Patient Comments: Bullous Pemphigoid - Treatment

What kinds of treatment, including medication, did you receive for bullous pemphigoid?

Comment from: Anna, 75 or over Female (Patient) Published: September 27

I originally thought I had contracted poison ivy. After looking up on line I went to the doctor, and received biopsy report of bullous pemphigoid. I have been taking prednisone for 5 months. I started with 30 then gradually reduced to 10, but at 10 I kept getting daily blisters. I have gone back to 20 and it keeps it fairly under control. I have open sores on my buttock which are very difficult to heal since they are covered. I have been using clobetasol for the last 6 weeks which is very effective for itching but does not seem to heal. Also it is very expensive at USD 40 for 15 milligrams. The problem has gone on now for over 5 months and I am hoping for some relief soon.

Was this comment helpful?Yes
Comment from: Mimi, 55-64 Female (Caregiver) Published: April 04

My mother was finally diagnosed with bullous pemphigoid, after having been repeatedly misdiagnosed as allergies, bug bites, etc. When correctly diagnosed we were told that it was very rare and would probably go away and never re-occur. Wrong. She went through the process a few more agonizing times until finally a gerontologist suggested taking her off of Lasix and starting an old time diuretic. The bullous pemphigoid cleared within days and never returned.

Was this comment helpful?Yes
Comment from: Deborah1961, 55-64 Female (Patient) Published: February 24

I was just definitely diagnosed with bullous pemphigoid yesterday and starting a regime of oral steroids, vitamin B3, and an antibiotic. I have been dealing with this for almost a year and it took the 3rd dermatologist to do a biopsy and find out exactly what I had. I am 100% covered (with just a few on face). Overnight I can get dozens of blisters. It hurts to wear clothing, walk, lay, shower, and I am having more trouble dealing with the constant pain than I am with the disfiguring marks. I am going to be 60 and this is by far the worst thing I have ever had to deal with.

Was this comment helpful?Yes
Comment from: Murphy, 55-64 Female (Patient) Published: January 03

I was recently diagnosed with bullous pemphigoid. I spent 4 days in the hospital. My course of treatment is topical steroid creams and oral prednisone. It is a difficult regime to say the least. I am hoping for a short bout of this terrible skin disease. I am very itchy which makes the blisters open. I will return to the dermatology department in about 3 weeks and hope that no more treatment will be necessary. However I am being realistic and know this will be a lifetime condition with remissions and flares. It is better for me to be prepared rather than be disappointed. I wish everyone with this terrible disease a speedy recovery.

Was this comment helpful?Yes
Comment from: Patria, 45-54 Female (Patient) Published: January 03

Around the age of approximately 38 I was diagnosed with bullous pemphigoid. I was treated with prednisolone for about 18 months. I was apparently one of the youngest patients the doctor had had. The dermatologist did not take me seriously at my first visit as the initial symptoms of itchiness had subsided due to cortisone ointment. After another 12 months I had developed blisters on the bottom of my fleet and was then diagnosed. I did not like taking steroids due to side effects but it seemed to get rid of itch and blisters; I was on steroids for about 18 months. The week I came off steroids my joints were very painful. I found glucosamine and fish oil helped and have been fine until now. Now 51 I am having very bad arthritic pain in my hips knees and ankles and wonder if the steroid treatment in the past has had an effect on my joints. I have gone from very a fit active person to virtually not being active at all. I was told some side effects were osteoporosis and hunch back but nothing was mentioned about arthritis.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Bullous Pemphigoid - Symptoms Question: What symptoms do you experience with bullous pemphigoid? How do they affect your daily life?
Bullous Pemphigoid - Experience Question: Please describe your experience with bullous pemphigoid.

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.

Health Solutions From Our Sponsors