Patient Comments: Multiple Myeloma - Prognosis

What is the prognosis for your multiple myeloma?

Comment from: Sarah, 55-64 Female (Caregiver) Published: August 26

My mum is going through her 10th year of multiple myeloma. This past year she has been in and out of hospital close to 4 or 5 times and we have just been informed we have run out of options. They have given her 6 months. We have tried nearly every drug on offer but there has to be something else.

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Comment from: Lil Deb, 55-64 Female (Caregiver) Published: August 15

My husband has been battling multiple myeloma for 5 years. The doctor said she's going to try to get him 5 years. He has had 2 bone marrow transplants, now he just finished radiation and the results from that was not working; it still looks the same, it's still there. Now they are going to try more chemotherapy again. It's a downward battle. I need to know the whole truth and what is next.

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Comment from: 1224, 13-18 Female (Caregiver) Published: September 21

My best friend's sister who is 12 has been diagnosed with multiple myeloma and she has been given 5 years.

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Comment from: Husband and father, 65-74 Male (Caregiver) Published: September 03

My husband was diagnosed with multiple myeloma in 2011 and received his first stem cell transplant. He was in remission for 2 short years. When it came back he developed spinal cord tumors causing permanent damage. In two short weeks he went from walking to wheelchair. He had a 2nd stem cell transplant and we are hoping this one lasts a little longer. A year ago we didn't think he would see our youngest graduate from college, now it looks like he may get the chance to see her graduate with her masters.

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Comment from: cesar.2, 65-74 Male (Caregiver) Published: October 03

My husband was diagnosed in 2011 with multiple myeloma. His first presenting symptoms were fractured rib and back pain. After numerous tests, x-ray and MRI, he had bone marrow biopsy and we had his diagnosis. We struggled through chemotherapy for 6 months including pneumonia. He had a stem cell transplant in 2012, and his remission lasted 1.5 years. He has had a terrible 10 months. He started chemotherapy again but developed arteriovenous malformation (AVM) in colon, had bleeding issues which have resulted in 30 plus units of blood. His oncologist suggested in-house chemotherapy, which he had 3 individual times. His m-spike got down to 0.1 and we decided to try for stem cell again. Since they didn't get enough for 2 the first time he had to try again. Long story short-yesterday we found out due to all the chemotherapy his bone marrow is not making enough stem cells. So we go home disappointed I n tears and hope is slowly circling the drain. We have been told there are other treatments and we have an appointment with his oncologist soon. Please, if you are going through stem cell, make sure they get enough for at least 2. Maybe if we had insisted they keep trying to get enough for 2 he wouldn't be in this fix.

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Comment from: Todd, Male (Patient) Published: February 24

I have been living with multiple myeloma since 2007. The cancer broke my T8 and I now have a fusion. In 2008 the cancer broke my neck. I also had another fusion. In 2009 I had a bone marrow transplant and am still healthy.

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Comment from: Bea, 55-64 Female (Patient) Published: February 01

I was diagnosed with multiple myeloma in 2001. I had the analogous stem cell treatment and I was in full remission until 5 years ago. My doctor said it was still slow and I have been fine until about 5 months ago. My hip is extremely painful, and I will see my oncologist soon. I am hopeful that they will do another stem cell transplant.

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Patient Comments

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Multiple Myeloma - Symptoms Question: What were the symptoms of your multiple myeloma?
Multiple Myeloma - Diagnosis Question: Describe the tests and exams that led to a diagnosis of multiple myeloma.
Multiple Myeloma - Treatment Question: What kinds of treatment have you, a friend, or loved one received for multiple myeloma?
Multiple Myeloma - Follow-up care Question: What type of follow-up care do you or a relative receive for multiple myeloma?

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