Patient Comments: Hemoglobin - Helped With Your Diagnosis

Question:Please describe how Hemoglobin has helped in your diagnosis.

Comment from: Karmel, 55-64 Female (Patient) Published: May 01

I have rheumatoid arthritis and been on methotrexate cancer drug for many years. The hemoglobin count was always low. I stopped methotrexate because of all its side effects. I started taking SAM-e methionine 400 mg and within 6 weeks my hemoglobin returned to normal and quite a few points into the normal range. SAM-e also corrected my hypothyroid, helped my joints several of which the rheumatoid arthritis is no longer attacking. CRP is now 8 below the range for rheumatoid and ESR 1. Rheumatoid factor is down from 1698 to 800, hopefully will fall further the longer I am on SAM-e methionine. SAM-e does not suppress the immune system, thank goodness. It modulates instead.

Comment from: 25-34 Female (Patient) Published: July 19

My hemoglobin levels have always been very low with very high bilirubin levels. I was diagnosed with Gilbert's disease, which causes high bilirubin levels. My skin turns yellow when I am sick with a virus, and the whites of my eyes have always been yellow. After two miscarriages, my OBGYN sent me to a hemotologist just to see if there was anything going on. After going through several blood tests and a painful bone marrow aspiration, it was determined that I in fact have hereditary spherocytosis. It all began to click with all of my symptoms ... yellow skin and eyes, gallbladder removal at early age, enlarged spleen, anemia, hemoglobins always hang around 8 or 9 (especially during pregnancies -- hemoglobin at one point was a 5 but mostly stayed around 7 or 8). I then began to look at my dad who exhibits all of those same traits! Now my daughter has it (17 months old), and is treated by a pediatric hemotologist. Just thought this info might help someone seeking answers to their own symptoms!

Comment from: JCB7057, 45-54 Male (Patient) Published: April 05

I just turned 50, and I was very tired and had no energy. I went into the doctor and they did the blood test and found that my hemoglobin was 7.0. After many tests, they found that my spleen was enlarged and spots near my colon. After a bone marrow test, they found I had non-Hodgkin's lymphoma -- cancer. I have since been through my chemo treatments and have been cancer-free. My hemoglobin is on the rise.

Comment from: Rhonda, 75 or over Male (Caregiver) Published: March 08

My husband had Non-Hodgkin's Lymphoma, but was declared in remission Dec. 2011. Since then he has remained in Neutropenia and has been hospitalized 3 times for low blood counts. The last being 17 days with 10 of that being in ICU with double pneumonia, and kidney failure. I can't even begin to count the number of blood transfusion he has received from hemoglobin, to platelets, etc. He was home for 9 days and back in the hospital with chest pain. No heart problems, but low hemoglobin that could have caused the chest pain. He also continues to have an enlarged spleen. This is a problem because it appears the spleen is not working properly and therefore continues to destroy the red cells and platelets. It could still have the lymphoma in the spleen, but he has been too ill to remove the spleen or even do any invasive testing to see. Probably will have another bone marrow biopsy to see where that is at. Last one he had in Dec. was good. It's a very hard road to travel and one that he will probably fight for the rest of his life.

Comment from: ashysmom, 3-6 Female (Caregiver) Published: October 25

I am the mother of a wonderful 5 year old girl. From the time she was only three days old we found out that she had hereditary spherocytosis. She had one blood transfusion when she was about a month old. Then, out of nowhere, this July we took her to the hospital because she was very tired and yellow. Her hemoglobin was at 4. The doctor said that she could have heart failure. The doctors have always told us that she is okay if she stays above 11. Well she is very yellow and tired again, so I took her to the doctor again today, which by the way, if you live in a small town like ours make sure your children only get sick Monday through Friday because the doctors, nurses and hospital staff get really inconvenienced when you show up on a Saturday, anyways, her levels are at 10.4, and they sent us home. They told us to "keep an eye on her." Luckily my sister in law is a nurse. She is a great help. Please! Just watch your children for these rare signs. This is a tricky little blood disorder!

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