Patient Comments: Still's Disease - Symptoms and Signs

What symptoms and signs did you experience with your Still's disease?

Comment from: Geeb, 45-54 Female Published: December 01

After sleeping for a couple of hours I used to be awakened by a severe leg ache in my right leg ache that would go away when I stood and walked a little but would wake me again in a couple hours. I was getting little sleep and the pain and muscle weakness were extending into the day. I have found I can avoid the waking with pain if I sleep on my back or as someone else mentioned, hang the foot over the side of the bed. When I do these things the pain does not start and the muscles are almost back to normal. I think some pressure is blocking the circulation when lying on my side. Sound too simple? Try it.

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Comment from: Felicia, 19-24 Female (Patient) Published: March 26

Last year, I started seeing a salmon colored rash while at the state fair. I thought it was from being around all the animals, grass, dust, etc. But then my joints (ankles and wrist) started hurting. I thought it was from all of the walking. Then a few months later in October, it hit hard. My throat was extremely sore, muscles so sore I couldn't move, swollen wrist and knees, vomiting, extreme fatigue, difficulty breathing, and kept a high fever. These symptoms lasted for the whole month of October. I went to the doctor several times during this period. I was finally hospitalized the last week of October and diagnosed with Still's disease. I was treated with steroids and Ibuprofen. I also find that eating healthy and exercising every day helps .This disease can be very stressful and aggravating to deal with. I had to drop out of respiratory school because I was so sick and missed so much that I couldn't catch up. But you have to take it one day at a time and not over work yourself. Hope this helps!

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Comment from: sherrybaker, 55-64 Female (Patient) Published: January 08

It all started with an ear ache and Chantix to stop smoking. I then had a rash that I thought was hives. Then at work I could not walk then it was on � Still's disease!

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Comment from: jeanh6521, 55-64 Female (Patient) Published: October 26

I am 56 years old and was diagnosed with Still's disease after two months in two different hospitals. I have a severe and unusual case. I have been on prednisone since May 2011. When I start to taper off, I end up in the hospital. I had no symptoms before being hospitalized. I woke up one day and my knees/legs would not support my weight. My doctor sent me to the emergency room, and I was admitted to the hospital that night. I had many, many tests: CAT scans, biopsies, X-rays, etc., to rule out any other illnesses or cancer. I have Remicade infusions every four weeks and believe they are helping. Because I've been on steroids, I have fractured vertebrae at this point in time. I am also seeing a cardiologist, as my heart rate is extremely high. I take one day at a time and know that things will get better.

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Comment from: 55-64 Male (Patient) Published: January 31

I was in bed after work when I could not move my legs. I also felt excruciating pain when trying to move my legs. After two days at home I went to the hospital in an ambulance and was after many tests diagnosed with Still's. That was in November 2012. Now it is Jan 2013 and I have pain mainly in my hands and wrists. I am able to walk but can't run. Medication is mainly Methotrexate and analgesics.

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Still's Disease - Treatment Question: What was the treatment for your Still's disease?
Still's Disease - Prognosis Question: What is your Still's disease prognosis?

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