Patient Comments: Cytomegalovirus (CMV) Infection - Symptoms

What symptoms and signs did you experience with CMV?

Comment from: Shasha, 55-64 Female (Patient) Published: April 10

I started feeling exhausted, no energy, body aches, burning eyes, could not eat, everything tasted terrible, and a swollen gland. At first the doctors were telling me it was a virus and it needed to run its course. But after 3 weeks of still not feeling well, my primary doctor took blood work. I was diagnosed with CMV (cytomegalovirus) and said it takes anywhere from 6 to 8 weeks to even start feeling yourself. Today, April 7, is the first day that I have been able to go to work and not fall asleep at my desk and after losing 8 pounds, I can finally eat again.

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Comment from: BeckieC, 55-64 Female (Patient) Published: September 06

I suffer CMV (cytomegalovirus) as a result of military vaccines. Since 1964 all vaccines that are cultured on animal kidney tissue use green African monkey kidney tissue. Before 1964, vaccine manufacturers used varieties of monkeys for culturing vaccines, and wound up with SV40 or 40 different viruses from varieties of monkeys. I just wanted to say that CMV does not present with sore throat. Instead, we suffer enlarged, swollen, salivary glands inside the widest part of the jaw, at the very back of all 4 molars, everything under the tongue. Swelling goes up behind my ears and makes my ear canals tender. Tinnitus is so much worse when CMV reactivates. Salivary glands grow so big, it's difficult to speak. Because salivary glands take up all the space under the tongue, I bite my tongue more frequently. When I put any type of food in my mouth, salivary glands at the widest part of my jaw burn like fire, not like spicy food. Sometimes that CMV burn is so severe that it brings tears to my eyes. It is hard to project my voice because my tongue is higher in my mouth, gets in the way of opening my throat to speak louder if I could.

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Comment from: Girl, 25-34 Female (Patient) Published: July 01

I was hospitalized for 2 weeks and diagnosed with CMV (cytomegalovirus, herpes 5). I am 25. I have been diagnosed with severe Crohn's for almost 3 years. I had a 101 to 104 fever for 4 weeks. I was very sick, burnt out brain, naps at work, just trying to break the fever. With my joint and muscle pain and extreme exhaustion, I could not make it up stairs without sitting down. I was taking 100 to 150 mg of Imuran for Crohn's for about a year when I became very sick. My lab work had shown poor WBC and RBC counts among other things. As I got sicker, my gastroenterologist increased the drug and I declined. I finally after a couple of months saying 'I need to get an opinion from an infectious diseases doctor,' I spiraled downhill and was hospitalized for the CMV infection.

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Comment from: Bevj, 65-74 Female (Patient) Published: April 20

I was in my early 40s when I was diagnosed with cytomegalovirus (CMV). A lot was going on in my life. My sister was diagnosed with chronic mononucleosis and hepatitis. I was running back and forth, my son was sick, long hours at work, and then when I got tired at first I ignored it. Then it got where I could not stay awake. I thought I had contracted the mononucleosis. I went to the doctor got tested it was negative. Then he said there is one more test for a virus that acts the same. Titer was off the roof. I was over a year getting better. I still have times where I am so tired I cannot get out of bed for days. I always worry I might give it to someone else. More needs to be done to cure this. If they can cure hepatitis C, why not CMV!

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Comment from: Jill, 45-54 Female (Patient) Published: April 12

I started out getting thrush, couldn't eat, and would gag on everything. After I lost 10 lb. the doctor did an EGD and it showed thrush in my esophagus and stomach. They said it was my immune system and gave me antifungal medicines and said I shouldn't get it anymore; that was 5 years ago. Since then I have had thrush at least twice a year and my ulcers were multiplying. I told them about losing a child to cytomegalovirus (CMV) and they tested me for it (which they should have done in 1993 when I lost my son), but they didn't till I asked them to in January of this year and it was positive. So that is why they told me I get thrush. Now I blame CMV on my ulcers also. I get worn down faster now than I did before my CMV kicked in. And it kicks me for a good month when I get sick.

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Cytomegalovirus (CMV) Infection - Prevention Question: Please share tips and suggestions for preventing CMV.
Cytomegalovirus - Risk Factors Question: Do you have any risk factors for CMV?
Cytomegalovirus (CMV) Infection - Treatment Question: What treatment was effective for your CMV?

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