Patient Comments: Cauda Equina Syndrome - Symptoms

What were the symptoms of your cauda equina syndrome?

Comment from: Jim, 75 or over Male (Patient) Published: April 11

I am a senior with bad balance problems from cauda equina syndrome. I fell backwards jamming my right knee on a wood floor. The fall drove my femur (hip bone) sharply upward tilting my pelvis and affecting the nerves at the end of my spinal cord. I now have urinary and bowel problems in addition to erectile dysfunction; none before the accident.

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Comment from: Robert Walker, 55-64 Male (Patient) Published: July 28

In the year 2000, I had emergency surgery at my doctor's hospital, after it was determined I had equina syndrome. Unofficially I feel it was caused by improper diagnosis and treatment at another hospital, giving me weighted traction for my lower back pain I was experiencing. I had immediate terrible pain, they realized something was wrong and sent me by ambulance to my doctor's hospital about 30 miles away. My doctor immediate recognized my symptoms and ordered an MRI and surgery to help. I now have permanent nerve damage, and have issues with bowels, bladder and no Sexual function, and loss of sensation in my left leg and foot too.

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Comment from: Hoping the best, 45-54 Male (Patient) Published: June 22

Here are the facts. I had a snowmobile accident on February 1st, 2015. I was busted up pretty good and was rushed to hospital by ambulance. Once there, it was found I had multiple fractures and I was kept in the emergency for 32 hours. I was sent home after multiple x-rays and CT scans. I had all the trouble in the world getting back home and the pain would get more and more intense. Twenty-four hours after being home we called an ambulance to take me back to the hospital because at this point I was now incontinent and the pain was extreme. At this point they sent me right away for an MRI and that was when they discovered cauda equina syndrome (CES). They searched for a neurosurgeon and found one and I was transferred by ambulance for an emergency operation to release the nerves on my L-3 and L-4. It has been a little over 4 months and I spent 3 weeks at the hospital then 6 weeks at a rehabilitation center. I am now back home and I go 4 days a week for physiotherapy and occupational therapy. I started out with a wheel chair for about 2 months, then went on to a walker, then a pair of crutches down to a cane. I still have bowel, urinal and rectal issues, three things that I don t really have any control over. But I am working out and doing plenty of exercise and hoping for the best. It can be very scary not knowing what the future is but they keep telling me to be patient; now they know that I am not patient and I am tired of hearing them telling me to be just that.

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Comment from: Louie T., 45-54 Male (Patient) Published: January 22

I lived in New York but while visiting my mom in Ohio hospital, my back pain became increasingly worse. I went to the emergency room, was diagnosed with cauda equina syndrome (CES), immediately admitted, and taken to surgery. Because of my particulars, the chairman of the neurology department performed my surgery). My mom and I were in the same hospital but on different floors at the same time; they would wheelchair her or me to see each other. I still have significant back and leg pain from time to time (almost on a time clock - every two to three months requiring lots of pain medications) and I have urinating issues (when I have to go, I have to go! Now!), and when my back is acting up, bowel movements are difficult. But I feel pretty lucky as I can deal with my issues pretty easily.

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Comment from: Michelle, 45-54 Female (Patient) Published: December 16

I have cauda equina syndrome (CES) with bowel incontinence which can be extremely embarrassing. I get treated at a VA (Veterans Affairs) hospital and they keep wanting me to see a gastroenterology specialist for which I tell them no, as it is my CES. My lower back pain is absolutely horrible as is my right hip pain. I am now getting bone pain in the long bones of my legs. I am just a mess. I live alone and housework is out of the question. Doing dishes is torture for me.

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Cauda Equina Syndrome - Experience Question: Please describe your experience with cauda equina syndrome.
Cauda Equina Syndrome - Treatment Question: What was the treatment for your cauda equina syndrome?
Cauda Equina - Causes Question: If known, what was the cause of your cauda equina?

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