Patient Comments: Vasculitis - Diagnosis

How was your vasculitis diagnosed?

Comment from: JB, 35-44 Female (Patient) Published: June 15

I was diagnosed after about 11 plus blood tests with vasculitis. I noticed after standing hours at a time my leg would appear with reddish marks. I went to see a rheumatologist and was sent back because the initial visit I was about 25 and he told me I was too young, and to come back years later if the problem persists. Years later the problem worsened and that's when the tests were done. I was given hydroxychloroquine, and it works! Take it before bed with a pain aid and it helps with skin appearance.

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Comment from: bamagirl, 45-54 Female (Patient) Published: March 15

I was diagnosed with vasculitis after spending 4 months of doctor appointments to see what was causing the blisters and lesions on my feet and legs. I also have pain and swelling in my feet and legs and a very bad itch.

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Comment from: searching, 55-64 Male (Caregiver) Published: December 01

After many blood tests, muscle studies and many doctor visits, he finally had a muscle biopsy done to his calf muscle and it was determined he has vasculitis.

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Comment from: DONeal, 55-64 Female (Patient) Published: April 21

I was diagnosed by a vascular surgeon who knew that the vein bursts, of which I've had many, are caused by vasculitis. It started in right hand, with pain and numbness of fingers, and spasms that woke me up while I was trying to sleep. The lack of sleep made my lupus worse and I felt myself going a little crazy. Having a diagnosis helps but this is my 4th month and I'm wearing out. The pain and fatigue are awful.

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Comment from: River girl, 65-74 Female (Patient) Published: July 08

I was diagnosed with vasculitis after an ANCA blood test. I don't have any of the symptoms which they asked me, so I'm really questioning whether I have the disease or not. I've been reading about this for over an hour and see nothing else that points to vasculitis. They want to start me on prednisone and methotrexate. I'm really scared. No biopsy was done.

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Comment from: Sfisher1975, 55-64 Female (Patient) Published: November 16

I had two different biopsies to find my vasculitis. One on my hip the other on my ankle.

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Comment from: Kim, 45-54 Female (Patient) Published: August 20

I have had a variety of symptoms for years and no doctor could figure out what was wrong with me. Partly because they never appeared all at the same time. Two years ago I had my large intestine taken out because it would not work well enough to eliminate properly. Now I am wondering if I needed the surgery. I have had joint and tissue pain, extreme fatigue which I was always told it was from be anemia. I have finally been diagnosed with the vasculitis and am now on the cancer drug, steroids and folic acid. At the present time I am having joint pain, fatigue and my inflammation levels are still between 9 and 12, with my doctor wanting them to be much lower.

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Patient Comments

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Vasculitis - Describe Your Experience Question: Please describe your experience with vasculitis.
Vasculitis - Treatment Question: What kinds of treatment did you receive for your vasculitis?
Vasculitis - Symptoms Question: What symptoms did you experience with vasculitis?
Vasculitis - Causes Question: What were the causes of your case of vasculitis?

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