Patient Comments: Connective Tissue Disease - Diagnosis

How was your connective tissue disease diagnosed?

Comment from: Liebran, 65-74 Female (Patient) Published: January 10

My blood test showed high levels of immunoglobulins. And the symptoms of connective tissue disease were joint pains, costochondritis (frequent), muscle aches and fatigue.

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Comment from: carol, 55-64 Female (Patient) Published: March 20

I was finally diagnosed with connective tissue disease after anti-nucleic antibody (ANA) blood test was done.

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Comment from: Jan, 75 or over Female (Patient) Published: January 16

I had stomach ache for hours from November 2010 until January 2011. I saw the family doctor, was sent to surgeon and on 1/25/2011 was operated on for left groin hernia and partial gangrened bowel. I had another hernia in May 2011, another double one in August 2011 and bowel put back in, one more in May 2012 and numerous holes and repairs. I had infected gall bladder removed 11/25/2014 and doctor found a large hernia again and I just had 5th hernia involving intestines repaired 1/8/2015, which was about the size of softball and grew a lot before removal last week. I was told connective tissue is no longer holding and he used patch, tissue, and patch over that. I have no clue how many more but he said there would be and that there was nothing that could be done about it. I am trying to find out why and if medicine can be used to treat it. I am in painful recovery and trying to heal. I wish someone could help me. I am 78 and have chronic back pain, and many health problems. I don't know if there is any doctor who diagnoses it, other than the surgeon in my area.

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Comment from: LindseyNS, 19-24 Female (Patient) Published: July 15

My connective tissue disease was diagnosed when I had extreme pain throughout my chest and left side and pain and swelling in my knees and ankles, with painful inflammation under my skin throughout my legs.

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Comment from: Mary, 45-54 Female (Patient) Published: May 24

Four plus years ago I had shingles around the top of my chest down my right arm to my elbow and around my left shoulder to the middle of my back. It was very bad, and I had viral treatment etc. I had large scabs that drove me mad itching. I was ill for several weeks, but I recovered slowly. Now after 4 plus years, I still have muscle pain. It is very painful, painkillers help but it never goes away.

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Comment from: dismissed, 25-34 Female (Patient) Published: October 31

I've had chronic aches and pains since childhood. Initially it began with ankle pain that was dismissed as "growing pains." By the time I was 10 I started having lower back aches and by the time I was 18 this pain was worse and more chronic. (Side note: I was a dancer from 3 years to 18 years of age) After seeing countless doctors I was finally diagnosed as hypermobile when I was 25. At 26 I started taking medication (Cymbalta), which has helped for mental clarity. The pain has progressed with age and spread to the majority of my body (fingers, toes, hips, back, neck, etc.) I am now in my 30s, I was recently given a Beighton score 7/9 and told I likely have more than one issue going one - HMS (hybermobility syndrome) or BJHS (benign joint hypermobility syndrome) + CFS (chronic fatigue syndrome) + Fibromyalgia. I'm currently trying Cymbalta and Lyrica in addition to pain medications as needed.

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Connective Tissue Disease - Treatments Question: What was your connective tissue disease treatment?
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Connective Tissue Disease - Signs and Symptoms Question: What were the signs or symptoms associated with a connective tissue disease in you or a relative?

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