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November 26, 2009
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Patient Discussions: Thyroid Disease - Describe Your Experience

Thyroid Disease - Describe Your Experience

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Please describe your experience with Thyroid Disease.

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Related Article: Thyroid Disease

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I am speaking for my daughter. She's 15 years old. She was diagnosed with thyroid disease The doctor referred it as toxic thyroid since her thyroxine level went down to zero. She' taking medications and the doctor had suggested for her to take radioactive iodine. Accordingly it is safe. But I still have doubt about it. She is only 15 years old. Thank you very much. Published: October 06 ::

Comment from: Diane W., 55-64 Female (Patient)

Last week I had my thyroid removed. I have a follow-up appointment with both my surgeon and my endocrinologist, but that is a week away. I was and still am wondering what it meant when after the surgery I was told that my thyroid was unusually small in size. My thyroid was covered in nodules and pathology will examine if they are benign or malignant. My voice is deeper and very robotic sounding. I feel like I have been through a lot these past 2 plus years. January, 2007, I had a triple by-pass. I have had low energy for months and have been very sensitive to the cold. Published: October 06 ::

Comment from: Riverview, 55-64 Female (Patient)

At age 48 I was diagnosed with Hashimoto's Disease, which is a form of hypothyroidism. Every time I think about this, my blood pressure goes through the roof because I had the classic symptoms for almost 10 years before any doctor thought to order a TSH test. At time of diagnosis, it came back with a reading of 160! I asked how I could even function at that level and my (new) doctor replied that, o, the body just gets used to it. My ongoing symptoms were extremely dry skin and hoarseness/laryngitis that would come and go spontaneously. One minute I could talk, the next minute I couldn't, and 10 minutes later I could talk again. And, yes, I experienced early menopause. Along the way, doctors kept asking if I were unusually tired. That was the wrong question to ask. I had jobs in which I might easily put in a 10-hour day. I didn't feel particularly tired. The fact that I was going to bed earlier and earlier I just chalked up to getting older (and getting up at 6 AM). By my mid-40s I was getting unusually cold in the evenings - even when other people in the room said the temperature was comfortable. I bought a sweater. Eventually, I had difficulty swallowing - it felt like a big apple had lodged in my throat. When I was finally diagnosed, I looked up Hashimoto's Disease on the Web and discovered that about 10% of women over the age of 40 develop this condition. So why did it take years for any of my doctors to order a lousy $40 blood test? (I had a number of doctors because I had moved several times. But nevertheless, each one heard my symptoms in detail and either wrote it off as a whiny woman complaining or viewed each symptom separately without looking at the cluster of symptoms together. You don't know the number of different dry skin creams I tried - with no relief.) The moral to the story: insist that your doctor order a TSH test as part of your annual exam regardless of your age! Additionally, don't let doctors bully you with numbers once you do get medication. Even though my TSH tests came back in the normal range after being prescribed Synthroid/Levoxyl, etc. I still didn't feel "normal" and my skin was still very dry. I read about Cytomel and was all set to argue with another new doctor to prescribe it, when he said that he always prescribes Synthroid/Levoxyl in combination with Cytomel. What a difference it has made over these past few years. Published: October 06 ::

Comment from: sstev, 55-64 Female (Patient)

I have been suffering from thyroid nodules my entire life but my thyroid blood work was always normal. I had biopsies performed because I was choking and the nodules could be seen protruding from my throat. The biopsy was benign and I underwent radioactive treatment to shrink the nodules. I have gained so much weight, dry skin, constipated, trouble sleeping, osteoporosis, and restless legs. My doctor won't increase my Synthroid because my blood work is normal. i am almost an anorexic ,desperate to lose weight( I am about 50 pounds overweight eating a 1000 calorie diet, exercising three times a week. Published: October 06 ::

Comment from: Melissa, 19-24 Female (Patient)

I was diagnosed with Hashimoto's Thyroiditis a year ago and finally went to an endocrinologist, something that I should have done from the start. My birthmother, her mom, and two siblings have it and I was tested twice over the course of two years and was diagnosed the second time I was tested. Thyroid disease is something I urge all women to test for, even if they don't have a history of it in their family. Published: October 06 ::

Comment from: dmpipher, 55-64 Female (Patient)

I used to take Synthroid for my thyroid disease, but when I lost my medical insurance years ago, I stopped taking it. I also take high blood pressure medicine and a diuretic. My mother has Graves disease. I have recently been having tremors and muscle weakness. I also noticed that I have lost a little weight. Published: August 28 ::

Comment from: HandyDan, 55-64 Male (Patient)

I was diagnosed with Graves 17 months ago. It had progressed so badly it affected my heart. I was in ICC for 3 days with atrial fibrillation for 14 hours, scared to death that my ticket was punched. Looking back I had Graves for several years, sweating, intolerant to heat, trouble with concentration and sleeping, irritable, sore joints (I wrote this off to hard work and hard play), palpations, and finally weight loss and then the A. fib. and hospital. My specialist diagnosed it right off. I've been on methimazole, 60mg for awhile then tapered down to 5mg 2X daily. I've got good days and some not so good. The feeling of depression and anger at times is almost too much. I don't know if the sleep loss is due to depression (functional) or the Graves affecting another body system, but thank God for modern pharmacology. Sleep is just a med bottle cap twist away. I hope this goes into remission soon. Published: August 17 ::


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Thyroid Disease

What is myxedema coma?

Myxedema coma is a loss of brain function as a result of severe, longstanding low level of thyroid hormone in the blood (hypothyroidism). Myxedema coma is considered a life-threatening complication of hypothyroidism and represents the far more serious side of the spectrum of thyroid disease.

Who is affected by myxedema coma?

Myxedema coma is not common, but tends to be seen more frequently in elderly patients and in women. There is an increased incidence in the winter months, which is likely secondary to the extremes in temperature. Myxedema coma can actually result in death. Fortunately, the condition is rare.

What are the symptoms of hypothyroidism?

Before a patient develops myxedema coma, features of hypothyroidism are usually present and may have gone unsuspected for a long period of time.

These symptoms include:

  • fatigue,
  • lethargy,
  • ...

Read the Myxedema Coma article »










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