Seizure (cont.)
Conclusion
Many people with epilepsy lead productive and outwardly normal lives. Medical
and research advances in the past two decades have led to a better understanding
of epilepsy and seizures than ever before. Advanced brain scans and other
techniques allow greater accuracy in diagnosing epilepsy and determining when a
patient may be helped by surgery. More than 20 different medications and a
variety of surgical techniques are now available and provide good control of
seizures for most people with epilepsy. Other treatment options include the
ketogenic diet and the first implantable device, the vagus nerve stimulator.
Research on the underlying causes of epilepsy, including identification of genes
for some forms of epilepsy and febrile seizures, has led to a greatly improved
understanding of epilepsy that may lead to more effective treatments or even new
ways of preventing epilepsy in the future.
Where can I get more information?
For more information on neurological disorders or research programs funded by
the National Institute of Neurological Disorders and Stroke, contact the
Institute's Brain Resources and Information Network (BRAIN) at:
BRAIN
P.O. Box 5801
Bethesda, MD 20824
(800) 352-9424
http://www.ninds.nih.gov
Information also is available from the following organizations:
Citizens United for Research in Epilepsy (CURE)
730 N. Franklin
Suite 404
Chicago, IL 60610
info@CUREepilepsy.org
http://www.CUREepilepsy.org
Tel: 312-255-1801
Fax: 312-255-1809
Non-profit grassroots organization formed by parents and families to raise
funds for epilepsy research.
Epilepsy Foundation
8301 Professional Place
Landover, MD 20785-7223
postmaster@efa.org
http://www.epilepsyfoundation.org
Tel: 301-459-3700 800-EFA-1000 (332-1000)
Fax: 301-577-2684
National charitable organization dedicated to the welfare of people with
epilepsy. Works for children and adults affected by seizures through education,
advocacy, services, and research towards a cure. Offers a Legal Defense Program
through a fund.
Epilepsy Institute
257 Park Avenue South
New York, NY 10010
website@epilepsyinstitute.org
http://www.epilepsyinstitute.org
Tel: 212-677-8550
Fax: 212-677-5825
Non-profit organization that provides comprehensive social services and
resources for people with epilepsy and their families.
Parents Against Childhood Epilepsy (PACE)
7 East 85th Street
Suite A3
New York, NY 10028
pacenyemail@aol.com
http://www.paceusa.org
Tel: 212-665-PACE (7223)
Fax: 212-327-3075
Non-profit research resource that provides information and support to
families of children with epilepsy.
Family Caregiver Alliance/ National Center on
Caregiving
180 Montgomery Street
Suite 1100
San Francisco, CA 94104
info@caregiver.org
http://www.caregiver.org
Tel: 415-434-3388 800-445-8106
Fax: 415-434-3508
Supports and assists families and caregivers of adults
with debilitating health conditions. Offers programs and consultation on
caregiving issues at
local, state, and national levels. Offers free publications and support online,
including a national directory of publicly funded caregiver support programs.
National Council on Patient Information and Education
4915 St. Elmo Avenue
Suite 505
Bethesda, MD 20814-6082
ncpie@ncpie.info
http://www.talkaboutrx.org
Tel: 301-656-8565
Fax: 301-656-4464
Coalition of nearly 150 organizations committed to safer, more effective
medicine use through better communication. Additional website is
www.bemedwise.org.
National Family Caregivers Association
10400 Connecticut Avenue
Suite 500
Kensington, MD 20895-3944
info@thefamilycaregiver.org
http://www.thefamilycaregiver.org
Tel: 301-942-6430 800-896-3650
Fax: 301-942-2302
Grassroots organization dedicated to supporting and improving the lives of
America's family caregivers. Created to educate, support, empower, and advocate
for the millions of Americans who care for their ill, aged, or disabled loved
ones.
National Organization for Rare Disorders (NORD)
P.O. Box 1968
(55 Kenosia Avenue)
Danbury, CT 06813-1968
orphan@rarediseases.org
http://www.rarediseases.org
Tel: 203-744-0100 Voice Mail 800-999-NORD (6673)
Fax: 203-798-2291
Federation of voluntary health organizations dedicated to helping people with
rare "orphan" diseases and assisting the organizations that serve them.
Committed to the identification, treatment, and cure of rare disorders through
programs of education, advocacy, research, and service.
International RadioSurgery Association
3002 N. Second Street
Harrisburg, PA 17110
office1@irsa.org
http://www.irsa.org
Tel: 717-260-9808
Fax: 717-260-9809
Proactive patient organization providing information and referrals on Gamma
Knife, Linac, and particle beam radiosurgery for brain tumors, arteriovenous
malformations (AVMs), and neurological pain and movement disorders.
Charlie Foundation to Help Cure Pediatric Epilepsy
1223 Wilshire Blvd.
Suite #815
Santa Monica, CA 90403
ketoman@aol.com
http://www.charliefoundation.org
Tel: 800-FOR-KETO (367-5386) 310-395-6751
Fax: 310-393-1978
Non-profit organization that raises money for scientific research focusing on
the ketogenic diet. Offers education programs and materials for families and
dieticians.
Epilepsy Therapy Development Project
11921 Freedom Drive
Suite 730
Reston, VA 20190
EpilepsyCure@aol.com
http://www.epilepsytdp.org
Tel: 703-437-4250
Fax: 703-437-4288
Nonprofit corporation that works to advance new treatments for people living
with epilepsy. Supports innovative research in academia and industry. Provides
information through the www.epilepsy.com website.
Antiepileptic Drug Pregnancy Registry
MGH East, CNY-149, 10th Floor
149 13th Street
Charlestown, MA 02129-2000
ebaldwin@partners.org
http://www.aedpregnancyregistry.org
Tel: 888-AED-AED4 (233-2334)
Fax: 617-724-8307
Registry designed to determine what therapies are associated with increased
risk of harmful fetal effects. Participation is confidential.
SOURCE: National Institute of Neurological Disorders and Stroke, National
Institutes of Health
Last Editorial Review: 5/9/2008
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