Homocysteine - Elevated Levels

Not ready to share? Read other Patient Comments

Do you or someone you know have homocystinuria and elevated homocysteine levels? Please describe your experience.

Share your story with others:

MedicineNet appreciates your comment. Your comment may be displayed on the site and will always be published anonymously.Patient Comments FAQs

Enter your Comment

Tell us a bit about your background to make your comments more useful to other MedicineNet users. (Optional)

Screen Name: *

Gender of Patient: Male Female

Age Range of Patient:

I am a: Patient Caregiver

* Screen Name will appear next to the published comment. Please do not include your full name or email address.

By submitting your comment, and other materials (collectively referred to as a "Submission") to MedicineNet, you grant MedicineNet permission to use, copy, transmit, publish, display, edit and modify your Submission in connection with its Web site. MedicineNet will not pay you for your Submission. You represent that you have all rights necessary for MedicineNet to use your Submission as set forth above.

Please keep these guidelines in mind when writing your comment:

  • Please make sure you address the question asked.
  • Due to the overwhelming number of comments received, not all comments will be published.
  • When selecting comments to publish, our staff will choose those that are educational and complement the topic. Please try to stay on topic.
  • Your comment may be edited. We would typically edit comments to make them clearer and more readable. We will remove personal information such as last names, email and web addresses, and other potentially harmful information.
  • We will not notify you if your comment has been published. We suggest that you check back on the topic article regularly.
  • We do not provide medical or healthcare advice, treatment, or diagnosis.

Thank you for participating!

I have read and agree to abide by the MedicineNet Terms and Conditions and the MedicineNet Privacy Policy (required).

To prevent our systems from spam, please complete the following prior to submitting your comment.

Please select the black square:

How common is hyperhomocysteinemia?

Mild hyperhomocysteinemia levels are common and seen in about 5% to 12% of the general population. In specific populations such as, alcoholics (due to poor vitamin intake) or patients with chronic kidney disease, this may be more common. The severe genetic form, homocystinuria, is rare (0.02%).

Return to Homocysteine (Elevated Homocysteine, Homocystinuria, Hyperhomocysteinemia)

See what others are saying

Comment from: Wilson, 55-64 Male (Patient) Published: July 24

Niacin did raise my homocysteine levels so I stopped taking it. I lowered my homocysteine levels to normal by taking N-Acetylcysteine (600 mg twice a day) with methylfolate (B-9), P-5-P/pyridoxal-5-phosphate (the active form of B-6 pyridoxine).

Was this comment helpful?Yes
Comment from: jollio, 75 or over Male (Patient) Published: June 24

I always had normal homocysteine levels up to age 76 but then I had non-ST heart attack preceded by couple of hours of rapid heat beat with atrial fibrillation. Then a month after the event it has remained elevated despite taking 1200 mg of folate a day, and it has been staying abnormally high for past six months, but my CRP is normal and I have excellent lipid profile 134 total cholesterol, 69 LDL, 60 HDL, and 29 triglycerides. I wonder if stroke is likely in the near future unless I get it down, or if it is just a fluke marker.

Was this comment helpful?Yes


Get the latest health and medical information delivered direct to your inbox!