Patient Comments: Uterine Fibroids - Experience

Please describe your experience with uterine fibroids (benign tumors of the uterus).

Comment from: 19-24 Female Published: December 17

I am a 24-year-old Latina. In August, I was experiencing severe pain in my abdomen, so I went to the ER to get it checked out. The doctor told me that I probably had kidney stones, and they could not see them with the ultrasound. He did not want to do a CT scan because of my age, so he gave me medicine to help me pass the stones. Two weeks ago, I had to return to the ER because I was having more severe pain. This time they did an abdominal and pelvic ultrasound. The doctor said the results were inconclusive. I followed up with my doctor, and she scheduled a trans-vag ultrasound, which I did yesterday. She called last night to tell me the results had not come back yet, but she got the full report of my ER visit. She then told me that it showed a uterine fibroid that I have had since 2004! Nobody ever told me that, and I gave birth in 2006. I cannot believe that I have lived with this for four, almost five, years and no one said anything. In late 2004 early 2005, I had an ultrasound performed because I had lower abdominal pain that the doctors wrote off as a UTI, which is funny because the only symptom I had was the pain. I didn't have any urinary symptoms at all. It also showed gallstones, which they also did not tell me about in the ER.

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Comment from: yams41, 45-54 Female (Patient) Published: December 17

I have uterine fibroids and have had them for years. When my OB/GYN first told me I had fibroids, we decided to take the watch-and-wait route because I didn't have any problems. Now about 10 years later, I have severe/killer cramps, backaches, and constipation. I do not want to have a hysterectomy and my doctor also feels the same. Since I am close to menopause, he suggests that I keep playing the waiting game. I don't have any heavy bleeding, probably thanks to the birth control pills that I take. I found that if I take a painkiller on the first sign of pain, it help lessens the severe cramps. I am also starting to watch my diet. I make sure to eat lots of fruits and vegetables and drink plenty of water. Exercise also helps reduce the cramping.

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Comment from: Cathy A., 45-54 (Patient) Published: November 19

I was diagnosed with uterine fibroids at age 38. I did not want a hysterectomy; I wanted to preserve the ability to have children and didn't want to go into menopause early so I chose myomectomy. The surgery was unsuccessful, the two largest tumors had veins wrapped around my ovaries and could not be removed without removing the ovaries because I wanted to preserve the ability to have kids, the doctor did not remove the ovaries. I then had a Uterine Fibroid Embolization (UFE), which was successful; the heavy bleeding, distention and discomfort subsided and I had my life back! However, 10 years later two new fibroid tumors appeared in my uterus, which was a shock to me; I didn't know that could happen. I have now chosen to have a hysterectomy. I'm glad I did the UFE, it bought me 10 more years before hysterectomy. If I had not waited until two of the tumors got so large, the myomectomy may have been successful. Fibroids can grow FAST and larger ones can be more difficult to treat. I wish I had sought treatment a year earlier, and wish I had known that they could still grow after UFE!

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Comment from: THeart, 25-34 Female (Patient) Published: November 13

My experience with fibroids was awful. I was 28 and had no idea what was happening to my body. I was expecting my period, but had it arrive seven days late. I had golf ball size blood clots coming out of me. I was scared to move, let alone walk around because there was nothing available to wear to hold back all the blood. When I finally went to the emergency room 24 hours later the doctor prescribed a drug that would "lessen the bleeding". That did not work and 48 hours later I was light headed and dizzy and back in the E.R. Finally a new doctor came in. CT's, MRI's and ultra sound were done. I ended up having surgery, a Myoectomy/ D&C. Though the surgery was a success I developed an infection that had me stuck in the hospital for two weeks. Now I am anemic with very low white blood cell count despite the blood transfusions. My advice: know your body, trust your own instinct, and fight the doctor if they try to send you home.

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Comment from: jetlei04, 25-34 Female (Patient) Published: November 13

I am 27 years old and I am also black American. I recently have been diagnosed with having five myometrium fibroid tumors. I went nearly three months without a bowel movement and my doctors did not believe me. I ended up having a colonoscopy and that showed that I had a mass, so they did a lower endoscopic ultrasound of my colon and that showed a huge mass which they biopsied in 26 places, and also called in a gynecologic oncologist to take a look at what they thought was a huge benign mass, during what was supposed to be a 45 minute procedure that turned into a 6 hour ordeal and I was still unconscious, and it turned out to be a huge cyst extending from my ovary that ruptured laying 15cm/7 inches of fluid on my colon clamping it completely shut. I have been diagnosed with 5 fibroid tumors.

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Patient Comments

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Uterine Fibroids - Symptoms Question: What were the symptoms of your uterine fibroids?
Uterine Fibroids - Treatment Question: What was the treatment for your uterine fibroids
Uterine Fibroids - Surgery Question: If you had surgery to remove fibroids, describe the procedure. Are you satisfied with the results?
Uterine Fibroids - Diagnosis Question: What were the tests and exams that led to a diagnosis of uterine fibroids?

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