Patient Comments: Wolff-Parkinson-White Syndrome - Symptoms

What are the symptoms of your Wolff-Parkinson-White Syndrome?

Comment from: ThomasZellner88, 19-24 Male (Patient) Published: December 13

I am 24 years old and was diagnosed with WPW about two years ago. I quickly learned to stay away from an abundance of caffeine, energy drinks, and over exertion. I need help with smoking though, I am highly addicted. I am a very active young adult with no ablation or medication.

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Comment from: grey1234, 19-24 (Caregiver) Published: November 29

My 14 year old brother was just diagnosed with this disorder. He had none of the symptoms. It all started when doctors thought he might have bronchitis or pneumonia and did a chest x-ray. From the x-ray the doctors thought his heart might be enlarged and decided to send him to a cardiologist to have an echocardiogram done. The doctors said it was borderline enlarged so we all thought it was just because he was such a big kid (6'3" 220 lbs as a freshman in high school). The cardiologist found what looked to be an enlarged valve and thought it would be best to have a pediatric cardiologist take a look too. They diagnosed him the WPW syndrome.

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Comment from: michelle, 25-34 Female (Patient) Published: November 21

I was diagnosed with WPQ when I was 23. I had never had any symptoms until I had gotten pregnant with my daughter at 21. For two years I lived with rapid heartbeats, dizzy spells, always being tired, and towards the end fainting at least once a week, but the doctors kept telling me I was just experiencing anxiety attacks. I knew something was wrong, but they wouldn't listen to me. Finally when I was 23 I went into cardiac arrest in my front yard and sure enough the doctors finally picked up the WPW on the EKG and by the next morning I was having the ablation done. A two hour surgery took 6 hours, and by the time I was in recovery it was back, I was back in surgery as soon as my 6 week recovery was up and this time the surgery took 9 hours and the reason being because I had three holes in my heart. I am 32 years old now and I have never felt better. I will still have some flutters from time to time, but I feel great and I pray I can stay this way.

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Comment from: R, 25-34 Male (Patient) Published: September 26

I was diagnosed with WPW when I was 4 years old. It was severe. I took medicine, had surgery four times and visited the hospital many, many times. The longest period my heart raced for was a little over two days. I don't remember the exact speed, but 300bpm is likely. I had multiple pathways, and I guess this made it more difficult for the medicine to work, and more difficult for the surgeries to be successful. Luckily after four surgeries (which were between, I believe, 10 and 16 hours long), all my pathways were ablated. That was when I was 10 years old. I am now 26 and can run and do activities like most anyone else. I'm grateful to the doctors who took care of me.

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Comment from: Phil, 55-64 Male (Patient) Published: March 16

With my Wolff-Parkinson-White Syndrome, I have had palpitations and hypertension and fatigue.

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Comment from: 25-34 Female (Patient) Published: August 23

I was diagnosed with Wolff-Parkinson-White Syndrome two years ago. I have had a few bad episodes where I just pass out, and I have hurt myself due to falling. I also had a very bad episode before I was diagnosed when I was having my son. I woke up and my heart rate was 200. The doctors had lines drawn on my stomach, and they were ready to take my son. I have fatigue and dizziness. I am scared to go for the treatment. I really do not want to have surgery. Do the medications seem to work well? I know I cannot keep passing out the way I have been doing the past couple of years, and I will soon need treatment.

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Comment from: 35-44 Female (Patient) Published: July 30

I was diagnosed with Wolff-Parkinson-White Syndrome WPW in 1994 while pregnant with my son. Being pregnant the doctors did not want to put me on any medications that would interfere with my pregnancy. After my son was born I found out after an 8 hour heart catheter that I had WPW. They could not find the extra path and I was put on medication for 2 years. My symptoms increased (fast heart rates, fatigue, chest pain, heavy, tight chest). I went to another cardiologist, three years later, and another heart catheter was performed which they supposedly found the extra path and it was abated. Five years after that procedure the rapid heartbeats stared again. I have since been on medication for 10 years with symptoms progressively getting worse and the cardiologists seeming content to keep me on medication. Not really wanting to go thru another heart catheter but thinking there may not be another answer to (hopefully) finding the answer to my issues.

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