Patient Comments: Sjogren's Syndrome - Treatment and Diet

What treatment has been effective for your Sjogren's syndrome? Have you made any dietary changes, and have they been effective in managing your Sjogren's syndrome?

Comment from: danaprov, 55-64 Female (Patient) Published: September 21

I'm a lucky one. I got diagnosed 7 years ago with Sjogren's syndrome after a weird rash, which turned out to be autoimmune related. I had thought my eyes were just tired all the time; I'd kept water by my bed at night forever. I've struggled with digestive issues; I have arthritis and bone spurs in my hands and feet, respectively. I say I'm lucky because I found a lot of helpful information when I googled autoimmune and diet. Avoiding wheat has made a huge difference; taking fish oil and investigating other aspects of my health and eating an anti-inflammatory diet and taking certain supplements has made a huge difference. I want to encourage others to consider making changes in lifestyle and diet- there's a lot of information and support available.

Was this comment helpful?Yes
Comment from: DW, Female (Patient) Published: February 20

I was diagnosed with Sjogren's syndrome about 6 years ago in 2009. It started with scratched cornea, dry mouth, body aches and pain in my joints. I went to my doctor and she did blood test which came back positive ANA for rheumatoid arthritis. I was put on prednisone and that caused cataract. I had no sleep and we found out I had sleep apnea so I am on CPAP and oxygen. I am on Plaquenil 200 mg 2 times a day, fish oil, and cyclobenzaprine 10 mg. I am also taking vitamin D, and Biotin for hair, skin, and nails. I have changed my diet. I have found a shake called 310 Shake, or Isagenix shakes, and Isaflush, a cleanser for life. I eat lots of vegetables. I found that any sugar causes pain and swelling, please try no sugar, if you must use, try Stevia. Use coconut oil and coconut water. Stick to meat, fish, and eggs. No bread, pasta, crackers, or chips. Good luck to all.

Was this comment helpful?Yes
Comment from: shiggie, (Patient) Published: October 02

I have had Sjogren's syndrome for 15 years including vasculitis, joint pain and dry eyes. I have been able to manage it with Plaquenil, until six months ago when I developed peripheral neuropathy in both legs and feet. My rheumatologist put me on Imuran and I had three months of continuous bladder infections, seemingly unresponsive to seven different antibiotics. I stopped taking the Imuran due to the lack of immunity for infections. Since stopping the Imuran, I developed an infection in my tooth and sinus cavity and have sore cervical lymph glands. I find if I take 1000 mg of vitamin C every day, the cervical glands are less sore. I had to have my tooth pulled and am now waiting for an implant. I take gabapentin for the neuropathy but it doesn't seem to help that much. I carry an ice bag in my purse and take one to bed with me at night, which helps more. I find myself being very irritable, although I take a small dose of Prozac, which is great coping medicine. If I can keep very busy, I don't notice all my symptoms so much and emotionally do better.

Was this comment helpful?Yes
Comment from: 45-54 (Patient) Published: October 01

I have been diagnosed with Sjogren's syndrome for over 20 years now. The first two were terrible, I had dry mouth and could hardly eat, joint pain, and terrible fatigue. But 20 years on, I do not take medication for it. I walk every day for 20 to 30 minutes a day. I only eat what the sun grows, except two fish meals and one meat meal per week. I do strength training as well. I push through the pain every day. I refuse to take medication. I think it does damage to my body, although I do have a flu shot and a pneumonia shot as I developed pneumonia recently and was on life support for 11 days, but came through it.

Was this comment helpful?Yes
Comment from: Nan, 65-74 Female (Patient) Published: February 24

I take 3000 IU of flaxseed capsules daily. It has helped me with the extreme dry eyes caused by Sjogren's syndrome. My tear ducts were plugged as well.

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Sjogren's Syndrome - Describe Your Experience Question: Please describe your experience with sjogren's syndrome.
Sjogren's Syndrome - Symptoms Question: What symptoms and signs did you experience with Sjogren's syndrome?
Sjogren's Syndrome - Prognosis Question: What is the prognosis for your Sjogren's syndrome?

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.

Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.