Patient Comments: Tremor - Share Your Experience

Please share your experience with tremors.

Comment from: cally, 45-54 Female (Patient) Published: August 09

I was diagnosed five years ago with essential tremors, although I had lived with the tremors for 10 years before that. It started in my right arm, then my legs, and just recently, my head. I have stiffening of my joints and pain in my legs while resting. My doctor wants me to see a bone specialist; he thinks it's my spine. I work full time, and some people at work know, but I have asked them if they see my head or hands shaking to just ignore it. It was embarrassing for me when they made a fuss about it. I am scared of the unknown and not sure how long I will be able to keep working. But at the end of the day, I just pretend it's not there and get on with my life. But I am alone in this battle, and that scares me the most.

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Comment from: wiz, 45-54 (Patient) Published: August 22

I just started having tremors, I would say 5 months ago. I thought they were seizure. Well that's what my neurologist said. I went to the emergency room (ER), each time they found nothing. I'm having tremors now more and more. It starts with my hands. If I sit I'm in control. When I start to move it makes it worse. I hate to sit. Ugh! I'm a runner, biker, cross fitter and, whatever else I can add to my work outs. This very strange for me. Well let's see how I can make this work for me.

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Comment from: Wonder woman, 65-74 Female (Patient) Published: April 08

I was sick with flu in December. Made a slight recovery. Then one day out of nowhere, my eyes became light sensitive, my vocal cords seemed strained, and on weight bearing, my legs began to shake uncontrollably, even after sitting and/or laying down. I don"t know what to do. I"m in no pain, no fever, and no head pain. The leg tremors occur in both legs and can last for hours.

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Comment from: Bad Nurses, 25-34 Male (Patient) Published: March 03

I was prescribed Celexa then I was sick of it. It did not help at all. So I stopped. That is when the tremors started with leg shaking. I thought I felt an earthquake rumble, then it got more alarming; standing, lying down, sitting. I can't do any of these and it is very annoying.

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Comment from: Se7thHvn67, 19-24 Female (Caregiver) Published: January 23

My son is 19 years old. He has recently been diagnosed with schizophrenia. His hands, head and legs shake. He has a hard time using a fork sometimes. They put him on medication to help, in case one of the other medications is causing it. This is a young man who just graduated with 'A's last year and ran track. I question whether or not something else could be going on. As his mother I don't think it is nervousness.

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Comment from: she, 75 or over Female (Patient) Published: September 05

I have been on propranolol 20 mg twice a day for 5 years. One of my doctors suggested I go on Topamax. I tried that 5 years ago, tremor is in my head and has kept me in hiding from many things, and I am on Xanax.

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Comment from: Huey, 65-74 Male (Patient) Published: March 26

I have difficulty writing and using my eating utensils properly from time to time. My hands have a tendency to shake and I am a diabetic who uses insulin.

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Comment from: Ned, 65-74 Male (Patient) Published: March 06

I have had Parkinsonism for 14 years. It is not getting better with amantadine tab 100 mg. I can"t see it helping my tremors in both hands. I also have a thing called dyskinesia, where my mouth makes all kinds of movements. Since I"ve been on Sinemet, 2 kinds for 14 years, makes me wonder about the drugs.

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