Patient Comments: Lumbar Spinal Stenosis - Experience

Please describe your experience with lumbar spinal stenosis.

Comment from: greg730, 55-64 Male (Patient) Published: March 07

I've recently had the Veteran's Affairs tell me that I have a slight narrowing and spurs, but they will only treat my lumbar spinal stenosis with pain medication. I feel it is more about cost than helping a veteran, the spinal institute says 22 K out of pocket for most endoscopic surgeries.

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Comment from: NAck, 55-64 Female (Patient) Published: December 01

I developed pain in my legs while walking, about 4 or 5 years ago and went to a prompt care facility. They said I had classic arthritis and put me on the lowest dose of meloxicam which I continued with until recently. The pain has gotten much worse recently so I made an appointment with my primary physician with the intent of upping my medication. He asked me some questions and said he doesn't think I have arthritis and ordered me an MRI and made a follow-up appointment with a spine specialist. He strongly suspects lumbar spinal stenosis with claudication or something or other. Anyway, my journey begins.

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Comment from: Ribbs, 55-64 Male (Patient) Published: November 24

I am 62 have had both knees replaced 2 years ago and a triple CABG (coronary artery bypass graft) 2 years ago. Now I have lumbar spinal stenosis, it is hard to walk far and when walking up steps it makes it hard to breathe at times. I am trying to last out the winter and have a laminectomy done in March if I can last that long.

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Comment from: Mohammad, 35-44 Male (Patient) Published: October 21

I am a 40 years old male, having back pain since last 3 years but it was on and off so I ignored it. Six months ago pain started in all joints of my body and it was unbearable. I went to a specialist and he did so many tests but all were negative. Finally I was sent to MRI which showed L4 disc sacralized in lumbar area, disc desiccation in C3 C4, and mild bulge in C4, C5 and C6. I am unable to bend more than 1 minute, can't lift any object as doctor warned me my disc can rupture with only a little pressure. I have osteoarthritis in both knees, shoulders hurt, elbow hurts, wrist pains and all finger joints hurt. I am very depressed, not interested in life at all but still I have to live to raise my 2 small kids.

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Comment from: Ann, 75 or over Female (Patient) Published: September 09

I had a hip replacement in March 2014. I had the surgery with a spinal block and no sedation. The anesthetists tried five times to inject the spinal block but couldn't find a space. They said they would try once more, if not I would have to have a general anesthesia. They put the sixth one higher up on my back and it worked. Since my operation I have developed lumbar spinal stenosis, cannot walk far without getting out of breath, I'm extremely stiff, sometimes my body feels as if it's in a vice. I've recently been offered steroid injection in the bone on my right hip to see if that could be the problem. I have declined that because I have a history of allergies. I have had eight sessions of acupuncture and physiotherapy. I wonder if this condition will get better with time. I don't know if it has been caused by the spinal block or the hip replacement which was on my left hip. My main problem for lack of movement is on the right side, I have to lie on my back to sleep as my body is so stiff, I can hardly maneuver. I also have disc degeneration on L4 and L5. I have always been so active, and just want to get back to my normal active self. The hip replacement stopped the awful pain, but there was a slight leg discrepancy which was finally put right. That stopped my recovery for quite a few months. My surgeon said I wouldn't need a raise in my shoe, which I should have had from the beginning.

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Comment from: Lynda, 65-74 Female (Patient) Published: August 04

Now that I am aware of lumbar spinal stenosis and had to answer a series of questions from my doctor, I've realized I actually started with sciatic pain at age 8; my mom called it growing pains. Through the years it flared up occasionally but not badly enough to inhibit activity but for a day or so. Fast forward to 10 years ago and the pain has increased in intensity and frequency to constant. It is now just constant pain in one side of my buttock muscle. Sitting is very helpful but I'm gaining weight in my middle as I am in too much pain to do much walking or standing. Ibuprofen has been helping but not so much anymore. I'm getting my first epidural this week. I hope it helps! I don't have big expectations though. This is as frustrating as I have been physically active my whole life. From what I've read, I don't think I want surgery that the doctor has suggested.

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Lumbar Spinal Stenosis - Symptoms Question: What were the symptoms of your lumbar spinal stenosis?
Lumbar Spinal Stenosis - Treatment Question: What kinds of treatment, therapy, or medication did you receive for lumbar spinal stenosis?

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