Patient Comments: Low Testosterone (Low T) - Symptoms

Question:

What symptoms did you experience when your testosterone levels dropped? Submit Your Comment

Comment from: Ashwani Sundan, 65-74 Male Published: June 01

The pain from tennis elbow has started to wake me up and I cannot stretch my arm out because of the pain and my arm feels stiff and hurts a lot.

Comment from: Harry, 35-44 Male (Patient) Published: April 20

I have 7 vertebrae fused in neck and spine. The only treatment that gave relief was spinal injections. The doctors did not call my problem ankylosing spondylitis, but from what I read in this article that is what I have.

Comment from: June T., 35-44 Female (Patient) Published: January 19

I am 38 and had a partial hysterectomy almost 3 years ago. Since then my ovaries have significantly decreased in size. My T levels were super low at a 5! My doctor put me on Testosterone cream to use nightly but the side effects are a nuisance. It greatly increases my desires which are not always a good thing. My fear & concern is the long term effects on my body by me not using the cream. I'm already at risk for bone loss/Osteoporosis due to my hysterectomy and failing ovaries. Since i am only in my late 30's I'm nervous to see how this might affect me in another 30 years.

Comment from: Li'l Abner, 65-74 Male (Patient) Published: January 05

I have Low Testosterone, and have been getting shots every 3 weeks for 2 years now. It has made an enormous difference in my life. I regained muscle mass, lost weight, regained my interest in Sex. My Dr. has decided that I should go off of the shots for 4 months so she could determine the cause of my low T. Since then I have gained 10 pounds, I am developing breasts, I have no interest in sex, I don't want to leave the house or do anything with friends and family, I am depressed most of the time. I fear she won't return to giving me the shots because she said that since I have sleep apnea it disqualifies me from T therapy. I don't know what I'll do if I have to live like this.

Comment from: Mr low t, 25-34 Male (Patient) Published: October 18

Hi, I am 32. I have been going to the gym a lot over the last 2 years. My trainer said I should get my testosterone checked because I was not responding to the training. The results came back extremely low. It's explains a lot of things for me, extra breast tissue that cannot be removed no matter how hard I diet or exercise, extreme levels of frustration in everything I do. I have an appointment with a endocrinologist soon to hopefully get on T replacement therapy. Can't wait, I have heard so many success stories from the treatment!

Comment from: confused, 45-54 Male (Patient) Published: February 16

I am 48, disabled blue collar worker. I've had health problems all my life because of low testosterone levels.

Comment from: June T, 35-44 Female (Patient) Published: October 10

I am 38 and had a partial hysterectomy almost 3 years ago. Since then my ovaries have significantly decreased in size. My T levels were super low at a 5! My doctor put me on Testosterone cream to use nightly but the side effects are a nuisance. It greatly increases my desires which are not always a good thing. My fear & concern is the long term effects on my body by me not using the cream. I'm already at risk for bone loss/Osteoporosis due to my hysterectomy and failing ovaries. Since i am only in my late 30's I'm nervous to see how this might affect me in another 30 years.

Comment from: Frank, 45-54 Male (Patient) Published: October 10

I developed low energy and depression a few years ago. I was prescribed antidepressants which never work. I friend suggested a few months ago that I get my testosterone checked. I went to the doctor and had my testosterone level checked. It was 150. My doctor prescribed Testim and within a week I could feel the positive effects. By the end of 30 days I had great energy, sexual interest, no depression, no more crying spells. I went to the gym daily and lost a few pounds. My testosterone lever now on testim went from 150 to 301. Life was great. Last month I went to get my 2nd refill of Testim and was told by the pharmacy that my provider would no longer cover Tesitim. I had to switch to Androgel. I switched to Androgel for 30 days and noticed the depression came back . This time big time with crying spells, more loss of motivation energy, no sexual interest and a very low sense of wellbeing. I contacted my doctor for a follow test of my testosterone Androgel. The test came back at 70! The blood lab showed that I went from 301 on Testim to 70 while on Androgel. My doctor and I are trying to appeal the health care provider to let me remain on Testim. Not all cells work the same for everyone. Some gels your body will absorb better and will affect you more positively. Androgel is not the bioequivalent to Testim. Take control of your health. Doctors and healthcare providers need to be educated. I am hoping to get back on take and survive this.

