Patient Comments: Sjogren's Syndrome - Describe Your ExperiencePlease describe your experience with sjogren's syndrome.
Comment from: karen, 45-54 Female (Patient)
Published: April 16
I have been healthy and active all my life. At age 40, I started having panic attacks and obsessive thoughts of worry. I always thought it was physical a problem with my brain. After 10 years of doctors and mental health doctors, blood tests came back positive and negative for Sjogren's. Retesting still showed the same result for. I am 54 years old now and crippled. I'd like to know if anyone else has had problems with whole-body vibration. Was this comment helpful?Yes
Comment from: Debi, 35-44 Female (Patient)
Published: April 05
I was diagnosed with Sjogren's syndrome in 2008 and we are still figuring out what triggered it. My mother has non-Hodgkin lymphoma and she is at Stage 4, which is the last stage. The doctors are keeping an eye on me for lymphoma. Some of my days are rough having Sjogren's, but I try to make the best of it. Was this comment helpful?Yes
Comment from: mrshahc, 45-54 Female (Patient)
Published: March 26
I was diagnosed with Sjogren's and hypothyroidism after a hepatitis C treatment in 2004. The past four years, the Sjogren's has taken over my active life. I was into daily cardio and strength training, along with bicycling and Pilates. Three years ago, my shoulder, elbows, fingers and knees started to hurt, especially when I moved up and down. I feel pain with every movement. It seems like Sjogren's has taken over my life. Was this comment helpful?Yes
Comment from: TKamp, 55-64 Female (Patient)
Published: March 13
I was diagnosed about 5 months ago. I had a lot of symptoms, but just ignored them because they were so strange that I thought my doctor would think I was crazy. I used to walk a lot for exercise and I would be unable to swallow for lack of saliva and it would make me panic. My lips are always chapped and flaky and the corner of my mouth cracks. Also I cannot eat certain vinegary or acidic foods like salsa or salad dressing because they cause my tongue to burn. I am always stiff with joint pain and have severe tingling in my legs with stabbing pains in my feet. I had to have 5 teeth bonded at the gum line because my gums receded. I have been using Biotene mouthwash,toothpaste, mouth spray but they don't really help. My doctor said to suck on sugarless lemon drops,but then I develop a thick brown goo on my tongue and that is not very nice to look at when talking to someone. Was this comment helpful?Yes
Comment from: 45-54 Female (Patient)
Published: September 02
I was diagnosed with psoriatic arthritis about six years ago. The itchy, burning eyes and dry, sticky mouth started about 18 months ago and, having been diagnosed with Sjogren's syndrome, I assumed it was just about the eyes and mouth and was completely unprepared for the burning skin and sweating, the difficulty swallowing and the general feeling of being unwell and tired all the time. I have eye drops six times a day and a mouth spray but, along with the NSAIDS for the arthritis, I now have to have Omeprazole for chronic heartburn and can't bear any form of spicy food. My sense of smell has all but gone, and I swear my memory has suffered as I sometimes struggle to finish a sentence and find it hard to concentrate for any amount of time. This has got to be the worst thing I've ever had and it's so depressing to know that there's no cure, only palliative care. Was this comment helpful?Yes
Related Medications: Omeprazole Patient CommentsViewers share their comments
Sjogren's Syndrome - Treatment and Diet
Question: What treatment has been effective for your Sjogren's syndrome? Have you made any dietary changes, and have they been effective in managing your Sjogren's syndrome?
Sjogren's Syndrome - Symptoms
Question: What symptoms and signs did you experience with Sjogren's syndrome?
Sjogren's Syndrome - Prognosis
Question: What is the prognosis for your Sjogren's syndrome?
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It all started about five years ago with fatigue and painful joints. I was diagnosed with RA ANA and was positive for fibromyalgia. I was put on Neurontin, Mobic and prednisone. The prednisone gave me a cataract and I needed surgery for that. They put me on methotrexate and I am now testing negative for RA. I am also on Plaquenil for autoimmune Disease, (Sjogren's syndrome). I battle with thrush and urinary infections (bacterial), and use ciprofloxacin, which is an antibiotic that I find can cause many problems like joint/muscle/tendon pain and fatigue – just what I need. I also battle with depression. Everyone just needs to have a good support system.
Related Medications: prednisone | ciprofloxacin