Patient Comments: Kawasaki Disease - Treatments


What treatment has been effective for your Kawasaki disease? Submit Your Comment

Comment from: sanchezbuick, 35-44 Female (Caregiver) Published: May 16

My daughter is 20 years old now, she got kawasaki at 6months old. She was given aspirin after a week out of children's hospital. The medicine helped the swelling go down but she still has to go to the doctor for the rest of her life. She has the Arrhythmias symptoms so the Aspirin worked for her but didn't get rid of it. Lately for the past years she is doing great and very active. So now she only goes to see her doctor once every year and a half. It's just one of those things that happens to people, but I'm hopeful for my daughter and I'm very protective with her even though she is 20 years old now, she understands her condition and she's very careful. I wish all the children in the world that has kawasaki love and hope, and be strong for all the parents out there.

Comment from: honeycakesmom, 3-6 Female (Caregiver) Published: March 16

My 5 year old daughter has recently been diagnosed with Kawasaki's Disease. She had a first dose of IVIG and went well...for three days....then the fever returned. Immediately, the doctors said we needed a second dose of IVIG and "it can't hurt her," however, of the small percentage that there would be a reaction...she had one. When the antibodies from the IVIG entered her body they began attacking the "bad" stuff causing the Kawasaki's but it also began attacking and destroying her red blood cells. Her hemoglobin count dropped from a 10.4 to a 4. That started a whole new serious situation. She had to have a blood transfusion and remained in the hospital for another week. She is home now, but slowly recovering. The IVIG seemed to somewhat work, but the "reaction" to the second dose is causing a lot of other issues.

Published: April 15

My son was diagnosed with Kawasaki's at 13 months old. He was given the gamma globulin treatment over a 24-hour period. The fever reappeared for a couple of days afterwards, but then subsided. We saw the doctor once per month for a while. Eventually, once he turned 5, we were in the clear. He's now 21 years old and the Kawasaki's was never a factor again. We were very lucky in his case, as it was diagnosed early on immediately after the onset of the fever and strawberry tongue. There is hope.

Comment from: ALMS, 35-44 Female (Caregiver) Published: June 11

My son who is now 2 years old was treated for Kawasaki disease at 8 months. He had every symptom name in this article. He had a disease account of 18 when it's supposed to be 1. He had to have two doses of the medicine; it got his disease count down to a 3 so the doctors were satisfied with that. He had to do a follow up visit and have his heart checked with the EKG machine and take a half of an aspirin once a day. The aspirin seemed to help. He was clear from the doctor and doesn't have to return until the age of 5 years old. I still worry that it may return, because sometime he feels warm to me. That was an awful experience we had to go through but mostly him. We stayed at the hospital for a total of 6 long days.

Comment from: babean41, 35-44 Female (Patient) Published: December 24

My son was diagnosed with Kawasaki's disease when he was 2 years old. It took them almost 2 weeks to figure out what was causing his fever. Once diagnosed, he was in the hospital for 2 days, and had to get an ultrasound every 3 months and he had to take an aspirin a day for a whole year. He's now 12 and still going strong.

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