Patient Comments: Thyroid Nodules - Treatments

What was the treatment for your thyroid nodules?

Comment from: Kara, 35-44 Female (Patient) Published: January 14

I am a 41 year old mom and consider myself very active and in good shape. I was at my son's baseball game on July 11th, when I started feeling weird, I had pain in my fingertips and my whole body started to ache. I went home and lay down, and I couldn't get out of bed for 3 days! I had all over body aches, worse than I have ever had in my life; I truly thought I was dying. I had terrible night sweats and kept getting very hot and then very cold. I imagine I had a fever but was too ill to get up to check. After I was well enough to drag myself to the doctor, I tested positive for mononucleosis. Two days ago marked 6 months of struggling with this virus. I have extreme fatigue and my body aches are still very present, not responsive to OTC Tylenol or Advil. I am miserable and I too, want my life back! I am told that only rest will help, specifically 3 plus weeks of lying in bed doing nothing! I am a mom of 6, I work, and have a lot of cleaning, laundry, homework-helping, etc. That kind of rest is not an option! I wish there was a cure for this virus. I also wish someone could tell me when I will feel normal again!

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Comment from: melwrona, 35-44 Female (Patient) Published: May 28

I went in for a routine sinus check because I was snoring and they found some thyroid nodules. I had a needle biopsy done and they said I had some cancer cells. I had surgery for right side thyroid and a week later another surgery for the rest of the thyroid because they said they found cancer cells, and then 3 months later another surgery because they said they did not get it all out (go figure). Well, I was told I needed a 4th surgery because they still did not get it all out because my levels were still a little high for radioactive iodine treatment. I at that point said, you are crazy. I went to a cancer center and unbelievably I never had thyroid cancer. Pathology was wrong all 3 surgery times. I am furious. I now take calcium supplements because they damaged my parathyroid, and levothyroxine. Please if anyone is told they have thyroid cancer and needs surgery, please get a second and third opinion. If I would have had the 4th surgery they would have damaged my vocal cords permanently. As for the medicines it is awful. I have wheezing, snoring still, tiredness, foggy head, restlessness, low calcium numbness, and you name it, I got it. Good luck to you guys.

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Comment from: Blue, 55-64 Female (Patient) Published: December 30

I just had the right half of my thyroid and isthmus removed a week ago. All in all, the surgery was not bad. I had a large nodule on the right and 3 small ones on the left. I had the choice of having half or whole of the thyroid removed. I agonized over this decision; asking other medical people, researching medical information. There was no clear decision one way or the other. I wanted to hopefully avoid having to take medication. Anyway, I chose to have half removed. The pathology results are benign; so no more surgery. The biggest surprise for me was that the nodule growth was so gradual, I did not realize that my breathing, sleeping, snoring were influenced. I am amazed that I no longer snore; I can breathe in more air without perceived restriction on the right side. My wheezing has all but disappeared. This whole issue was not really addressed with me with the nodule issue. I still have the feeling of something "heavy" on my left thyroid side. I thought that my breathing and wheezing were just allergy problems. Before surgery, I could not lay on my back flat without feeling I was being smothered in my neck. Now that I have had this realization, I wanted to make sure other thyroid patients are aware.

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Comment from: vbyrd6, 65-74 Female (Patient) Published: March 13

I had thyroid problems since the military doctors decided I was growing too fast. At eleven I was 5'11" and weighed 115 pounds. But I wish they had left me skinny instead of doing a BMR (basal metabolism radiation). Well, over the next several years I gained about 20 pounds a year - until I was overweight. I continued to grow to 6"3" so it was not a successful treatment. Since when is it ever safe to expose a child to unnecessary radiation! Shame on the hospital and any other doctor who decides this treatment is needed. Think again!

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Comment from: Heregoesnothing, 19-24 Female (Patient) Published: December 16

I am a 20 year old female college student and my nodules were discovered a few months ago by my doctor during a checkup I scheduled to talk about my constantly upset stomach. Once pointed out I didn't know how I had never noticed. I had an ultrasound within a few days and another follow up appointment the next week. My doctor said that she was pretty sure my nodules were benign and that I had multiple about 3.1 in size (I think that was each one not overall) but that I needed to go see and endocrinologist. I scheduled my appointment for the first available one which was a month and a half out which gave me plenty of time to research and freak myself out. When I went to the specialist she also looked at my ultrasound report and told me since they were not all fluid there was a chance for them to be cancerous and not to worry since no one close to me has a history of cancer. My mom also has a thyroid nodule that she has had since a young age but hers is very small and never grew. I went back to school and the nodules just got bigger and harder. Also while away at school my dad was diagnosed with bladder cancer but we are waiting on results for if it spread to his lymphatic system. I now have another ultra-sounded scheduled and an appointment with my endocrinologist. Although they cause me no pain I am very self-conscious about the large lump on my neck (what female college student wouldn't be) and I think I will opt to have it removed no matter what.

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Thyroid Nodules - Symptoms and Signs Question: What were the symptoms and signs you experienced for thyroid nodules?
Thyroid Nodules - Type Question: What type of thyroid nodule did you have?
Thyroid Nodules - Tests and Diagnosis Question: Describe the tests and events that led to a diagnosis of thyroid nodules.
Thyroid Nodules - Goiter Question: Please describe your experience with a thyroid goiter.

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