Patient Comments: Gastroparesis - Describe Your Experience

Please describe your experience with gastroparesis.

Comment from: MaryBeth J, 55-64 Female (Patient) Published: October 21

I was diagnosed with gastroparesis in February of 2014. My symptoms started 7/4/13. At first, the only symptom was uncontrollable burping. The burping has continued to worsen causing me to go out on disability on 12/14/13. On 12/14/13 I was wearing a size 1X. I am now wearing a small. I have lost over 70 pounds now and continue to lose. Many other symptoms have now manifested and I am unable to eat enough to support my body. The doctors are very blas´┐Ż about it but I think I will be dead before next Christmas. Fortunately for me, my gastroparesis has taken a different turn than most and I am not in any pain. I just burp, pass gas, have insomnia, get dizzy, feel weak, have at least one upset stomach each day and continue to lose weight.

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Comment from: MaryBeth, 55-64 Female (Patient) Published: September 24

I was diagnosed with gastroparesis about a year ago. My symptoms started with constant burping. I was overweight and have lost 60 lb. in the last year. I don't have nausea or vomiting so the gastroenterologists say there is nothing wrong with me. They basically won't do anything but give me horrible medications because my gastroparesis is not that severe. It can't be severe because I don't vomit. I have very little appetite and can only maintain my weight by loading up on sugars. I absolutely refuse to go the feeding tube route. I will starve to death first. Of course, the added sugars will give me diabetes so I try to stay away from them but that just means I keep losing weight. I've been told that my weight will magically stabilize when I am no longer overweight. I have just a couple of pounds to go. Then I'm going to magically get well! Hooray!

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Comment from: minnie, 55-64 Female (Patient) Published: September 09

I have been misdiagnosed for stomach problems when in reality it was gastroparesis. I suffered extreme pain like no other, it felt like my insides were ready to burst with pain and then it went back to my mid-spine. Nothing I did would help; I wound up twice in two day in the emergency room (ER). I am new at this and cannot imagine going through this over again. I am taking Reglan and a capsule to help the acid in the stomach. Doctors tell me there is no cure and eventually it will paralyze by stomach.

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Comment from: thisbudcando, 35-44 Female (Patient) Published: July 25

I have gastroparesis believed to be gotten from a car accident in 2009. I went until February 2014, they had been telling me for years there is nothing to do but pills. But thanks to a doctor I now have an experimental pace maker called the Enterra pacemaker. It is on the abdomen. At first the thing seemed to cause loads of pain and never seemed to keep me from vomiting on a daily basis. Now after many setting changes on the machine, we seem to have found a setting and it's been 30 plus days without vomiting. There is hope out there! I lost over 200 pounds and my heart and liver were in failure due to lack of nutrients. I am eating and holding food down and my weight is stable for the first time in a year!

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Comment from: C from kansas, 45-54 Female (Patient) Published: July 11

I was diagnosed with 10 years ago with pernicious anemia (B-12 Deficiency), and irritable bowel syndrome (IBS), then 8 years ago with primary biliary cirrhosis (PBC) and a fatty liver. A little over a 1 year ago I was diagnosed with gastroparesis, fibromyalgia, and recently with osteopenia. I am on many vitamins and medicines ursodiol, levothyroxine, Nexium, domperidone, Cymbalta, calcitonin, tramadol, sucralfate, and promethazine for nausea. I am at a stage now where I am always feeling fatigue, soreness, headaches, itching, and nausea. I go through spells from constipation to severe diarrhea and vomiting several times a day to feeling this way for weeks. I keep telling myself it could be worse. I'm just sick of being sick all the time never knowing when things will flare up.

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Gastroparesis - Diagnosis Question: How was your gastroparesis diagnosed?
Gastroparesis - Possible Causes Question: What do you believe was the cause of your gastroparesis?
Gastroparesis - Symptoms Question: What symptoms do you experience with your gastroparesis?
Gastroparesis - Treatment Question: What kinds of treatment, including diet and medication, have you tried for gastroparesis?

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