Patient Comments: Hashimoto's Thyroiditis - Diagnosis

How was your Hashimoto's thyroiditis diagnosed?

Comment from: Mei., 35-44 Female (Patient) Published: June 23

I was diagnosed with Epstein-Barr virus infection 30 years ago. I had five months of constant headache, alternating fever and chills, brain fog and total fatigue. I went to bed tired and woke up tired. There were days I couldn't sleep at all and days I slept 20 hours and still woke up fatigued and with barely energy to get dressed. I felt lazy, slothful and stupid because I couldn't hold an intelligent thought. I felt like nobody believed it was real. I've been okay until April. It started with the fatigue all over again.

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Comment from: LydiaW, 35-44 Female (Patient) Published: January 07

I was diagnosed with Hashimoto's thyroiditis at the age of 26. I am 43 now. When I was 21, I had pneumonia and then bronchitis shortly after, and started showing symptoms. It wasn't until I was 26 that I was properly diagnosed. My TSH levels had stabilized with Synthroid and I had no symptoms, until the birth of my daughter six years ago when I was 37. Since then, I've gained 50 pounds despite exercise and eating healthy, am extremely tired, and have very dry skin and some hair loss. Imagine being an elite runner and gaining 50 pounds and four dress sizes, while in training for a 10K. I had gone to the same endocrinology practice for almost 15 years, and have switched recently after being told that I was the one at fault for the weight gain and fatigue, because my TSH was in the normal range. The new endocrinologist told me that, although my TSH levels are in the normal range, they are not my normal, as everyone is different, and said he would steadily increase my dosage every few months until I feel better. He said, after reviewing my TSH tests from the past 10 years that my TSH level had spiked after the birth of my daughter. All I can say is, if you still feel lousy and your endocrinologist/doctor refuses to do anything different, fire them and find someone else. I should have done it much sooner. I now feel like I have a chance to run a 10K this year. I don't expect to lose the 50 pounds quickly, but I believe that I now will be able to at least lose enough of the weight to run a 10K again and see the other symptoms diminish.

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Comment from: MN Girl, 55-64 Female (Patient) Published: April 16

I had been on thyroid medicine for years. My TSH jumped. MY gynecologist is the one who caught it. I told her about the deep chills I had been having and the terrible muscle cramps I had been getting in my thighs. She did blood work and diagnosed Hashimoto's thyroiditis.

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Comment from: Esky, 45-54 Female (Patient) Published: December 24

I had a lump in my thyroid which biopsy came back inconclusive, although blood tests show thyroid is working fine. The specialist gave me two options, one to remove the lump as to ensure there was no cancer or do nothing. I chose surgery as I was given 15 to 20 percent chance that it could be follicular neoplasm cancer. The biopsy of the tumor showed no cancer but Hashimoto's disease. Therefore I had inflammation of the thyroid but it was working fine. I am now recovering from the surgery of two weeks ago.

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Comment from: Kat, 45-54 Female (Patient) Published: April 01

I have been fighting an uphill battle with my "former" family doctor for years. I knew something was wrong, I had anxiety, depression, rashes, hair falling out, weight loss, weight gain, lethargy, extreme fatigue, and those were the mild symptoms. Then came the Vitamin D deficiency, the B12 deficiency, I knew I had a multi-nodular goiter, but according to my doctor, if it wasn"t causing issues and my hormone levels were normal, then I didn"t need to have any additional tests run. Finally, this past year, after being officially diagnosed as Type 2 diabetic and dramatically altering my diet, and really changing my lifestyle, you would think, she must feel a lot better, nope, it made it worse. So, I started researching, basically self-diagnosed, and then changed doctors. Now I'm officially diagnosed with Hashimoto"s thyroiditis, but according to my current endocrinologist, I don"t need treatment, because even though my antibodies are outrageously high, my other levels are normal, so I should just live with all the other symptoms. So now I have a name for what's wrong with me, but still no treatment. Hard to find good health care, it's pretty bad when you have to diagnose yourself, then just get a doctor to confirm it.

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Hashimoto's Thyroiditis - Symptoms Question: The symptoms of Hashimoto's thyroiditis can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Hashimoto's Thyroiditis - Treatment Question: What types of treatment or medication have you received for Hashimoto's thyroiditis?
Hashimoto's Thyroiditis - Pregnancy Question: If you have Hashimoto's thyroiditis, please share your experience with conceiving and/or pregnancy.

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