Comment from: Carl, 45-54 Male (Patient) Published: March 03

I have been recently diagnosed with low T. I was feeling tired all the time, depressed, and things were really getting to me emotionally. I would start crying over nothing. I found a pamphlet on low T at the doctor's office and things started to make sense. The doctor checked me with a blood test, and it was 6.2. I've just started treatment with Androgel and some of my symptoms are starting to improve. I hope once my levels are normal, the others will subside.

Low Testosterone Pictures Slideshow
Comment from: DG, 35-44 Male (Patient) Published: November 04

I had never heard of low testosterone until I went to see my doctor about an unrelated issue. He asked how I felt overall, and I told him I was always tired and irritable and had mood swings. He asked about my erections, and I told him that although I would get erect, it would take more work and just wasn't as hard as it used to be. I just thought it was aging. I was tested and found my level was at 208. He put me on Testim, and after a few weeks, I had the energy back I had lost over the years. I started dropping some weight and gaining some muscle back, most likely because of the extra energy. I started waking up with morning wood just like I used to. I've been on it for two years now and feel great. I also think it improved my brain function. It's too bad more guys can't talk about these issues because it's not considered masculine to admit the problems. I for one talk openly about it, and a few of my buds have been tested and came up with the same results.

Comment from: linebacker44, 55-64 Male (Patient) Published: September 09

My testosterone dropped from 170 to 140 to 118 in five months. My energy and mental acuity dropped quickly. I knew something was wrong with me. I had a low white blood cell count, and my platelets were down to 135k. I had to take a nap before I went to bed at night. I came home from work and slept two hours, went to bed two hours later, and then slept all night. My exercise and strength dropped dramatically. My recent lab tests after two weeks of 1% Androgel showed markedly improved white blood cell and platelet counts. I am no longer irritable and can run farther now without stopping. I have no previous history of heart or lung disease. I previously took no meds except aspirin. Androgel 1% topically has made a big difference in my life. I don't know how long it will last, but for now, I'm pleased with the results. I was miserable before the therapy.

Comment from: CantMan, 25-34 Male (Patient) Published: June 12

I was recently diagnosed with low t. I never thought I'd be dealing with this at my age, I'm only 27. My diagnosis came from a most unfortunate accident I had at one of those donkey shows in Tijuana. Basically I got too close to the stage and was on the receiving end of a kick from a donkey right to my balls. Anyways, since my accident I've noticed my upbeat demeanor change, especially on the golf course. By the time I'd reach the green, my energy was gone and my putter felt like a limp noodle. I had no energy left to putt and would by then I be so negative there would be no chance of playing well. My energy and enthusiasm that I once had for fantasy baseball has since departed and now I'm losing games to last place teams.

Comment from: bionic man, 45-54 Male (Patient) Published: May 10

I believe that men with chronic pain who take opiate meds will have low testosterone levels and could benefit from testosterone replacement therapy. I am a pain patient and the T cream gave me my life back. Check with your doctor if you take opiates for chronic pain.

Comment from: Sk, 25-34 Female (Patient) Published: January 16

I was just diagnosed with low testosterone. It's nice to finally have an answer as to why I have been tired all of the time. I could literally lay in bed all day and still be just as tired as being on my feet all day. I also have had no libido which is really tough because I feel horrible for my husband. I just started a topical cream so hopefully in 1-2 weeks things might start to look up.

Comment from: Struggling, 55-64 Male (Patient) Published: October 18

My symptoms included total loss of libido, as well as loss of interest in just about everything. Weight gain, to the tune of about 100 lbs over the past 15 years. Depression, anxiety, extreme sensitivity to stress, hot flashes and sweating, insomnia, low self esteem, body hair loss, muscle atrophy, erectile dysfunction, body aches, headaches, social anxiety, and very low energy levels.

Comment from: 25-34 Male (Patient) Published: September 26

When I was 14, I was diagnosed with being bi-polar, sudden mood swings and deep depression. I've been on tons of different medications, but none of them ever seemed to help. When I was 32, I went to a new doctor, who discovered I had low T, well below 200. After a series of tests, it was determined that I may have had the condition since I was young. After starting injections three years ago, I (with my doctor's approval) was able to go off all the other medications. And I feel great!

Comment from: Thumps, 65-74 Male (Patient) Published: September 25

My wife of 52 years died and at my age of 72. I lost all sex drive and I had no interest in sex. What a blessing that is! I do have 1/2 dose of testosterone shots every month to maintain other body functions requiring testosterone , but it's not enough to restore my sex-drive, thank goodness.

Comment from: AndyLowT, 45-54 Male (Caregiver) Published: September 20

Most of our patients are first noticing a sluggish feeling and a decreased interest in sexual activity, though we've also had cases of decreased muscle mass, loss of concentration, and heightened irritability.

