I was struck with Ramsay Hunt Syndrome in March 2008. The first symptom was a severe earache in my left ear. The same ear developed blisters which were extremely painful. The next evening the entire left side of my face drooped. I thought I was having a stroke. I felt numb, as if I had been to the dentist, but he shot up the whole left side. Two days later my balance disappeared. I felt (and looked) like I was drunk. After balance and vestibular therapy, intratympanic gentamicin and more vestibular therapy, my disequilibrium is better, but not good. I stumble in the dark, uneven surfaces are difficult for me to walk on and it is still hard for me to drive. Still trying to figure out why and what to do. This is not living.

I don't know. I woke up that way one morning 15 months ago and had to be hospitalized. I am not dizzy but my head feels weird and I feel more of a floating sensation. I have had physical therapy with all of the head and neck therapy but I still have balance problems and they are worse when I walk any distance. I wish I could get rid of this problem but have not had success. I am better than when it first started but it is still a miserable condition to live with.