Patient Comments: Sjögren's Syndrome - Symptoms and Signs

What symptoms and signs did you experience with Sjögren's syndrome?

Comment from: sandraruby, 65-74 Female (Patient) Published: June 15

Extreme tiredness, problems with my pancreas, dry eyes, dry mouth sore glands, slow thyroid and general feeling of lethargy. Vaginal dryness resulting in frequent bouts of thrush and water infections.

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Comment from: houston,texas, 35-44 Male (Patient) Published: June 03

I've have just been diagnosed with sjogren's syndrome. I have very dry skin, my mouth is constantly dry. My saliva glands under my ears swell up mostly every other day.

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Comment from: Gstmal509, 13-18 Male (Patient) Published: May 23

Hi I am a 15 year old Boy and I was diagnosed with sjogrens syndrome about two years ago. But apart for the Itchy, dry eyes and the glands behind my jaw swelling up every day. I feel ok.

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Comment from: Annabelle13, 13-18 Female (Patient) Published: May 20

I've been diagnosed with Sjogrens 5 years ago and I am currently 18. Along with Sjogrens I have very bad acid reflux. On top of that I also have Rheumatoid Arthritis, and Crohn's Disease. Now I understand everyone's pain is different, but I live in immense pain everyday and I still keep a smile on my face. Even if you have Sjogren's or other problems don't think about your life stinks, just think about being lucky to live. I look at my diseases as a gift; yes I cry a lot due to the pain and everything else. But these are what makes me; me. I'm to the point where I can't let this run my life. Ladies and Gentlemen I'm sorry but if I can pull of being a young teenager and have this so can you. Never give up with this because yes there are bad days, but it shows how strong of a person you are.

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Comment from: Lou, 65-74 Female (Patient) Published: May 12

My symptoms with Sjogren's syndrome are joint pain, throat tightness almost like choking,and reflux occassionally.

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Comment from: mhazel, 35-44 Female (Patient) Published: May 03

I am in the process of a diagnosis. I should say, the beginning stages of the process. My symptoms are dry eyes and dry, flaky, cracking eye lids. I also have severe dry mouth, sinusitis, sores in my nose, a lump on the inside part of my lower jaw under my front teeth. I have severe dry skin and lips. My hair is breaking. Sometimes the goopy tears are so thick that I have a hard time seeing. I have vaginal dryness. And the fatigue is almost too much to handle. Hopefully, the doctors are going to say that we're in the beginning stages, but I have a feeling she's not.

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Comment from: 45-54 Female Published: April 20

I have Sjogren's and I have spells of pain from head to toe. My whole body feels like one big cramp, with pain. My skin itches all over. I feel like I haven't slept for days when I have an attack.

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Comment from: AnnieD, 55-64 Female (Patient) Published: April 14

I was diagnosed with Sjogren's in my early 30's. It started with extreme pain in my knees and progressed to the point where I could hardly move. Over the years I've had a few flare-ups and depression but kept working just so I'd get out of bed in the morning. I'm now in my 60's and lead an almost normal life. I get very tired but the pain is pretty well under control. After reading some of stories here I feel very fortunate. It's a tough road but there's always hope for remission. Good luck to all.

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Comment from: 55-64 Female (Patient) Published: April 12

I was diagnosed with Sjogren's about ten years ago. I am getting ready to turn 63 and the worst part of it for me is the extreme fatigue. There are most days that it just consumes me. I have dry eyes and dry mouth also. I have to use eye drops and drink a lot of water. There are days that I can hardly hold my head up. I have to rest a lot. I am getting ready to see a new doctor, I hope he can offer some treatment for this.

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Patient Comments

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Sjögren's Syndrome - Describe Your Experience Question: Please describe your experience with Sjögren's syndrome.
Sjögren's Syndrome - Prognosis Question: What is the prognosis for your Sjögren's syndrome?
Sjögren's Syndrome - Treatment and Diet Question: What treatment has been effective for your Sjögren's syndrome? Have you made any dietary changes, and have they been effective in managing your Sjögren's syndrome?

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