Low Testosterone Pictures Slideshow
Comment from: finney, 35-44 Male (Patient) Published: September 20

So, I have a slightly different story. Seven and a half years ago I was given prednisone for a sinus infection. It turns out that I'm extremely sensitive to the stuff, so the normal adult dose was an overdose for me. I've had severe depression and anxiety ever since. I had terrible sleep problems (diagnosed with apnea, but CPAP only marginally helps). Recently, things have gotten worse, I'm struggling to fight illnesses (have had an upper respiratory thing for 3 months now) and I'm even more lethargic. I would say that my interest in sex is lower than ever, even though my wife is really interested. I never have morning wood anymore, ever. It's been years. So the doctor did a blood test. My T count was 385, but cortisol level was 27.6 (top of normal range is 28, but remember my prednisone sensitivity). So, I'm set to see an endocrinologist on Oct 1st. Anyone here ever looked at the cortisol/T ratios and found an issue. My GP says that the two together could be a real issue and that a 35 year old male like me should have T numbers in the 500-600 range, not fewer than 400.

Comment from: Koonstheman, 45-54 Male (Patient) Published: August 28

I first found out I had testosterone deficiency when I casually told my GP 11 years ago that I was not performing between the sheets sufficiently well. Interestingly, I had also just been diagnosed with mild anemia. I was put not on a direct testoterone medication. On Clomid my testosterone level went up and the anemia got better. Ten years later, I'm back down under 300. I exercise all the time, but always assumed that I didn't build big muscles because of my structure. I'm also a cyclist and the impact of that on my privates is unknown. My endocrinologist is putting me back on Clomid for 5 months, and then we shall see what we do if that doesn't work. My GP, interestingly, won't go anywhere near this issue

Comment from: 45-54 Male (Patient) Published: April 18

I am a 50 year old male. I lost the drive and energy for just about everything, sex with my wife, and fun stuff with my kids. Sometimes you live with symptoms for so long, that neither your children nor spouse notice much. Often it takes a co-worker or other alert person to point out symptoms. I'm pretty sure I lost my last job due to my symptoms. If I remember right my level was below 100. I tried Androgel in its gel form but I was unresponsive. The doctor then switched me to injections and it was about three weeks until I noticed anything. My wife and I have enjoyed sex again for the first time in what seems like years. I again wake up to spontaneous erections. I'm growing hair on my chest, much to the delight of my wife, and have noticed man boobs, where not much of anything was there before. If you want to count one of these side effects as negative, I feel the whole thing has been a positive. I have been with injections about three months now. My level is up in the 400's. I know people write about testicles shrinking, but I haven't noticed anything, and as long as they didn't shrink away, I would be fine with it. Darn things get in the way anyway…

Comment from: beyonder47, 45-54 Male (Patient) Published: July 19

One symptom of low testosterone that I developed was extreme breast enlargement. What man wants breasts?! Not me! Maybe a more muscular chest but not breasts like a woman! If you decide to have the simple low T blood test (low testosterone levels), be sure to ask for the total as well as free level readings! The free level reading is just as important, if not more so than the total! Here's to your continued health!

Comment from: 55-64 Male (Patient) Published: April 09

Mine started with a total loss of interest in sex as well as loss of muscle mass and decreased size of my testicles. That is certainly not my style so I went to the doctor and found I have a severely low testosterone level and have already started osteoporosis. I am seeing an endocrinologist next week so they can get the lab work necessary for me to start replacement therapy. Also just saw that testosterone requires prior authorization from my insurance. I wish these insurance companies would just keep the hell out of what my doctor and I decide for my health.

Comment from: taho, 55-64 Male (Patient) Published: March 22

I turned 55 and went to my doctor complaining of chest pain. The doctor noticed that my heart was beginning to harden and lower in size. We had to rule out low testosterone because of pain management. Noticed low sex drive, muscle tone loss, testes shrinking. After all the blood work, it was rules out because of the opiate usage, but I was placed on a replacement therapy, and my systems began changing to include my low self esteem and depression changing. Always cheerful now, great sex life, increase body mass, better heart function. Take low testosterone with great interest, and follow what your doctors say to you.

Comment from: Maxi, 55-64 Male (Patient) Published: March 15

I started noticing loss of leg and underarm hair, muscle mass and libido about the time I had a supra-pubic prostatectomy.

