Patient Comments: Hepatitis C - Experience


Please share your experience with hepatitis C infection. Submit Your Comment

Comment from: BOHICA, 65-74 Male (Patient) Published: May 16

I was infected while in the US Army over 33 years ago when hepatitis C was not known, I was wounded and got blood. I knew nothing until in 1999 while working for the US Government in a cross border operation in Mexico, I got ill, was taken to a clinic in Arizona, blood tests and biopsy done, and learned for the first time I had hepatitis C stage IV. I tried Interferon, etc., for two years which did not work, got very ill, and am unable to obtain transplant. I retired and tried other treatments, including the new drugs by Gilead, which worked for a while then it returned. I recommend all people get tested as soon as possible.

Comment from: AnnD, 65-74 Female (Patient) Published: February 02

I was diagnosed last June with hepatitis C. I thought they were mistaken as I had so symptoms. I had known that I had it in the past, but thought it was gone. Being sent to a liver specialist who then put me on Harvoni for 8 weeks was what worked for me. I was taking no prescription medication for anything for a long time, I then suffered severe side effects. Knowing I'd be healed from it, I began journaling my writings so that I could more fully share my story with those who might benefit from it. I had my 12 week post Harvoni blood test a few weeks ago and it shows, as expected, to be totally gone. When I started the medication, my VL (viral load) was over a million and now it is zero. So glad to have found a medication that really works and is nearly 100 percent effective for many people.

Comment from: HEPMAN, 55-64 Male (Patient) Published: August 25

I contracted the hepatitis C virus in boot camp 1969 from jet air gun inoculations. I didn't know I was sick until 44 years of age. I got it at 18 years of age. I refused the treatment Interviron because only 60 percent of cure. I waited till I was 55 for the treatment. I took the Interviron for 10 months then quit because of side effects. Then I got listed for a transplant and they found a donor for me at 57. If you are a transplant patient this will extend your life for 10 years. I am now finishing Harvoni ribavirin therapy 12 weeks and now have cleared the virus. I was at stage 4 cirrhosis so now I have gotten 2 chances at life. I am so thankful for all those who made this possible. I hope this virus stays away forever. Harvoni chews this virus up and spits it out. Good luck to all of you who have this dreaded monster on your back. I had it for more than 40 years. The sad thing about this virus is you don't know you are ill. Get blood work done yearly to check.

Comment from: mm, 55-64 Male (Patient) Published: January 19

I was treated for hepatitis C in 1990. Follow up blood test showed successful elimination of the virus. My present health care provider tells me I don't have hepatitis C but an antibody or footprint in my blood. I am worried about the chances of me contaminating anyone.

Comment from: Calvin, 55-64 Male (Patient) Published: December 11

After inoculations in Army I was hospitalized with what they called in 1972 ARDS. I came very close to dying as my last memory was ice baths to drop my temperature. Then came the hepatitis C diagnosis in 1996. Looking back I was absolutely infected with an air gun and had sepsis from the cross contamination. My lungs are damaged from this experience and I am not a drug set, alcoholic, or any other high risk which the VA (Veterans Affairs) attempts to label you as they don't want to take responsibility! I put up with this setback for forty five years but now I am claiming the disability they gave me and want to bill me to care for what they gave me!

FDA Logo

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Subscribe to MedicineNet's General Health Newsletter

By clicking Submit, I agree to the MedicineNet's Terms & Conditions & Privacy Policy and understand that I may opt out of MedicineNet's subscriptions at any time.