to two other hospitals and I now was told I had cancer, heart problems some kind of infection which did not show elevated white blood cells. I woke up one morning and was in unbelievable pain in my left leg hip down and I could not walk, had temperature 104 and I had lost 70lbs from 220 to 150 in 6 months. I was told to put my affairs in order and go into rehabilitation. The rehab doctor called it in 6 hours, osteomyelitis, an odd sterile type. I was put on IV antibiotics for 12 weeks. I was in the hospital for 29 days, and the doctors and nurses didn't think I was going to live, or walk or I was not going to be all there if I made it through this at all. That was 7 years ago and I am disabled with a lumbar spine that hurts to even sit. This disease wrecked me and is chronic as this is progressive with age, I am now 55. I had septicemia and it took 4.5 years to get federal assistance.

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Comment from: Liv R, 25-34 Female (Patient) Published: December 29

I have pan hypopituitarism and on replacement steroids and other medications. I was diagnosed with a suprasellar germ cell tumor in 2007. I had surgery and radiation to head and spine then. I am visually impaired as a result of tumor crushing the optic nerves. I have had a series of bouts of pneumonia since 2012 which required hospitalization. Septicemia in 2013 required 3 weeks in intensive care. Now I have been diagnosed with osteomyelitis in front sinus bone. Symptoms were initially sinusitis which reoccurred a month later, and treated with antibiotics. Then more symptoms, which caused swelling around the right eye and forehead. I had MRI recently which revealed infection so then I had an operation through my nose for this. I am now on intravenous antibiotics for 4 to 6 weeks, then oral antibiotics.

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Comment from: theteacher124, 65-74 Female (Patient) Published: April 23

I am a 69 year old female. On March 15, 2015 I noticed a small place on the 2nd toe next to the big toe on my left foot. I went to the doctor on March 28, 2015 and he placed me on an antibiotic. After two weeks it had gotten worse so I went back to the doctor on April 10 and was immediately sent to a wound care specialist. Then I was sent on to the hospital. The MRI showed I had osteomyelitis. On April 15, my toe was cut off in order for the infection not to go any further. All through the ordeal I felt no pain. Because of diabetic neuropathy, my feet have no feeling.

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Comment from: Louisiana Dave, 55-64 Male (Patient) Published: August 05

I have osteomyelitis in the end of my index toe. Bone showed. Toe has been very red for a month and I've been through 3 different antibiotics over that period of time including multiple Rocephin injections. I have peripheral neuropathy (20 years) but I'm definitely not diabetic.

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Comment from: 13-18 Female (Patient) Published: May 09

I can guarantee that you will NOT be able to walk if you have Osteomyelitis. 'Severe' pain doesn't even begin to cover the pain I felt when I had osteomyelitis in my femur 10 years ago. I couldn't move any part of my lower body, I was placed in a bed, and when someone would try to pick me up, touch me, move me, I would scream out in agony and a couple times actually blacked out. The doctors had to go into surgery that night because I would've died that night otherwise. It feels nothing like an annoying pain. It's the most intense pain I have ever felt.

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Osteomyelitis - Experience Question: Please describe your experience with osteomyelitis.
Osteomyelitis - Treatment Question: What was the treatment for your osteomyelitis?
Osteomyelitis - Diagnosis Question: How was your osteomyelitis diagnosed?

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