I feel like a guinea pig. I have blood draws regularly, but limited treatment. One hospitalization with high dosages of prednisone, then immune globulin, and suggested experimental drug with harmful side effects. Over a three year period my platelets hovered in the 70-90 range. Now they are 36 and I am on a short-term dexamethasone treatment with a possible consideration of another highly experimental therapy. My liver is starting to show some elevations, I recently had a lot of X rays and I think the x-rays may have lowered my platelets. Not enough research in this area. More needs to be done. Causal factors need to be found and treatments that are safe need to be found. Cortizone is not the answer either. Published: August 18 ::

I asked my doctor if I could have a blood test to check my vitamin levels. I was feeling tired, loved to eat ice. The results appeared to show that I had a severe case of anemia. I started taking Iron Supplement. Followed by another blood test all areas related to anemia appeared to look normal but my platelet counts went down to 14. Following another blood test 4 days later platelet count went down to 10. I wasn't experiencing any bleeding except for a strange (something) looks like plantar warts on one of my foot. I was advised to go into ER. ER doctor suggested optional platelet transfusion. A Hematologist speculated ITP or TTP. So I've started taking prednisone. I've been feeling perfectly fine. I'm just concern with 5 weeks of taking prednisone the side effects that I my experience. Published: June 08 ::

My 8 yr. old grandaughter has had ITP for over a year now. She has gone through alot of testing and poking from one blood test, infusion, chemo, and now they want to try something else because none of them have worked for her. It breaks my heart everytime we take her for check ups or infusions. She is tiring from the poking and infusions. Next may be CELLCEPT with Vincristine. Published: October 07 ::

My husband has hepatitis C. He has been living with this for 10 yrs. now. Only in the past 2 to 3 yrs. have symptoms begun to effect his life drastically, such as severe fluid retention, dangerously low platlets, bruises easly, and medications effect him in different ways too. Somehow our whole life changed, making what we thought would be a lifetime together into hoping he wakes everyday. Published: October 07 ::

I was treated for thrombocytopenia 12 years ago and have never looked back. First I was put on a prescription of steroids and every time I came off of them my platelet count would drop to its lowest 16, after three relapses I went into the hospital to have my spleen removed and I have never looked back for the past two years I have not needed any check-ups. It’s great I would recommend you look into this as a way to treat ITP. You never know it could also work for you. Published: November 12 ::