Patient Comments: Lupus - Treatment

What kinds of treatment have you received for your systemic lupus?

Comment from: sfruth, 65-74 Female (Patient) Published: February 28

I have been treated for systemic lupus with Plaquenil 200 mg twice daily, and naproxen 200 mg twice daily for almost 2 years. I was able to reduce the naproxen after 1 1/2 years to once a day with no change in my progress. (I had a previous history of elevated creatinine when on naproxen for osteoarthritis, which was later managed with fish oil and glucosamine/MSM, and when I discontinued the naproxen, my creatinine level returned to normal.) I also take nifedipine 30 mg XL for the Raynaud's- I take it year round, not just in winter. After about 6 months on nifedipine, I had much less severe Raynaud's symptoms. I have not needed steroids, except for an injection to treat hip pain from a medial gluteal tendon tear.

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Comment from: Ruby, 45-54 Female (Patient) Published: November 21

I have never been sick before, all of my years. I still don't know if I have Lupus, my ANA (antinuclear antibody) shows it. I found out about two years ago, they said it might be, I have so many doctors I go to. I am 50, I do not want this disease; I am in so much pain at night I could hardly move. Today I started off this morning slowly walking, by the afternoon my mouth has sore on my tongue, my ankle, wrist, hands and knee are swelling, and it hurts to swallow. I have shortness of breath, lungs hurts and I feel very tired. Sometimes it feels like a nightmare. I am on hydroxychloroquine, gabapentin, prednisone, naproxen, tramadol, lidocaine 5% topical patch and about three months ago doctor changed me to mycophenolate (Cellcept). I go to work every day, the more I stay in bed I feel sicker so no matter how much pain I am in I go to work.

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Comment from: shani , 25-34 Female (Caregiver) Published: October 18

For more than five years I have been continuing my treatment for systemic lupus. Now I am taking the tablets MMF (mycophenolate mofetil), HCQS (hydroxychloroquine) 400mg per day, octocalcium 2 tablets at night, Ecosprin and losartan 25 mg.

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Comment from: misspinx, 19-24 Female (Patient) Published: September 06

I had the symptoms at age 16 but since the disease hides itself, I was diagnosed at 18. I was prescribed Quensyl and for discoid lupus Ecural cream. Since my kidneys and have been affected, I use Prednisolone. I'm now 19 and still kicking with the drugs.

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Comment from: upallnity, 45-54 Female (Patient) Published: August 23

Plaquenil 2x a day - 12 gabapentin per day - 3 Dilantin per day - 4 methocarbamol per day - 2 nabumetone per day - 3 Restasis per day - 1 citalopram - 1 amlodipine - 6 tramadol per day - occasionally oxycodone and prednisone - now Cellcept.

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Comment from: dwilcol, 35-44 Female (Patient) Published: May 02

I was just officially diagnosed with SLE. Since January, I had strep throat that wouldn't go away with antibiotics. After countless days of extreme fatigue, nausea (like morning sickness), achy joints, and shortness of breath, I decided to see my doctor. I had been trying to give a kidney to my co-worker for over a year and found that I was iron-deficient anemic. Even with iron infusions and vitamin B12 shots on a regular basis, my blood tests showed that my platelets and ANA were substantially high. After several tests and many symptoms, including pleuritis, I was diagnosed with lupus. I am now on Plaquenil and prednisone. I have beefed up on my vitamin B12, fish oil, and flaxseed. I was a runner, but that has been placed on hold. I do moderate to light exercise and continue to manage the disease through diet, exercise, and all natural regimens. I always joke if somebody could cut my hands and feet off and get rid of this chronic ugly sore throat and fatigue...I would be a new woman! I am in charge of the disease; the disease isn't in charge of me.

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Lupus - Symptoms Question: The symptoms of lupus can vary greatly from patient to patient. What were your symptoms at the onset of your disease?
Lupus - Experience Question: Please describe your experience with lupus.

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