Patient Comments: Uterine Fibroids - Experience

Please describe your experience with uterine fibroids (benign tumors of the uterus).

Comment from: Team Jo, 45-54 Female (Patient) Published: October 08

I have fibroids but I have had an IUD in place now for 6 years. I have now learned that having the ParaGard IUD would cause your periods to be a bit more aggressive which feeds more blood to your fibroids. I now need to have the fibroids removed due to increased size and pain. I was told to have the IUD removed and go on birth control pills to regulate and slow the monthly cycle bleeding which would stop feeding the fibroids and they may decrease as I go through menopause. But there is a problem. The fibroids have wrapped around the IUD and I must be put asleep to have it taken out.

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Comment from: Bodyaches, 45-54 Female (Patient) Published: October 08

At age 45 I started perimenopause that included severe premenstrual syndrome (PMS). I kept getting pain in my right side next to my hipbone and pelvic pain. After testing when I was about 48, it was discovered I had multiple fibroids. The largest being 3cm. I'm now 52 and for years have dealt with heavy bleeding, severe PMS and pain. I found a gynecologist who would give me a hysterectomy last December. I decided to wait because of my job and I'm glad I did in some ways because I'm not bleeding any longer and the pain in my right side is no longer there. I still cycle with terrible fatigue and mood changes but I feel much more stable than I did a few years ago.

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Comment from: 45-54 Female (Patient) Published: March 27

I suffer for a minimum of two weeks per month with abdominal pain in my uterus. I also get severe lower back pain and have issues with my bowels and frequent urination during this time. This usually begins 3-5 days before I begin my period and then the pain subsides and I have a very heavy period with lots of bleeding and clots. Once my period ends I continue to have abdominal pain for another 4-5 days. Does this sound normal? My doctor said if I wait till menopause that it will all go away. I am 46 years old and each month I consider if waiting is worth it or if I should pursue a hysterectomy.

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Comment from: helmish15, 45-54 Female (Patient) Published: March 11

Three years ago, I had a hysterectomy because of fibroids. My symptoms were severe: very heavy bleeding, and large blood clots. In the past, I told my doctor, but she took a wait-and-see attitude. Finally, the pain was so severe that I changed doctors and changed my life literally. When I had the tests run, he discovered more than 20 fibroids of all shapes and sizes. I had severe endometriosis cysts and vey early stages of cancer. I am very happy today; my doctor saved me.

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Comment from: rollermom60, 45-54 Female Published: March 04

I am 48 years old and have been dealing with uterine fibroids for a long time. They did not seem to have much impact on my life until a few years ago when all 'hell broke loose' every month. (Having to go through five super-heavy tampons as well as six heavy-duty pads in a nine-hour period I do believe would be considered severe bleeding.) Anemia is my middle name. I am also playing the waiting game and hope menopause is around the corner for me. In the meantime, I deal with the flood gates opening every month, and I take an iron supplement, which has helped me tremendously. I tried prescription as well as over-the-counter iron pills, but the constipation was just too much to handle. Floradix Iron & Herb Tablets (comes in liquid form as well) is a God-send. Look for it in your health food stores or on line. I was going to have the uterine ablation procedure, but when I found out that there is a 50% chance it will work, I have decided to hang in there.

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Comment from: 19-24 Female Published: December 17

I am a 24-year-old Latina. In August, I was experiencing severe pain in my abdomen, so I went to the ER to get it checked out. The doctor told me that I probably had kidney stones, and they could not see them with the ultrasound. He did not want to do a CT scan because of my age, so he gave me medicine to help me pass the stones. Two weeks ago, I had to return to the ER because I was having more severe pain. This time they did an abdominal and pelvic ultrasound. The doctor said the results were inconclusive. I followed up with my doctor, and she scheduled a trans-vag ultrasound, which I did yesterday. She called last night to tell me the results had not come back yet, but she got the full report of my ER visit. She then told me that it showed a uterine fibroid that I have had since 2004! Nobody ever told me that, and I gave birth in 2006. I cannot believe that I have lived with this for four, almost five, years and no one said anything. In late 2004 early 2005, I had an ultrasound performed because I had lower abdominal pain that the doctors wrote off as a UTI, which is funny because the only symptom I had was the pain. I didn't have any urinary symptoms at all. It also showed gallstones, which they also did not tell me about in the ER.

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Patient Comments

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Uterine Fibroids - Symptoms Question: What were the symptoms of your uterine fibroids?
Uterine Fibroids - Treatment Question: What was the treatment for your uterine fibroids
Uterine Fibroids - Surgery Question: If you had surgery to remove fibroids, describe the procedure. Are you satisfied with the results?
Uterine Fibroids - Diagnosis Question: What were the tests and exams that led to a diagnosis of uterine fibroids?

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