Patient Comments: Seizure (Epilepsy) - Lifestyle

In what ways has epilepsy affected your lifestyle? Discuss the challenges.

Comment from: 25-34 Female (Patient) Published: November 14

I am 27, I began having absence/petit-mal seizures when I was 14. As I've gotten older I began having non-tonic/grand-mal seizures also, thankfully after I'd graduated. Trouble is, the side effects have gotten worse also. My IQ is extremely slowly dropping. My memory though is leaving very fast. I've tried many medications, often going to the max dose before switching to try another. Apparently I have intractable epilepsy. Because I've fallen so many times it's damaged my shoulders, the joints give or dislocate around 10 to 20 times daily on each side. I can now pop them back in myself but they need surgery which I can't have because apparently it's useless if I fall so often. My social life has also dropped dramatically and I'm unable to work. (Hello, cabin fever!) Never thought I'd miss working. Thankfully there is a bus that goes by and I can still get around now and then.

Was this comment helpful?Yes
Comment from: greeneyes, 35-44 Female (Patient) Published: October 08

I first started to have grand mal seizures only in my sleep starting 5 years ago in 2009. I was put on Dilantin, then it was changed to Phenytoin, then Tegretol. These three anti-seizure medications stopped the seizures, but the side effects were not good. I had stomach nausea all the time and personality problems and eventually had memory loss. I decided to stop taking the anti-seizure medication and weaned myself off the pills. Right now I take no medication for my seizures. I still have them only in my sleep and I have 1, maybe 2, a month. The seizures affect my daily life every day because I still have stomach nausea almost every day and I have after-effects from the seizures as well. But I would rather not take seizure medication for my seizures because of the negative reactions I have had from them.

Was this comment helpful?Yes
Comment from: vishal, 19-24 Male (Patient) Published: July 15

I used have sudden shivering of hands on a smaller scales and on a very lower scale but later when I started smoking & drinking few time later I got first attack of epilepsy seizure attack. My hands shakes suddenly for few minutes which is very embarrassing I can't do my work I can't wake-up early I cannot do work with proper concentrator. how can i get treated?

Was this comment helpful?Yes

Patient Comments

Viewers share their comments

Seizure (Epilepsy) - Effective Treatments Question: Please describe effective treatments with epilepsy (seizure disorder).
Seizure (Epilepsy) - Share Your Experience Question: Please share your experience with epilepsy (seizure disorder).

Patient Comments are not a substitute for professional medical advice, diagnosis, or treatment. Never delay or disregard seeking professional medical advice from your physician or other qualified health provider because of something you have read on MedicineNet. The opinions expressed in the comments section are of the author and the author alone. MedicineNet does not endorse any specific product, service or treatment.

Alert If you think you have a medical emergency, call your doctor or 911 immediately.


Report Problems to the Food and Drug Administration

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit the FDA MedWatch website or call 1-800-FDA-1088.


STAY INFORMED

Get the Latest health and medical information delivered direct to your inbox!