Comment from: angry r, 55-64 Male (Patient) Published: March 08

For low testosterone levels, my symptoms were severe chest pain of the left side and the development of a breast. I was given injections every two weeks, but these have now been stopped as I have developed deep vein thrombosis.

Low Testosterone Pictures Slideshow
Comment from: toorywearer, 35-44 Male (Patient) Published: June 08

I don't really suffer from depression or have any particular problems with my body as I have a very physical job, but low sex drive almost lead to a separation in my marriage. A young doctor had my testosterone level checked and put me on Testogel. What a difference! I stay in Scotland where this medication is free, but wonder if I will be on it for life -- no one seems to know the answer.

Comment from: kiwisurfer56, 55-64 Male (Patient) Published: May 03

I am a 55 year old male and was diagnosed five months ago via blood test with a low testosterone level of three. My doctor said I was probably going to end up at an OBGYN … funny man. I had been through a nasty divorce so I didn't care about sex or females, I just worked day and night, spent a lot of time in court. It went to my doctor because I have developed atrial fibrillation in my heart and he sent me for blood tests. After five months I have noticed that there is a murmur in the camp but still feel tired, cranky, muscle mass is still way down and have lately noticed that the size off my testicles seem a lot smaller than they used to be. This worries me so anyone else that has this problem could post something I would appreciate it.

Comment from: Kevin, 25-34 Male (Patient) Published: April 18

I am 32. I've been suffering from fatigue, weakness, depression, and even occasional fogginess and confusion for over a year now … and getting progressively worse. I've had a couple of anxiety attacks and at one point I thought I was having a heart attack or something. Funny though, I still get full erections like I'm 18, but I'm "faster on the draw" than I ever used to be. About six months ago my doctor tested me, heart fine, thyroid fine, testosterone at 247. He put me on Androgel, which I didn't use consistently because I can't stand the gel and didn't want to admit I had that problem. When I went back because the problem persisted, the tests came back at 217. My doctor has given me shots that I will start taking this week. I'm hoping to see some results from this because life just sucks right now.

Comment from: james b, 35-44 Male (Patient) Published: January 05

Clomid 50mg every other day for 4 months is the way to go. Early research is promising. Been on it 2.5 months now and feel 300% better. Studies show levels remain the same 4 months after discontinuation of the drug. Hormone replacement shrinks the testicles and creates a lifetime dependency. If your doctor doesn't offer this treatment modality, find one that does. You will not regret it!

Comment from: partha, 35-44 Male (Patient) Published: May 31

Have been recently diagnosed with low testosterone levels. I was feeling tired all the time, depressed, and things were really getting to me emotionally. I would start crying over nothing.

Comment from: LowTFEMALE, 45-54 Female (Patient) Published: May 23

I am a middle aged FEMALE with a testosterone level of 10 (my doc says it should be 80). It is crippling. I work and rest because I have NO ENERGY to do anything else. I could lay in bed all day, dozing off and on. I do NOTHING on the weekends so that I can work during the week. I use to run marathons. Now I can barely run 3 miles once or twice a week (if I'm lucky). The "big O" is now barely a little "o". My hubby had Low testosterone levels and got shots; now he uses daily cream and he's a new man. But not me....because I'm FEMALE. I wish that I could enroll in a study or SOMETHING to address this. It is HORRIBLE!!!!!!

Comment from: mini-me, 35-44 Male (Patient) Published: April 13

At age 42 I have been irritable with my low testosterone levels, depressed at times, tired most of the time. Very little sexual desire, sometimes none. Maintaining an erection is difficult. Abnormal and excessive weight gain.

Comment from: ar, 35-44 Male (Patient) Published: March 25

I am 40. Few weeks back I had to take fluorescence dye to check eye irregularity. Since then I felt that it was taking time to my penis erect. I went to Doctor and told him about it. He took some blood sample and called me back in two weeks. He found my T level is 170, which, according to him should be between 250 and 850. But during these two weeks I had 9 days off from work. And I found I did not have any problem with erection any more. But the Doctor advised me to take T shots every month. I just took my first shot yesterday. Let's see!!

Comment from: Ed, 75 or over Male (Patient) Published: January 31

My low testosterone symptoms are mainly my legs in walking [weak knees, and ankles, unsteady, my wife tells me I walk like a duck! Now I can feel it in my arms [weak] and I've had a lot of inflammation over the last few years in my lower legs.

