Patient Comments: Takayasu Disease - Symptoms

What symptoms did you experience with your Takayasu disease?

Comment from: Marie, 55-64 Female (Patient) Published: February 20

With Takayasu disease I experienced extreme fatigue, low grade fever, weight loss, weakness in both arms and difficulty chewing due to claudication of the carotid artery.

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Comment from: s, 35-44 Female (Patient) Published: October 18

My symptoms with Takayasu disease are high blood pressure, dizziness, claudication in hands and legs and fatigue.

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Comment from: evelyn, 13-18 Male (Caregiver) Published: April 08

My son is 14 and has lost his vision to left eye and the right eye now is 20/400 (legally blind) and all within one year. We have had him tested and evaluated by ophthalmologists, and rheumatologist but nothing definite other than working diagnosis of optic neuritis/vasculitis of unknown cause. Initially he was treated with steroids but no response and currently he is not taking anything except vitamins we decided to give him to slow the progression of his vision loss. We are out of options as parents.

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Comment from: susan, 45-54 Female (Patient) Published: April 08

My symptoms with Takayasu included high blood pressure and intermittent claudication in my legs while walking. I always felt tired.

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Takayasu Disease - Treatment Question: What types of treatment have you received for Takayasu disease?

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