Patient Comments: Spina Bifida - Describe Your Experience

Please describe your experience with spina bifida and anencephaly (neural tube defects).

Comment from: jacqueline, 45-54 Female (Patient) Published: October 31

I had spina bifida when I was born. I have no ill effects from it. I am a perfectly healthy 51 year old woman. So you can have a normal life if you have had spina bifida.

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Comment from: 25-34 (Caregiver) Published: July 12

my concern is, I have a few girls that were diagnosed with a slight case of spina bifida, after they were a 2 months old, there seem to be no follow up, after that , but they did experience problems growing up, and being older now , they have been recognized with bi polar disorders,, and so on, can spina bifida cause this?

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Patient Comments

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Spina Bifida - Signs and Symptoms Question: What are the signs or symptoms your child has experienced with spina bifida or anencephaly?
Spina Bifida - Treatment Question: What forms of treatment has your child received for spina bifida?
Spina Bifida - Complications Question: Did your child or loved one experience complications associated with spina bifida?

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