Patient Comments: Lichen Planus - Prognosis

Discuss your experience with lichen planus. Have you had any recurrences?

Comment from: cat, 55-64 Female (Patient) Published: December 30

I have had lichens planus for over 7 years in the vaginal area. It is chronic. My husband and I have not been able to have intercourse because it is just too painful. I am constantly sore, red and the itching is overwhelming. No physician has found a treatment that works for me. My dermatologist sends me to my gynecologist. My gynecologist sends me back to the dermatologist. No one wants my case. I am miserable.

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Comment from: GERT, 65-74 Female (Patient) Published: December 19

I have recently, about a year ago, been diagnosed with genital lichen planus, which is being treated with clobetasol ointment. Sometimes the area is more irritated than other times, the ointment working part-time it seems. (I have no itching, thankfully.) Also I have some bumps on my lower back, though not causing me any real problem. Today I had an appointment with my dentist because I noticed lesions/sensitivity in my lower jaw area. I had hoped it wasn't this planus stuff, but apparently it is! (I need to mention that I have been under stress a year ago taking care of a very cantankerous 95 year old mother.) As a ten year old child I had very large boils for over a year's time. I am wondering if there could be a relationship between the boils and the lichen planus.

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Comment from: aruna, 45-54 Female (Patient) Published: December 13

I noticed hair fall in patches 15 years ago. My doctor diagnosed it as alopecia areata and started treatment. It didn't help much. Then after a few years I developed red vaginal mucosa with occasional cuts which was causing pain. No diagnosis could be made. Then I developed breast cancer 5 years ago and underwent radical surgery. It was ER, PR (estrogen receptor, progesterone receptor) negative ductal carcinoma. I underwent vulvar colposcopic biopsy which came out as lichenoid vulvitis. Now I have gums which are painful. Steroid cream doesn't help.

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Comment from: Twink, 55-64 Female (Patient) Published: August 14

I have had oral and genital lichen planus for many years. The following protocols have been helpful for me. Oral antihistamine like Claritin, Derma E Stop itch cream, Aquaphor and aloe gel. The creams heal, moisturize, and alleviate the itch. Also try airing your crotch at night wearing night gowns, it also seems to be helpful. I tried many things especially cortisone creams which really didn't help. It's a very annoying condition. Good luck and keep trying different things.

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Comment from: a patient, 55-64 Female (Patient) Published: July 02

I've had erosive lichen planus for 32 years. It is extensive, severely painful, and involves all the mucosa areas (an ear, esophagus, etc.). There doesn't seem to be a good treatment that effectively controls pain without severe side effects.

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Comment from: ss14024, 35-44 Female (Patient) Published: October 08

I have lichen planus on my calves, back and front. I have had it for years and it won't go away. I went to two different dermatologists but all they gave me was creams that didn't work. They don't know how to treat it. The summer heat makes it worse. I got off my allergy shots and I think that helped a bit.

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Comment from: vip, 19-24 Female (Patient) Published: August 12

I am suffering this problem almost from 7 yrs. My affected parts are my legs n my lower back. I feel very shamed of having this problem. I have taken several medicines and ointments, but it all waste. I want to be cure soon.

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Lichen Planus - Symptoms and Signs Question: What were the symptoms and signs of your lichen planus?
Lichen Planus - Diagnosis Question: What types of tests or exams led to a diagnosis of lichen planus?
Lichen Planus - Treatment Question: What forms of medical treatment, including medication, did you receive for lichen planus?

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