Patient Comments: Celiac Disease - Symptoms

What symptoms have you experienced with celiac disease?

A Doctor's View on Celiac Disease Symptoms

Read the Comment by Jay W. Marks, MD

Celiac disease symptoms include diarrhea, abdominal discomfort, bloating, gas, and swelling of ankles. Many people with celiac disease also have other symptoms if undiagnosed, such as anemia, fatigue, vitamin and calcium deficiencies, and easy brusing. Read the entire Doctor's View

Comment from: Txakurrtepia, 45-54 Female (Patient) Published: June 24

I got my first migraine at two years old. My mother was told to ignore the hysterical child and take me home. At five one of my baby teeth came in abscessed. Many cavities followed. I broke both arms and my foot before I was ten years old. At eighteen I was diagnosed with asthma. When I reached the age of 30 I read an article about celiac disease and asked a doctor. He told me it used to be called failure to thrive and since I was thriving I did not have it. Thankfully I ignored him and went on a gluten free diet. I no longer have migraines or asthma. I am on vitamin D (50,000 IU a day) and after three years of this my fatigue has finally gone. I did not realize that celiac could have such an impact on one's life but I am so glad to be called the 'food Nazi' as I actually feel good.

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Comment from: Foresthome, 55-64 Female (Patient) Published: October 15

I am 58 and recently had an esophogastroduodenoscopy, or EGD, and was diagnosed with celiac sprue. I am a nurse and began reading about the disease and now I am wondering if I have had it since birth. I was diagnosed with rickets, a form of malnutrition, as a toddler and began to suffer from migraine headaches as young as 6. When my permanent teeth came in the enamel had not formed correctly on many of them, resulting in having most of my teeth crowned. I also have chronic constipation, gas, bloating, fatigue, joint pain, and my stools have been difficult to flush, because they float, for as long as I remember.

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Comment from: 45-54 Female (Patient) Published: December 11

I have Non-Hodgkin's lymphoma in my salivary gland, and as a routine staging procedure because of occasional acid reflux, I had an endoscopy to check for signs of lymphoma in my stomach. The doctor found signs of celiac disease in my small intestine and did a biopsy. My only symptoms are fatigue and weight loss. I am 41 years old and have been on a gluten-free diet for five days.

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Comment from: Judy, 55-64 Female (Patient) Published: December 11

I was diagnosed with IBS 22 yrs ago and I have been hospitalized three times with bad bouts of diarrhea and only told I had to learn to live with it. March this year I got an appointment to go for a scan and I casually asked the nurse attending why I was having this scan and she said to me that I was newly diagnosed with celiac disease which was news to me. Since I have been on a gluten free diet I have been feeling much better I have had a few setbacks, but nothing near like what I was like when I was undiagnosed. I just wished that I could have been told earlier and I could have had a better quality of life as I was often very ill.

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Patient Comments

Viewers share their comments

Celiac Disease - Diagnosis Question: How was your case of celiac disease diagnosed?
Celiac Disease - Treatment Question: What treatments have been effective for celiac disease?
Celiac Disease - Gluten Free Diet Question: What dietary changes have you made to treat celiac disease, and has a gluten free diet been effective and easy?
Celiac Disease - Other Conditions Question: Other diseases or conditions often accompany celiac disease. Please describe your experience.

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