Patient Comments: Uterine Fibroids - Experience

Please describe your experience with uterine fibroids (benign tumors of the uterus).

Comment from: StormAngelus, 35-44 Female (Patient) Published: November 18

I have one fibroid that's grown about 40% in the past year, and worse, I'm now constantly fighting my period! Two months ago I had the worst period ever, 16 days long, and heavy with tons of clots. I'm constantly exhausted and the worst of it is I had to take medication to "stop" the period - and heaven help me if I miss one dose! My body tries to go right back into a period. I hate it! I've talked to my doctor about the heavy period, but I don't know what to do about the near-constant period!

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Comment from: adrena, 45-54 Female (Patient) Published: November 14

In September I collapsed from severe dizziness, chest pain, shortness of breath and fatigue. I got to the emergency room where, after having my blood drawn, was immediately admitted to intensive care and started on what would end up being given 6 units of blood. My red blood count was .3, the doctors were surprised I was even alive. I had no red blood, no potassium and no iron. My bone marrow was no longer making red blood. At first they thought I had something wrong with my bone marrow, brain and then found a fibroid. I had been having such heavy bleeding for the previous 3 to 4 months I could not leave my home. I had shortness of breath and a pounding heart whenever I walked 5 feet or more. I had recently moved to Colorado where the doctor said it was just adjusting to the high altitude and it would pass. I moved to Florida thinking it is not passing. Then I ended up in the hospital receiving blood and iron IVs for 4 days. I started shot treatments to stop the bleeding and 6 additional units of iron to build my blood up which has taken 6 weeks. I had to go to the Infusion Centre weekly for my iron as my doctor said I could not handle the normal every other day iron infusions. I am having the Da Vinci robotic surgery in the next 2 weeks for my hysterectomy, and while I am concerned about the apparent side effects of having a hysterectomy, I am happy there is such a non invasive option with such a short recovery time. I hope my surgery goes well and I don't end up suffering from any of the severe side effects such as osteoporosis, tumors, blockages etc.

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Comment from: MsShon75, 35-44 Female (Patient) Published: October 18

I discovered that I had two fibroid tumors in March 2012 during a visit to my OB/Gyn. Since the discovery, I have experienced intense pain. Pain medications do not seem to help at all. I have tried ibuprofen, prescription pain pills prescribed by my doctor, Tylenol, and nothing seems to ease the pain. During my cycles, I have to use a tampon and a sanitary napkin at the same time because the bleeding is so heavy. I am always fatigued, and I lose a lot of sleep because I am in pain all of the time. I don't know what else to do. I am just sick of the pain.

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Comment from: chrssymc49, 65-74 Female (Patient) Published: February 25

I have been taking low dose hormone therapy for about 15 years. I'm now 65 years old and have a large fibroid. It does not really bother me except for occasional spotting. Doctor says I should go off hormones. I started not taking them and am now having hot flashes and mood swings. It is really driving me nuts.

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Comment from: bredeee, 19-24 Female (Patient) Published: July 23

I am currently 20 years old. I have been recently diagnosed with a uterine fibroid that grows on the outside wall of my uterus. I know this usually doesn't happen with girls my age. I was wondering if this is going to hinder my ability to give my spouse and me a baby. It is four inches big and I'm really concerned about this.

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Comment from: Yang Ly, 19-24 Female (Patient) Published: June 17

I am 23 years old. I've been diagnosed with fibroids a couple weeks ago. I've been devastated. My symptoms are heavy bleeding and slight cramps which are bearable. I still want babies because I only have 1 daughter. I've also had a miscarriage. I'm now thinking maybe the fibroids took a toll on my 2nd pregnancy. Ugh, I'm only 23! I really didn't have this in store. Fibroids are causing me to not go to work because my bleeding is so severe. I have to change my pad every hour, if not less. I've been diagnosed for only a couple weeks and it's making me so crazy because I'm over thinking about the possibilities. I'm in need of some advice and motivation.

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Patient Comments

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Uterine Fibroids - Symptoms Question: What were the symptoms of your uterine fibroids?
Uterine Fibroids - Treatment Question: What was the treatment for your uterine fibroids
Uterine Fibroids - Surgery Question: If you had surgery to remove fibroids, describe the procedure. Are you satisfied with the results?
Uterine Fibroids - Diagnosis Question: What were the tests and exams that led to a diagnosis of uterine fibroids?

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