Patient Comments: Trigeminal Neuralgia - Experience

Please describe your experience with trigeminal neuralgia.

Comment from: jlo, 55-64 Female (Patient) Published: June 02

I went in for cosmetic Botox injections for lines and crow's feet. My doctor accidently hit a nerve at my jaw line. I began to have pain along the jaw continuing to my ear. The pain was unbearable, electrical pulsating twinges. It began with a pop in my jaw while eating, hours later that same day. The pain lasted for a few minutes on and off than by the 5th day the pain never really let up. I am in my first week on the 6th day of trigeminal neuralgia and it is bothering occasionally and not so intense.

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Comment from: Beach-T, 45-54 Female (Patient) Published: May 02

Well, today I met with my pain doctor, who just had done a stellate ganglion block about a week ago, which I might add did not work. We are exhausting all my options right now, and I only have 1 pain management shot left. At this time, I've had 2 migraines this week, and I'm so sad that I can't even get 1 thing fixed. Calmed down at this point I will take anything, I'm getting more migraine medications to see if it helps the trigeminal neuralgia (TN). I do have left side facial and ear extreme pain, teeth are very sensitive, I even pulled a tooth to see things would change, negative. I do believe this is the worst condition to have, I also had a neuro stimulation implanted, and it works for the back of my head but nowhere else.

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Comment from: Bob G, 75 or over Male (Patient) Published: April 29

I first had symptoms of trigeminal neuralgia (TN) about 7 weeks ago and was treated originally for shingles. I also had a dead molar removed on the same, left side. Originally I was treated with oxcarbazepine for 4 days but the side effects were horrible and I had no relief from TN. This was switched to gabapentin at 1800 per day. Each week has been steadily better and now 4 weeks later I am at a state where my lifestyle is very little changed from before the attack. The side effects of gabapentin is minimal and I can easily do almost all former functions. I have essential tremor and it got worse but I can manage that.

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Comment from: Sharon, 65-74 Female (Patient) Published: March 17

From 2008 to 2010, I suffered from the trigeminal neuralgia on the right side of my face. Then in May 2010 I went to have the nerve laser treated. I was great for 10 months. I had no more pain, no numbness or tingling. Since March 2010, I started with the numbness, tingling, itching, pulsing, and sometimes pain, but not the same pain as the nerve pain. I feel like I have a Novocain that never stopped working. I wonder if there is anything that can be done now to get the feeling back into the right side of my face. There is no distortion, just some weird sensations.

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Comment from: Christine, 35-44 Female (Patient) Published: March 17

I developed trigeminal neuralgia after a nose surgery where too much of my inferior turbinates were cut out. The tissue inside my nose subsequently deteriorated and I got what is called empty nose syndrome. I then started getting strong, random electric shocks in the right side mostly, but sometimes left side of my nose, cheeks, eyes and scalp. My jaw aches and my teeth have a burning sensation. Medications don"t seem to help and make me feel awful. I"m am trying natural treatments. Fingers crossed

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Comment from: Kuna, 55-64 Male (Patient) Published: March 14

I was treated by the dentist specialist with numbness causing injection in the mandibular, lower jaw. Sometimes it stopped the episode of cyclic pain of trigeminal neuralgia. Later I was given gabapentin (300mg x2) 3 times a day with carbamazepine. This helped at times. The pain was missing for almost 1.5 years until now it started at random the last 3 days. I am helpless now hoping the sharp excruciating pain to go away.

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Comment from: Carleen, 55-64 Female (Patient) Published: February 24

My first episode of trigeminal neuralgia (TN) occurred ten years ago while undergoing chemotherapy for breast cancer, I was hospitalized for the flu and on neutropenia precautions. While in the hospital the TN pain started and was controlled somewhat with Percocet. Ever since then I experience TN pain every time I get a head cold. It can be on either right side or left side of temple or just below my ears. Pain will last 2 to 4 days and is excruciating. I take ibuprofen 800 to 1000 mg every 6 hours which has good effect.

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Trigeminal Neuralgia - Causes Question: What was the cause of the trigeminal neuralgia you suffered?
Trigeminal Neuralgia - Symptoms Question: What were your symptoms of trigeminal neuralgia?
Trigeminal Neuralgia - Treatment Question: What treatments were effective for your case of trigeminal neuralgia?

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