Patient Comments: Fish Odor Syndrome - Treatment

Question:

Discuss your diagnosis of and treatment for fish odor syndrome. Submit Your Comment

Comment from: Jay, 35-44 Male (Patient) Published: November 14

I am healthy, work out and try to avoid choline rich foods. Copper chlorophyllin doesn't help fish odor syndrome. I recently started taking enzymes, zinc, and probiotics, with no positive results. I take Deodorex, which cuts down my sweat a lot. I've had this for at least ten years and am tired of living with this. Since I live in Lubbock, no testing exists in my area. I'm at such a loss at what to do to control this.

Comment from: welive, 45-54 Female (Patient) Published: January 13

I was diagnosed with TMAU (trimethylaminuria) or fish odor syndrome about 15 years ago. Giving it a name made it a little easier. Medicine of any kind for depression or any amines made my condition 10 times worse. I have accepted my condition and I am strong, I am not afraid.

Comment from: balley, 35-44 Female (Patient) Published: December 23

After 5 minutes after I take shower I smell like fish.

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