Patient Comments: Klinefelter Syndrome - Treatments

Question:What was the treatment for your Klinefelter syndrome?

Comment from: gabastu72, 35-44 Male (Patient) Published: April 14

I was diagnosed with Klinefelter syndrome at 19. I am now 42, and a type 2 diabetic. My penis stopped growing in my early teens, I have zero self-confidence, an ex-wife, and I have had one disaster after another. With Testogel I don't really notice much of a difference. I had tissue removed from my chest 20 years ago but they have grown back. Now medical issues are getting worse, for sleep I need sleeping tablets, even then I am awake more often than I sleep. Now I have nerve damage in my feet and legs. I am a recovering junkie and I suffer depression, I live in pain from headaches to shooting pain in my legs and feet.

Comment from: Sixdash8, 55-64 Male (Patient) Published: January 05

I was discovered to have Klinefelter syndrome at age of 19 in 1973. I have been on various testosterone treatments from shots, gel to gel patches. I was six foot, eight inches tall at 19 but weighed only 173 pounds. I find that eating healthy, keeping alcohol intake down, and not smoking helps. But I am also on medications for LDL vs HDL ratio being off, Paxil which helps with mental stability and managing pain, and with type II diabetes I have to also be in control with diet.

Comment from: Lab Rat, 65-74 Male (Patient) Published: July 28

For Klinefelter syndrome I had two hormone shots when I was 14 or so and a prescription for testosterone, which I still get.

Comment from: Foxy, 55-64 Male (Patient) Published: May 06

I was diagnosed when I was 42, while waiting for spinal surgery. During my school years, and even today, I have always been a loner. When I was about 15, I had chicken pox and mumps straight after each other, and this was thought to be why I had no sperm count and small testicles. I stopped growing at 19 and am 6 foot 7 inches. All through my life I have had mixed feelings and attractions on sexual matters. I married in 1985 and adopted two children with Down syndrome. I am presently 59, and although during school years was deemed a dreamer and not allowed to go on to higher learning at school, I received a Bachelor of Arts in 1998, and now am a manager. So, if you have XXY, accept it and then enjoy the ride.

Comment from: Daks, 35-44 Male (Patient) Published: April 15

I was 26 when I was diagnosed with Klinefelter's syndrome. Little did I know what it was. First, it was injections, then patches, then implants. By far, implants worked much better than anything. Now I'm on Axiron. I apply it twice per day under my armpit. It works much better and quicker. I have fewer migraines and a better sex drive, as well.

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Klinefelter Syndrome - Symptoms Question: What were the symptoms of your Klinefelter syndrome?
Klinefelter Syndrome - Physical Development Question: If you or someone you know has Klinefelter syndrome, describe challenges in physical development.

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