Patient Comments: Aortic Stenosis - Describe Your Experience

Please describe your experience with aortic stenosis.

Comment from: seniorcit, 65-74 Female (Patient) Published: September 09

Twenty months ago my aortic valve was at the severe level of stenosis and I had valve replacement surgery with a pig valve. A recent echocardiogram and transesophageal ultrasound showed a much narrowed aortic valve and the cardiologist suggested another replacement surgery with a mechanical valve. I see the cardiac surgeon tomorrow. I do not want another surgery, I am still very tender from the last one and the thought of weeks of pain and recovery is daunting. I need to gather more information and review the recent tests, possibly a second opinion before I make my decision. I am 70 years old.

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Comment from: ASarmy1987, 45-54 Female (Patient) Published: March 14

I am 45 and was told I have mild aortic stenosis (AS) with bicuspid aortic valve when I was 19. I was in the Army at the time. Military didn"t make me leave. I was watched all my pregnancies and worked full term with no restrictions. I get short of breath with exertion now that I am older, have heart palpitations and chest pain, also dizzy spells, and full checkup with a cardiologist every 2 years. No medication is needed. Best advice I can offer keep your weight within normal limits, no smoking, no drugs, and take your antibiotics as ordered.

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Comment from: DramaQueen241994, 19-24 Female (Patient) Published: January 14

I am 19, almost 20 years old. I was diagnosed with aortic stenosis when I was only a few days old. I had 5 surgeries on my heart before I was 1 year old. My first surgery was when I was 1 week old. I have had 12 surgeries in total. Living with aortic stenosis has been difficult for me. I am not able to run without getting out of breath. I go to see the heart doctor every year and they do many tests on me to make sure everything is going good. The last 4 years have been good when I go to see the doctor. I have to take two big pills of penicillin before any procedures that could cause dirty blood to go into my heart.

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Comment from: Alex, 25-34 Male (Patient) Published: December 18

I have congenital aortic stenosis. It was diagnosed when I was 6 years old after a noticeable heart murmur. It was mild to moderate through grade school and middle school. I was a pretty normal kid, playing sports and all that. I went in annually for an Echo/EKG. At age 13, they noticed it was getting worse and becoming severe (.9 cm opening), so we elected to do the balloon catheterization. After monitoring the results, it was determined that it was NOT successful, but we tried again with the balloon catheterization at age 15. This one was a success. The valve opening was estimated at 2.1 cm. I was back to "normal" again but was not allowed to play basketball/soccer/football in high school. This was a drag because I was and am very athletic. I've monitered my aortic stenosis every since, and have seen the valve slowly deteriorate over time. From the age of 15 to age 30, it has now gone down from 2.0 cm to 1.0 cm. I can still run and jump and play pickup basketball. Once I get a sweat going, I can maintain moderate exercise like basketball or hiking. I cannot however go jogging, or use a treadmill, as I will very quickly tire out. I'm now considered moderate to severe and have Echo/EKG every 6 monhts, in the next couple of years I will have to have another operation. I'm debating on which one. I'm kind of leaning towards valve replacement, but I don't really like my current options. I hope and pray that more science can be developed so that I can live a long and healthy life and raise a family.

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Comment from: scary stuff, 45-54 Female (Patient) Published: July 14

I have just been diagnosed with a grade three ejection systolic murmur and left ventricular hypertrophy... this is after 18 months of having extremely high blood pressure. I'm waiting for a stress echo to see if I have aortic stenosis. I can't walk up a flight of stairs without stopping and being breathless. I have a really horrid fluttery feeling in my chest and am so tired all the time. I also have asthma� all new to me unfortunately, but people's experiences give me positive feelings, thank you.

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Comment from: jane, 45-54 Male (Caregiver) Published: March 31

My husband has aortic stenosis. He went in for valve replacement 4 weeks ago but they could not replace the valve because it was too calcified, he does have a rare disease hypercholesterolemia. The surgeons are now going to give him a transcatheter aortic-valve implantation (TAVI) in a few weeks but I don't know much about this.

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Patient Comments

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Aortic Stenosis - Side effects Question: What side effects did you have with your aortic stenosis?
Aortic Stenosis - Cause Question: What was the cause of your aortic stenosis?
Aortic Stenosis - Symptoms Question: What were your symptoms of aortic stenosis?
Aortic Stenosis - Treatment Question: What types of treatment, tests, or medications have you received for aortic stenosis?

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