Low Testosterone Pictures Slideshow
Comment from: 55, 55-64 Male Published: September 14

I lost all interest in my friends and hobbies. I was constantly fatigued to the point that I did not want to leave the house. I became very depressed and struggled at work on a daily basis before I was diagnosed with Low-T. Since I started, nearly a year ago, injecting myself with testosterone every two weeks my life has been turned around. I have a sex life again, I go play golf, and I enjoy going places with friends and family. The injections literally saved my life.

Comment from: John M, 35-44 Male (Patient) Published: September 07

I went to my doctor for cramping and GI issues as well as headaches and mild chest pain. When my history of head trauma was mentioned he wanted me to have my testosterone checked with the usual blood work. I was at 245 ng/dl, with my age group averaging 668. So I start injections in a few days, along with Clomid to block estrogen. I have fathered four kids, but they were all before I was 23, but I have noticed the quality of my erections were lacking, even though my libido was doing fine.

Comment from: PowerPC, 45-54 Male (Patient) Published: August 26

Age 47, extremely low sex drive, bone loss, joint pain and heart attack. Finally my new doctor did the test and discovered my testosterone was low. Due to liver problems I will not start therapy until it is okayed by my GI doctor who is treating my liver disease. This hormone is metabolized by the liver. No Dr. okay no treatment. It is ruining my life and has been doing so for years. I am hoping I can start the treatment as soon as possible. It sounds like it has helped a lot of men.

Comment from: AB, 25-34 Male (Patient) Published: August 16

I notice that the size of my testis is somehow smaller than normal when I was about the age of 25, but due to lack of awareness and medical help I couldn't do anything. However after 2 years of marriage at the age of 30 there was no conception and I decided to seek medical help. My doctor referred me to testosterone level test and the result is 10.93nmol/L.

Comment from: 55-64 Male (Patient) Published: August 09

I'm 56 and my testosterone level is 297. It is my understanding that the range for my age is supposed to be 365 - 890. I have been experiencing decreasing libido over the past 15 years. My wife is fed up with it.

Comment from: seven7, 55-64 Male (Patient) Published: July 01

My most troubling symptom was fatigue. Despite continuing to exercise on a regular basis, I also noted a distinct loss of both muscular strength and endurance. Although there was no erectile dysfunction, there was a loss of interest in sex. Despite a good diet and an active life style including regular resistance and weight bearing exercise also developed osteopenia.

Comment from: MidOhioMale, 45-54 Male (Patient) Published: March 12

Really noticed when I turned 35. Biggest complaint was fatigue and large mood swings. My breasts were abnormally large for a man, continued to gain weight (mostly fat) at waist even though I did a fair amount of physical work and exercise. In addition noticed a continuing loss of libido (desire) as well as definite difficulty gaining a quality (strong) erection. Now I am 48 and may symptoms have returned. Going back for re-evaluation to see if dosage need adjustment or additional estrogen blocker needed.

Comment from: Don't Be Ashamed, 25-34 Male (Patient) Published: October 10

I started suffering from low t about 2 and half years ago. I first noticed something wrong when I could not maintain an erection. Within a year I could barely get an erection. I started on Androgel and I saw immediate results but six months later my symptoms were worse. I went to the gym 4-5 days a week mixing cardio and strength training but I could barely gain muscle. My relationship suffered and I fell into a major depression. A few months back I visited a urologist who referred me to an endocrinologist. Turns out I have a prolactinoma which is a benign tumor on the pituitary. It secrets prolactin which is a hormone that nursing women secret. The hormone's main function is to suppress sexual functions. After a few eye exams (pituitary tumors can affect the optic nerve) and an MRI to confirm the tumor, my doctor started me on cabergoline. It prevents the tumor from secreting the prolactin. I saw instant results. It's only been two weeks, but I am now getting an erection almost daily. I would advise anyone experiencing erectile dysfunction to have your physician check your prolactin levels.

Comment from: Wes, 35-44 Male (Patient) Published: May 03

I am a 38 year old man, recently diagnosed with low testosterone levels. I had several blood tests and readings were between 180 and 205. I also had MRI of pituitary glands but that was all clear. So long story short couldn't find the reason of my low levels.

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Comment from: DN, 35-44 Male (Patient) Published: April 18

I have been taking injections for low testosterone levels for nearly a year now. I just had my levels checked last month to find out that my levels were lower than before I started the injections. I have been taking 2ml once a month and have now been prescribed 2ml every two weeks and am hopeful that I will soon feel better. So far this has been pretty depressing and I am considering going to a urologist to see if there are further problems that are preventing me from getting better.

Low Testosterone Pictures Slideshow
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